Final Agenda
Wilbur J. Cohen Building
300 C. Street, S.W., Room 5051
Washington, DC 20201
Wednesday, August 1Transcript |
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Context Setting, Background on Seminal Work |
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9:00 9:15 a.m. |
Introductions and Overview |
Simon Cohn, M.D., M.P.H., Chair, NCVHS and Ad Hoc Workgroup for Secondary Uses of Health Data |
9:15 10:00 a.m. |
Key Opportunities and Challenges in Framing Uses of Health Data |
John Lumpkin, M.D., M.P.H. Wendy Patterson, caBIG |
10:00 10:15 a.m. |
Break |
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Perspectives on Uses of Health Data |
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10:15 12:00 a.m. |
Quality Perspectives |
Joel Goldwein, M.D., Oncology Data Alliance, Elekta, Inc., Impac Scott Young, M.D., Archimedes DM Model (by phone) |
12:00 1:15 p.m. |
Lunch |
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1:15 2:30 p.m. |
Secondary/Tertiary Uses |
Jean Chenoweth, Solucient Top 100 Hospitals |
2:30 2:45 p.m. |
Break |
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2:45 - 4:00 p.m. | Public Health/Statewide Planning Perspectives | David Carlisle, California Office of Statewide Health Planning Leslie Lenert, M.D., Centers for Disease Control and Prevention Vickie Hohner, Fox Systems (by phone) |
4:00 5:30 p.m. |
Working Session |
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Thursday, August 2Transcript |
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Perspectives on Uses of Health Data, Con't. |
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8:30 10:00 a.m. |
Research Perspectives: Quality vs. Research; Data Use Agreements; IRB |
Marcelline Harris, R.N., Ph.D., Mayo, ANA Sharon Terry, Genetic Alliance Margaret Gunter, HMO Research Network and Lovelace Clinic Fdn/NM RHIO |
10:00 10:15 a.m. |
Break |
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10:15 a.m. 11:45 a.m. |
Health Plan Perspectives |
Carmella Bocchino, America's Health Insurance Plans Shirley Lady, Blue Cross Blue Shield Association - BHI Deborah Peel, M.D., Patient Privacy Rights Foundation |
11:45 1:00 p.m. |
Lunch |
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1:00 2:30 p.m. |
Data Sharing Perspectives -Longitudinal Data in NHIN -New IOM Panel on Privacy -Transparency and Authorization/Consent "on the ground" |
Karen Adams, M.D., NQF Senior Program Director Additional Material Sharyl Nass, Ph.D., Study Dir. IOM Privacy Committee Barbara Siegal, American Health Information Management Association |
2:30 2:45 p.m. |
Break |
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2:45 5:30 p.m. |
Working Session |
Friday, August 3Transcript |
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8:30 - 10:00 a.m. |
Working Session |
Dr. Cohn |
10:00 -10:55 a.m. |
Planning and Next Steps |
Dr. Cohn |
11:00 a.m. |
Adjourn |
Note: Written Testimony submitted by: Deborah Collyar, President, Patient Advocates in Research (PAIR)
August 10, 2007