Caregiving Resources

Who can you call if you need information on finding local resources to help you take care of your father? Are there organizations that will help pay for your mother’s medication? Where can you find support groups for family caregivers?

This resource list includes some useful national organizations available to help answer these questions. It’s organized by category. We’ve included only organizations that serve a national constituency. Phone numbers and web addresses are provided for easy contact. This list does not include every possible resource, but it is a place to start in your search for information.

General Resources

The following groups have a wealth of useful information on all aspects of aging, from research to services. Contact any of these for broad-based questions or referrals.
Administration on Aging
Eldercare Locator
800-677-1116 (toll-free)
www.eldercare.gov

American Geriatrics Society Foundation for Health in Aging
The Empire State Building
350 Fifth Avenue, Suite 801
New York, NY 10118
800-563-4916 (toll-free)
www.healthinaging.org

National Association of Area Agencies on Aging
1730 Rhode Island Avenue, NW, Suite 1200
Washington, DC 20036
202-872-0888
www.n4a.org

National Council on Aging
1901 L Street, NW, 4th floor
Washington, DC 20036
202-479-1200
202-479-6674 (TDD)
www.ncoa.org

National Institute on Aging Information Center
P.O. Box 8057
Gaithersburg, MD 20898-8057
800-222-2225 (toll-free)
800-222-4225 (TTY/toll-free)
www.nia.nih.gov
www.nia.nih.gov/Espanol

Alzheimer’s Disease

Alzheimer’s Disease Education and Referral Center
P.O. Box 8250
Silver Spring, MD 20907-8250
800-438-4380 (toll-free)
www.nia.nih.gov/Alzheimers

Alzheimer’s Association
225 North Michigan Avenue, Suite 1700
Chicago, IL 60601-7633
800-272-3900 (toll-free)
866-403-3073 (TDD/toll-free)
www.alz.org

Assisted Living

American Association of Homes and Services for the Aging
2519 Connecticut Avenue, NW
Washington, DC 20008-1520
202-783-2242
www.aahsa.org

Assisted Living Federation of America
1650 King Street, Suite 602
Alexandria VA 22314-2747
703-894-1805
www.alfa.org

National Center for Assisted Living
1201 L Street, NW
Washington, DC 20005
202-824-4444
www.ncal.org

National Citizen's Coalition for Nursing Home Reform
1828 L Street, NW, Suite 801
Washington, DC 20036
202-332-2275
www.nccnhr.org

Caregiving

Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
800-227-7294 (toll-free)
www.caps4caregivers.org

Family Caregiver Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
800-445-8106 (toll-free)
www.caregiver.org

National Alliance for Caregiving
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
www.caregiving.org

National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
800-896-3650 (toll-free)
www.nfcacares.org

Well Spouse Foundation
63 West Main Street, Suite H
Freehold, NJ 07728
800-838-0879 (toll-free)
www.wellspouse.org

Financial Assistance and Information

American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
800-437-2423 (toll-free)
www.ahaf.org

Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244-1850
800-633-4227 (toll-free)
877-486-2048 (TTY/toll-free)
www.medicare.gov

Department of Veterans Affairs
VA benefits: 800-827-1000 (toll-free)
VA health care benefits: 877-222-8387 (toll-free)
800-829-4833 (TTY/toll-free)
www.va.gov

Hill-Burton Free Care Program
Department of Health and Human Services
Health Resources and Services Administration
5600 Fishers Lane, Room 10-105
Rockville, MD 20857
800-638-0742 (toll-free)
www.hrsa.gov/hillburton

Employee Benefits Security Administration
Department of Labor
200 Constitution Avenue, NW
Washington, DC 20210
866-444-3272 (toll-free)
877-889-5627 (TTY/toll-free)
www.dol.gov/ebsa

National Council on Aging’s Benefits Checkup Program
www.benefitscheckup.org

Legal Issues

American Bar Association Commission on Law and Aging
740 15th Street, NW
Washington, DC 20005-1019
202-662-1000
www.abanet.org/aging

National Academy of Elder Law Attorneys
1604 North Country Club Road
Tucson, AZ 85716
520-881-4005
www.naela.org

National Senior Citizens Law Center
1101 14th Street, NW, Suite 400
Washington, DC 20005
202-289-6976
www.nsclc.org

Meals/Nutrition

American Dietetic Association
120 South Riverside Plaza, Suite 2000
Chicago, IL 60606-6995
800-877-1600 (toll-free)
www.eatright.org

Meals on Wheels Association of America
203 South Union Street
Alexandria, VA 22314
703-548-5558
www.mowaa.org

Medication/Prescription Drugs

AARP
www.aarp.org/health/conditions/articles/goldstandard.html

Centers for Medicare & Medicaid Services
Prescription Drug Coverage
www.cms.hhs.gov/PrescriptionDrugCovGenIn

Food and Drug Administration
Division of Drug Information
10903 New Hampshire Avenue
W051-2201
Silver Spring, MD 20993-0002
888-INFO-FDA (463-6332) (toll-free)
www.fda.gov/cder

National Council on Patient Information and Education
4915 Saint Elmo Avenue, Suite 505
Bethesda, MD 20814-6082
301-656-8565
www.talkaboutrx.org

Pharmaceutical Research and Manufacturers of America
Patient Assistance Programs
www.pparx.org/Intro.php

Respite and Hospice Care

Americans for Better Care of the Dying
1700 Diagonal Road, Suite 635
Alexandria, VA 22314
703-647-8505
www.abcd-caring.org

National Hospice Foundation
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
703-516-4928
www.nationalhospicefoundation.org