Healthy People Consortium Meeting
"Implementing Healthy People 2010"
November 11, 2000
Summary of Breakout Group Discussion Concerning:
Chronic Kidney Disease
Representatives from the National Kidney Foundation, Indian Health Service Kidney Disease Program, KUH NIDDK, OPD NIH, and Maternal and Child Health attended this session. One attendee has a family member with kidney disease.
Dr. Agodoa described how the Chronic Kidney Disease objectives were developed. This was followed by a discussion of barriers to implementation and strategies for overcoming those barriers. These barriers include the following:
- Several objectives deal with intervention early in the course of chronic kidney
disease. New data sources describing care for people with chronic kidney disease not on dialysis must be developed in order to measure progress toward these objectives (e.g., nutritional intervention). Paul Eggers who recently transferred from HCFA to KUH should be helpful in developing these new data sources.
- A plurality of patients with chronic kidney disease are members of minority communities and may have decreased access to health care. Efforts to serve these communities effectively do not always accomplish their intended goal. JoAnn Vecchione (NKF) described highly successful and less successful efforts by the NKF to reduce the burden of kidney disease in minority communities with a disproportionate burden of disease. More involvement with non-Federal, community-based organizations will be essential to implement those objectives.
- Prevention in chronic kidney disease is a relatively new concept. Introduction of the Healthy People 2010 objectives in CKD has exposed the great need for educational materials on chronic kidney disease both for patients and providers. Thomas Hostetter, former president of the ASN, has been recruited to develop the National Kidney Disease Education Project at NIH.
Recommendations of the Breakout Group
- The Chronic Kidney Disease Work Group should be expanded to include non-Federal, community-based organizations (NKF, AKF, RPA, AAKP).
- The expanded Chronic Kidney Disease Work Group should meet on a regular and frequent basis in order to function as the
steering committee for implementation:
- Facilitate and monitor implementation of the objectives.
- Analyze data and facilitate new data initiatives.
- Coordinate Healthy People 2010 objectives with NKDEP.
- Facilitate communication with the public and health care providers.
- Promote collaboration with other work groups.
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