What
is a bleeding disorder?
A bleeding
disorder occurs when a person’s blood does not clot (stop bleeding)
properly. Blood clotting involves both blood cells called platelets
and several proteins called clotting factors. A diagnosis of a
bleeding disorder means that either the platelets or clotting factors
are not working correctly, or there is a shortage of platelets or
clotting factors. The most common bleeding disorder in women is von
Willebrand Disease (vWD). Although there are several types of vWD,
persons with the most common type produce less than normal amounts of
vWD factor. In the other (less common) forms, either no factor is
made or the factor is made but does not work properly.
What
are the symptoms of a bleeding disorder?
The signs
and symptoms of bleeding disorders vary from person to person and
vary depending upon the disorder. The symptoms can include
Will
I pass this on to my children?
Perhaps.
Some bleeding disorders such as vWD are inherited and can be passed
on to a child.
How
are bleeding disorders treated?
Bleeding
disorders are treated based on their type. Conditions causing minor
bleeding may require no treatment. However, preventing or treating
more severe bleeding problems, such as heavy periods or excessive
bleeding during dental or surgical procedures, requires the use of
medications. Healthcare providers, who are experts in treating
bleeding disorders, can help find the best treatment and management
options for you.
Is
there information I need to share about my bleeding disorder with
other healthcare providers?
It is very
important to share your diagnosis with your healthcare providers,
especially before dental procedures, surgery, and pregnancy and
childbirth. Some women wear Medic Alert bracelets that outline their
diagnoses and treatment options in case of emergencies. Your local
hemophilia treatment center (HTC) can help you inform and educate
your doctors about any special healthcare needs you may have because
of your bleeding disorder.
What
are HTCs, and why do I need to seek their services? Can't my primary
doctor manage my care?
HTCs are
medical facilities in which a team of healthcare providers who are
experts in diagnosing and treating bleeding disorders provide
comprehensive care for people with such disorders. Comprehensive care
means that the team works with you to develop an individual treatment
plan, provide support, and help you coordinate your care with other
healthcare providers.
Where
can I find more information?
The National Hemophilia Foundation operates an information clearing
house, HANDI, that can provide more information about women with
bleeding disorders. You can visit their website:
www.hemophilia.org or call
1-800-42-HANDI.
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Date: November 21, 2005
Content source: National Center on Birth Defects and Developmental
Disabilities
