Agency for Healthcare Research and Quality
540 Gaither Road
Rockville, MD 20850
Phone: 301–437–1364
Internet: www.ahrq.gov/ (AHRQ Main)
Healthcare Cost and Utilization Project (HCUP)
Internet: www.ahrq.gov/data/hcup/ (HCUP Main)
www.hcup-us.ahrq.gov/overview.jsp (HCUP Overview)
www.hcupnet.ahrq.gov/ (free online querying tool)
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1–800–232–3472
Phone: 1–800–DIABETES (342–2383) (national number that provides the most information)
Phone: 1–888–DIABETES (342–2383) (local number that provides referrals and other information)
Internet: www.diabetes.org
American Foundation for Urologic Disease
1128 North Charles Street
Baltimore, MD 21201
Phone: 1–800–242–2383 - Urologic Foundation Information Hotline
Phone: 410–468–1800
Fax: 410–468–1808
Email: admin@afud.org
Internet: www.afud.org
American Liver Foundation (ALF)
75 Maiden Lane, Suite 603
New York, NY 10038–4810
Phone: 1–800–465–4837
Phone: 1–888–443–7222
Phone: 973–256–2550
Fax: 973–256–3214
Email: info@liverfoundation.org
Internet: www.liverfoundation.org
American Society of Nephrology (ASN)
2025 M Street NW., Suite 800
Washington, DC 20036
Phone: 202–367–1190
Fax: 202–367–2190
Email: asn@dc.sba.com
Internet: www.asn-online.org
American Urological Association (AUA)
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 866–RING–AUA
Internet: www.auanet.org
www.urologyhealth.org
Celiac Sprue Association/USA, Inc.
P.O. Box 31700
Omaha, NE 68131–0700
Phone: 402–558–0600
Fax: 402–558–1347
Email: celiacs@csaceliacs.org
Internet: www.csaceliacs.org
Center for Medicare and Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244
Phone: 1–800–633–4227 (Medicare) - Patients
Phone: 410–786–3000 (Main Switchboard)
Internet: www.hcfa.gov
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, NE.
Mail Stop G37
Atlanta, GA 30333
Phone: 404–639–3311 (public inquiries)
Internet: www.cdc.gov
Hepatitis Foundation International (HFI)
30 Sunrise Terrace
Cedar Grove, NJ 07009–1423
Phone: 1–800–891–0707
Fax: 973–857–5044
Internet: www.hepfi.org
International Diabetes Federation (IDF)
1 Rue Defacqz
B-1000
Brussels, Belgium
Phone: 32–2/538–5511
Fax: 32–2/538–5114
Email: idf@idf.org
Internet: www.idf.org
Interstitial Cystitis Association (ICA)
51 Monroe Street, Suite 1402
Rockville, MD 20850
Phone: 1–800–HELP–ICA (435–7422)
Phone: 301–610–5300
Fax: 301–610–5308
Email: icamail@ichelp.org
Internet: www.ichelp.org
Intestinal Disease Foundation, Inc.
The Landmarks Building, Suite 525
One Station Square
Pittsburgh, PA 15219
Phone: 412–261–5888
Fax: 412–471–2722
Juvenile Diabetes Research Foundation (JDRF) International
120 Wall Street
New York, NY 10005–4001
Phone: 1–800–JDF–CURE (533–2873)
Phone: 212–785–9500
Fax: 212–785–9595
Email: info@jdfcure.org
Internet: www.jdf.org
Joslin Diabetes Center
1 Joslin Place
Boston, MA 02215
Phone: 617–732–2400
Internet: www.joslin.org
National Association for Continence (NAFC)
P.O. Box 8310
Spartanburg, SC 29305–8310
Phone: 1–800–BLADDER (252–3337)
Phone: 864–579–7900 (business office)
Fax: 864–579–7902
Internet: www.nafc.org
National Center for Health Statistics
Presidential Building, Room 1064
6525 Belcrest Road
Hyattsville, MD 20782–2003
Phone: 301–458–4636
Internet: www.cdc.gov/nchs
CDC Growth Charts: United States: www.cdc.gov/growthcharts
National Kidney Foundation (NKF)
30 East 33rd Street
New York, NY 10016
Phone: 1–800–622–9010
Phone: 212–889–2210
Fax: 212–689–9261
Email: info@kidney.org
Internet: www.kidney.org
Polycystic Kidney Disease Foundation
4901 Main Street, Suite 200
Kansas City, MO 64112
Phone: 1–800–PKD–CURE (753–2873)
Phone: 816–931–2600
Fax: 816–931–8655
Email: pkdcure@pkdcure.org
Internet: www.pkdcure.org
The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
Phone: 1–800–23–SIMON (237–4666)
Phone: 847–864–3913
Fax: 847–864–9758
Email: simoninfo@simonfoundation.org
Internet: www.simonfoundation.org
Transplant Recipient International Organization (TRIO)
1000 16th Street, NW., Suite 602
Washington, DC 20036–5705
Phone: 1–800–TRIO–386 (874–6386)
Phone: 202–293–0980
Fax: 202–296–0973
Email: trio@mindspring.com
Internet: www.trioweb.org
United Network for Organ Sharing (UNOS)
1100 Boulders Parkway, Suite 500
P.O. Box 13770
Richmond, VA 23225
Phone: 804–330–8500
Fax: 804–330–8507
Internet: www.unos.org
United States Renal Data System (USRDS) Coordinating Center
914 South 8th Street, Suite D206
Minneapolis, MN 55404
Phone: 1–888–99–USRDS (998–7737)
Phone: 612–347–7776
Fax: 612–347–5878
Internet: www.usrds.org