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Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)
Release Date: February 8, 2008
Announcement Number: RFA-OD-08-001
Application Receipt Date:
August 20, 2008
Letter of Intent Date: July 20, 2008
Funding Contact: Danilo Tagle, Ph.D.
Program Area: Neurogenetics
Brief Description:
The NIH ORD, NIAMS, NIDDK, NICHD, NINDS, NIA, NIAAA, NCI, NIDCR and NHLBI invite new and renewal cooperative agreement applications
to continue the Rare Diseases Clinical Research Network (RDCRN). The Network has two main components: Rare Diseases Clinical
Research Consortia (RDCRC) and a Data Management and Coordinating Center (DMCC) (formerly known as Data Technology Coordinating
Center, DTCC). The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement
applications for RDCRCs that individually focus on a subset of related rare diseases. A separate FOA has been published to
invite new and renewal cooperative agreement applications for DMCC at http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-002.html.
The purpose of the Network is to facilitate clinical research in rare diseases through support for 1) collaborative clinical
research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase
I , II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects
4) a test bed for distributed clinical data management that incorporates novel approaches and technologies for data management,
data mining, and data sharing across rare diseases, data types, and platforms; and 5) access to information related to rare
diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay public. Items 1-3 and
5 must be addressed in RDCRC application and item 4 must be addressed in DMCC application (http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-002.html)
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