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Brief Summary

GUIDELINE TITLE

Living with stroke. In: Clinical guidelines for stroke rehabilitation and recovery.

BIBLIOGRAPHIC SOURCE(S)

  • Living with stroke. In: National Stroke Foundation. Clinical guidelines for stroke rehabilitation and recovery. Melbourne (Australia): National Stroke Foundation; 2005 Sep 8. p. 41-6.

GUIDELINE STATUS

This is the current release of the guideline.

BRIEF SUMMARY CONTENT

 
RECOMMENDATIONS
 EVIDENCE SUPPORTING THE RECOMMENDATIONS
 IDENTIFYING INFORMATION AND AVAILABILITY
 DISCLAIMER

 Go to the Complete Summary

RECOMMENDATIONS

MAJOR RECOMMENDATIONS

The levels of evidence supporting the recommendations (I-IV) and clinical practice points (CPP) are defined at the end of the "Major Recommendations" field.

Activity and Participation in the Community

Self-management

People with stroke who do not have cognitive impairment should be made aware of the availability of generic self-management programs before discharge from hospital and be supported to access such programs once they have returned to the community. (Level II, [Lorig et al., 2001; Lorig et al., 1999; Fu et al., 2003])

Stroke-specific programs for self-management may be provided to people who require more specialised programs. (CPP)

A collaboratively developed self-management care plan may be used to harness and optimise self-management skills. (CPP)

Activities of Daily Living (ADL) and Exercise

People living in the community who have difficulties with ADL should have access, as appropriate, to therapy services to improve, or prevent deterioration in, ADL. (Level I, [Outpatient Service Trialists, 2002])

People who are living in the community more than 6 months after their stroke should have access to interventions to improve fitness and mobility. (Level II, [Ouellette et al., 2004; Chu et al., 2004; Ada et al., 2003])

People living in the community should be provided with information (e.g., alternative transport options, resuming driving, ADL and exercise opportunities/services) to facilitate increased outdoor journeys and therefore greater participation within the community. The information provided should also be supplemented by other simple strategies (e.g., encouragement, use of appropriate aids/appliances, approaches to overcoming fear) by an appropriate health professional. (Level II, [Logan et al., 2004])

General practitioners should refer to allied health professionals where necessary when undertaking routine medical review of people with stroke. (CPP)

Driving

People with stroke who wish to return to driving may be offered a visual attention retraining program or traditional perceptual training. (Level II, [Mazer et al., 2003])

The National Guidelines for Driving (Austroads) and relevant state guidelines should be followed for all issues relating to driving following a stroke. (CPP)

People with stroke who wish to return to driving should be offered an opportunity to undertake an occupational therapy driving assessment, unless there are medical contraindications. (CPP)

Leisure

Targeted occupational therapy may be used to increase participation in leisure activities. (Level I, [Walker et al., 2004])

Return to Work

People with stroke who wish to work should be offered assessment and assistance to resume or take up work. (CPP)

Sexuality

People with stroke and their carers should be offered:

  • The opportunity to discuss issues relating to sexuality with an appropriate health professional; (CPP)
  • Written information addressing issues relating to sexuality post-stroke. (CPP)

Any interventions should address psychosocial aspects as well as physical function. (CPP)

Support

Peer Support

Stroke survivors should be provided with information about the availability and potential benefits of a local stroke support group and/or other sources of peer support prior to discharge from the hospital. (CPP)

Counselling

Counselling services should be made available to all stroke survivors and their families and may take the form of:

  • An active educational counselling approach; (Level I, [Bhogal et al., 2003])
  • Information supplemented by family counselling; (Level II, [Clark, Rubenach, & Winsor, 2003])
  • A problem-solving counselling approach. (Level II, [Evans et al., 1988])

Carer Support

Carers of stroke survivors should be provided with:

  • Information about the availability and potential benefits of local stroke support groups, at or before the person's return to the community; (Level II, [van den Heuvel et al., 2002]; Level III-2, [van den Heuvel et al., 2000])
  • Support by health professionals starting early after the person's stroke. (CPP)

Carers of stroke survivors should be offered services to support them after the person's return to the community. Such services should use a problem-solving or educational-counselling approach. (Level II, [van den Heuvel et al., 2002; Hartke & King, 2003; Grant, 1999]; Level III-2, [van den Heuvel et al., 2000])

Definitions:

Levels of Evidence

I Evidence obtained from a systematic review of all relevant randomised controlled trials.
II Evidence obtained from at least one properly designed randomised controlled trial.
III-1 Evidence obtained from well-designed pseudo-randomised controlled trials (alternate allocation or some other method).
III-2 Evidence obtained from comparative studies with concurrent controls and allocation randomised (cohort studies), case-control studies, or interrupted time-series with group.
III-3 Evidence obtained from comparative studies with historical control, two or more studies, or interrupted time series without a parallel control group.
IV Evidence obtained from case series, either post-test or pre-test and post-test.

Clinical Practice Points

CPP Recommended best practise based on clinical experience and expert opinion.

CLINICAL ALGORITHM(S)

None provided

EVIDENCE SUPPORTING THE RECOMMENDATIONS

REFERENCES SUPPORTING THE RECOMMENDATIONS

TYPE OF EVIDENCE SUPPORTING THE RECOMMENDATIONS

The type of supporting evidence is identified and graded for each recommendation (see "Major Recommendations").

IDENTIFYING INFORMATION AND AVAILABILITY

BIBLIOGRAPHIC SOURCE(S)

  • Living with stroke. In: National Stroke Foundation. Clinical guidelines for stroke rehabilitation and recovery. Melbourne (Australia): National Stroke Foundation; 2005 Sep 8. p. 41-6.

ADAPTATION

Not applicable: The guideline was not adapted from another source.

DATE RELEASED

2005 Sep 8

GUIDELINE DEVELOPER(S)

National Stroke Foundation (Australia) - Private Nonprofit Organization

SOURCE(S) OF FUNDING

Australian Government Department of Health and Ageing

GUIDELINE COMMITTEE

Expert Working Group

COMPOSITION OF GROUP THAT AUTHORED THE GUIDELINE

Group Members: Dr Michael Pollack (Co-chair) Director, Hunter Stroke Service; Rehabilitation Physician, John Hunter Hospital; Dr Erin Lalor (Co-chair) Chief Executive Officer, National Stroke Foundation; Dr Louise Ada, Physiotherapist, University of Sydney; Prof Justin Beilby, Professor of General Practice, University of Adelaide; Dr Janice Collier, Physiotherapist, National Stroke Research Institute; Ms Cindy Dilworth, Speech Pathologist, Royal Brisbane and Women's Hospital; Ms Louise Gustafsson, Occupational Therapist, University of Queensland; Mr Kelvin Hill, Project Manager, National Stroke Foundation; Ms Louise Jordan, Manager of Clinical Service Delivery, Hunter Stroke Service; Dr Sharon Kilbreath, Physiotherapist, University of Sydney; Prof Richard Lindley, Professor of Geriatric Medicine, University of Sydney; Geriatrician, Westmead Hospital; Mr Ian Murdoch, Consumer Representative, Queensland Stroke Association; Mr John Norton, Consumer Representative, Bendigo; Ms Debra O'Conner, Director of Health Promotion, Dianella Community Health; Ms Jane Phelan, Consumer Representative, Melbourne; Ms Jenny Pilgram, Nurse Educator, Royal District Nursing Service, Melbourne; Dr Rene Pols, Deputy Director of Human Behaviour and Health Research Unit, Flinders University; Dr Jonathan Sturm, Neurologist, Gosford Hospital

FINANCIAL DISCLOSURES/CONFLICTS OF INTEREST

Not stated

ENDORSER(S)

Australasian Faculty of Rehabilitation Medicine - Professional Association
Australasian Stroke Unit Network - Professional Association
Australian College of Rural and Remote Medicine - Professional Association
Australian Physiotherapy Association - Medical Specialty Society
Australian Society for Geriatric Medicine - Medical Specialty Society
Dietitians Association of Australia - Professional Association
Occupational Therapy Australia - Professional Association
Royal Australian and New Zealand College of Psychiatrists - Professional Association
Royal Australian and New Zealand College of Radiologists - Professional Association
Royal College of Nursing - Professional Association
Speech Pathology Australia - Medical Specialty Society
Stroke Society of Australasia - Disease Specific Society

GUIDELINE STATUS

This is the current release of the guideline.

GUIDELINE AVAILABILITY

Electronic copies: Available in Portable Document Format (PDF) from the National Stroke Foundation (Australia) Web site.

Print copies: Available from the National Stroke Foundation (Australia), Level 7, 461 Bourke Street, Melbourne Victoria 3000, Australia.

AVAILABILITY OF COMPANION DOCUMENTS

PATIENT RESOURCES

The following are available:

  • Driving after stroke. Fact sheet 1. Melbourne (Australia): National Stroke Foundation; 2008 July. 4 p.
  • Sexuality after stroke. Fact sheet 2. Melbourne (Australia): National Stroke Foundation; 2008 July. 2 p.
  • Depression after stroke. Fact sheet 3. Melbourne (Australia): National Stroke Foundation; 2008 July. 2 p.
  • Fatigue after stroke. Fact sheet 4. Melbourne (Australia): National Stroke Foundation; 2008 July. 2 p.
  • Medication after stroke. Fact sheet 5. Melbourne (Australia): National Stroke Foundation; 2008 July. 4 p.
  • Thinking and perception after stroke. Fact sheet 6. Melbourne (Australia): National Stroke Foundation; 2008 July. 4 p.
  • Diet after stroke. Fact sheet 7. Melbourne (Australia): National Stroke Foundation; 2008 July. 2 p.
  • Movement and exercise after stroke. Fact sheet 8. Melbourne (Australia): National Stroke Foundation; 2008 July. 2 p.
  • Communication after stroke. Fact sheet 9. Melbourne (Australia): National Stroke Foundation; 2008 Sept. 4 p.

Electronic copies: Available in Portable Document Format (PDF) from the National Stroke Foundation (Australia) Web site.

Print copies: Available from the National Stroke Foundation (Australia), Level 7, 461 Bourke Street, Melbourne Victoria 3000, Australia.

Please note: This patient information is intended to provide health professionals with information to share with their patients to help them better understand their health and their diagnosed disorders. By providing access to this patient information, it is not the intention of NGC to provide specific medical advice for particular patients. Rather we urge patients and their representatives to review this material and then to consult with a licensed health professional for evaluation of treatment options suitable for them as well as for diagnosis and answers to their personal medical questions. This patient information has been derived and prepared from a guideline for health care professionals included on NGC by the authors or publishers of that original guideline. The patient information is not reviewed by NGC to establish whether or not it accurately reflects the original guideline's content.

NGC STATUS

This NGC summary was completed by ECRI Institute on December 4, 2008. The information was verified by the guideline developer on December 4, 2008.

COPYRIGHT STATEMENT

This NGC summary is based on the original guideline, which is subject to the guideline developer's copyright restrictions.

DISCLAIMER

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