This is the current release of the guideline.

American Academy of Pediatrics (AAP) Policies are reviewed every 3 years by the authoring body, at which time a recommendation is made that the policy be retired, revised, or reaffirmed without change. Until the Board of Directors approves a revision or reaffirmation, or retires a statement, the current policy remains in effect.

All pediatric illnesses and disabilities that result in special health care needs

Management

Family Practice
Pediatrics

Physicians

To educate physicians on the philosophy of providing a permanent family environment (permanency planning) for all children, including those with special health care needs, and the importance of adequate and accessible community services to support and maintain the well-being of all family members

Children, including infants, children, adolescents, and young adults up to 21 years of age

1. Permanency planning (permanent family environment for children with special needs)
2. Family support services including child care, respite, transportation, home modifications, durable medical equipment, behavior-management training, crisis intervention, faith-based services, assistance with transition to adult group homes
3. Additional parenting models
4. Out-of-home placement
5. Congregate care
6. Education and training of care providers
7. Physician advocacy

• Family function over time (e.g., degree of family stress)
• Prevention out of home placement

Hand-searches of Published Literature (Primary Sources)
Hand-searches of Published Literature (Secondary Sources)
Searches of Electronic Databases
Searches of Patient Registry Data
Searches of Unpublished Data

Not stated

Not stated

Not stated

Not applicable

Review

Not stated

Expert Consensus

Not stated

Not applicable

A formal cost analysis was not performed and published cost analyses were not reviewed.

Not stated

Not applicable

None provided

The type of supporting evidence is not specifically stated for each recommendation.

Provision of comprehensive and effective special health care requirements for children and the families caring for them

Not stated

The guidance in this report does not indicate an exclusive course of treatment or serve as a standard of medical care. Variations, taking into account individual circumstances, may be appropriate.

An implementation strategy was not provided.

Living with Illness

Effectiveness
Patient-centeredness

Not applicable: The guideline was not adapted from another source.

2005 Feb

American Academy of Pediatrics - Medical Specialty Society

American Academy of Pediatrics

Committee on Children With Disabilities

Primary Authors: Chris Plauché Johnson; Theodore A. Kastner

Committee on Children With Disabilities, 2004-2005: Paul H. Lipkin, MD, Chairperson; Joshua Alexander, MD; J. Daniel Cartwright, MD; Larry W. Desch, MD; John C. Duby, MD; Diane R. Edwards, MD; Ellen Roy Elias, MD; Chris Plauche´ Johnson, MD, MEd; Lawrence C. Kaplan, MD; Eric B. Levey, MD; Nancy A. Murphy, MD; Scott M. Myers, MD; Ann Henderson Tilton, MD; Adrian D. Sandler, MD, Immediate Past Chairperson; W. Carl Cooley, MD, Past Committee Member; Theodore A. Kastner, MD, MS, Past Committee Member; Marian E. Kummer, MD, Past Committee Member

Liaisons: Beverly Crider, Family Voices; Merle McPherson, MD, MPH, Maternal and Child Health Bureau; Donald Lollar, EdD, Centers for Disease Control and Prevention; Marshalyn Yeargin-Allsopp, MD, Centers for Disease Control and Prevention

Consultants: Colleen Horton, MPAff; Nancy Rosenau, PhD; Lesa R. Walker, MD, MPH

Staff: Stephanie Mucha, MPH

Not stated

This is the current release of the guideline.

American Academy of Pediatrics (AAP) Policies are reviewed every 3 years by the authoring body, at which time a recommendation is made that the policy be retired, revised, or reaffirmed without change. Until the Board of Directors approves a revision or reaffirmation, or retires a statement, the current policy remains in effect.

None available

None available

This NGC summary was completed by ECRI on February 23, 2005. The information was verified by the guideline developer on May 5, 2005.

This NGC summary is based on the original guideline, which is subject to the guideline developer's copyright restrictions. Please contact the Permissions Editor, American Academy of Pediatrics (AAP), 141 Northwest Point Blvd, Elk Grove Village, IL 60007.