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This page provides information concerning the Genetic Discrimination study topic.
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A list of reports and correspondence related to this topic are provided below. This page also provides a summary of the sessions concerning this topic that have been held at SACGHS meetings so you can review the transcripts, presentation materials, and webcasts for the sessions that dealt with the topic.
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Reports and Correspondence |
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
SACGHS Letter to the Secretary of Health and Human Services![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(June 27, 2003)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
Secretary Thompson's Response to SACGHS![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(October 10, 2003)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
SACGHS Letter to the Secretary of Health and Human Services![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(March 29, 2004)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
Secretary Thompson's Response to SACGHS![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(August 12, 2004)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
SACGHS Letter to the Secretary of Health and Human Services![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(May 3, 2005)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/bullet_level2.jpg) |
Compilation of Public Comments![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) (15MB)
(September - November 2004)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/bullet_level2.jpg) |
Legal Analysis of the Adequacy of Current Law![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/bullet_level2.jpg) |
Perspectives on Genetic Discrimination Video DVD![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/homebullet.gif) |
Secretary Leavitt's Response to SACGHS![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) ![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/pdficon_small.gif)
(November 8, 2005)
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Top of Page |
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SACGHS Meetings |
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March 26, 2007 - Session on Genetic Discrimination |
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Briefing on the Status of Genetic Information Nondiscrimination Act |
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Kristine Bradsher
Michelle Adams
Brian Petersen
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) - Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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November 14, 2006 - Genetic Discrimination |
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Update on Genetic Discrimination |
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Sharon F. Terry
President and CEO, Genetic Alliance
Chair, Coalition for Genetic Fairness
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif) - Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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June 27, 2006 - Update from Key Stakeholders on the Status of the Federal Genetic Information Nondiscrimination Legislation |
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Michael J. Eastman
Director, Labor Law Policy, U.S. Chamber of Commerce
Co-Chair, GINE Coalition
and
Sharon F. Terry
President and CEO, Genetic Alliance
Chair, Coalition for Genetic Fairness |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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March 28, 2006 - Genetic Discrimination Session |
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Survey on Public Attitudes toward Genetic Technologies and Genetic Discrimination |
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Ms. Christy White
Cogent Research |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Q&A Session |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Update on the Status of the Genetic Information Nondiscrimination Act of 2005 (S. 306/H.R. 1227) |
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Sharon F. Terry, M.A.
Chair
Coalition for Genetic Fairness |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Q&A and Committee Discussion |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Public Comments |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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October 20, 2005 - Genetic Discrimination Session |
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Intro |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Update on the Status of the Genetic Information Nondiscrimination Act of 2005 (S. 306/H.R. 1227) |
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Frank Swain, J.D.
Coalition for Genetic Fairness |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Public Attitudes toward Advances in Genetics, Genetic Privacy and the Potential Misuse of Genetic Information |
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Ms. Christy White
Cogent Research |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Q&A and Committee Discussion |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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June 15, 2005 - Session on Genetic Discrimination |
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Update on SACGHS Efforts |
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Ms. Masny, R.N. M.P.H., M.S.
Chair, SACGHS Genetic Discrimination Task Force |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Overview of Legal Analysis |
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Peter S. Gray, J.D.
Equal Employment Opportunity Commission |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Congressional Update |
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Ms. Jaimie Vickery
Legislative Assistant
Office of the Honorable Judy Biggert
U.S. House of Representatives |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Full Committee Discussion |
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Facilitators: Ms. Masny and Dr. Tuckson |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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February 28, 2005 - Update on SACGHS Efforts on Genetic Discrimination |
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Ms. Masny and Ms. Berry |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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October 18, 2004 - Perspectives on Genetic Discrimination |
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Introduction |
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Agnes Masny, R.N., M.P.H., M.S.N.
Chair, SACGHS Task Force on Genetic Discrimination |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Panel One: Perspectives of Members of the Public |
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Heidi Williams |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Phaedra Malatek |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Rebecca Fisher, M.L.I.S. |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Tonia Phillips |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Paula Funk |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Maria Carolina Hinestrosa |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Phil Hardt |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Follow-up Questions for Panel One |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Panel Two: Health Care Provider Perspectives |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Jeff Shaw, M.S. - Oncology Genetics Counselor, Penrose Cancer Center |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Donald W. Hadley, M.S.- Associate Investigator, Social and Behavioral Research Branch National Human Genome Research Institute |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Mark Brantly, M.D. - Professor of Medicine, University of Florida Health Sciences Center |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Follow-up Questions for Panel Two |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Panel Three: Additional Stakeholder Perspectives |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Kathy Hudson, Ph.D.
Director, Genetics and Public Policy Center |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Jane Massey Licata, J.D., Ph.D.
Partner, Licata & Tyrrell P.C.
Adjunct Professor, Rutgers School of Law-Camden |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Joanne Armstrong, M.D., M.P.H.
Senior Medical Director, Women's Health, Aetna
America's Health Insurance Plans |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Mike Aitken - Society for Human Resources Management |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Follow-up Questions for Panel Three |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Roundtable Discussion with Three Panels |
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Facilitators: Ms. Masny and Dr. Tuckson |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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June 14, 2004 - Genetic Discrimination |
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Update on Genetic Non-Discrimination Legislation and the Activities of the Coalition on Genetic Fairness |
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Joann Boughman, Ph.D.
Executive Vice President, American Society for Human Genetics |
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Slides![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Discussion and Next Steps |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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October 22, 2003 - Genetic Discrimination in Health Insurance and Employment |
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Update on the Status of Federal Legislation to Prohibit Genetic Discrimination Report from the U.S. House of Representatives |
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Ms. Kristin Fitzgerald
Professional Staff Member
U.S. House Committee on Education and the Workforce |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Roundtable Discussion |
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Facilitator: Ms. Berry |
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Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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June 12, 2003 - Congressional Efforts to Prevent Genetic Discrimination |
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Kim Monk, M.S.
Senior Health Policy Advisor, Senate Committee on Health, Education, Labor and Pensions |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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Question and Answers |
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Webcast![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
Transcript![](https://webarchive.library.unt.edu/eot2008/20090117192548im_/http://oba.od.nih.gov/images/CLEAR.gif)
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