Children's Brain Disease Foundation [A Batten Disease Resource]

Children's Brain Disease Foundation [A Batten Disease Resource]
Parnassus Heights Medical Building, Suite 900
Suite 900
San Francisco,  CA  94117
Tel: 415-665-3003
Fax: 415-665-3003
EMail: jrider6022@aol.com
Description: National not-for-profit organization that raises funds for medical research into the causes and treatments of Batten disease, also known as Neuronal Ceroid Lipofuscinosis.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.