Seventh Annual Meeting of the Muscular Dystrophy Coordinating Committee
Washington Plaza Hotel 10 Thomas Circle, NW,
Washington, DC
June 23, 2008
2008 Meeting Themes: Therapy Development and Living with Muscular Dystrophy
7:30-8:00 Continental Breakfast
8:00-8:15 Welcome, Introductions, and Conflict of Interest Statement
Story Landis, National Institute of Neurological Disorders and Stroke (NINDS)
and John Porter, NINDS
8:15-8:40 Perspectives on Living with Muscular Dystrophy
Brian Denger, Duchenne parent
Todd Stone, myotonic dystrophy parent
8:40-9:10 New Scientific Opportunity—Therapy Development for Myotonic Dystrophy
Charles Thornton, University of Rochester
MDCC Member Action Plan Reports
9:10-9:30 NIH Overview and NINDS Report
John Porter, NINDS
9:30-9:50 Wellstone Centers Program and National Institute of Arthritis and Musculoskeletal
and Skin Diseases (NIAMS) Report
Glen Nuckolls, NIAMS
9:50-10:10 Break
10:10-10:30 Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Report
James Hanson, NICHD
10:30-10:50 National Heart Lung and Blood Institute (NHLBI) Report
Susan Shurin, NHLBI
10:50-11:10 Department of Defense (DoD) Report
Melissa Kaime, DoD
11:10-11:30 Centers for Disease Control and Prevention (CDC) Report
Mark Swanson, CDC
11:30-11:50 FSH Society Report
Daniel Perez, FSH Society
11:50-12:20 Lunch
12:20-12:40 Parent Project Muscular Dystrophy (PPMD) Report
Pat Furlong, PPMD
12:40-1:00 Muscular Dystrophy Association (MDA) Report
Paul Muhlrad, MDA
1:00-1:30 Open Discussion: Other Issues on the Action Plan for the Muscular Dystrophies
MDCC Partnering
1:30-1:50 MDCC Partnering Opportunity—Muscular Dystrophy Workforce Needs
Glen Nuckolls, NIAMS
1:50-2:20 MDCC Partnering Opportunity—Fields Center for FSHD and N-M Disease
Rabi Tawil, University of Rochester
2:20-2:50 MDCC Partnering Opportunity—Translational Research in Europe—Assessment
and Treatment of Neuromuscular Disease (TREAT-NMD) and the MRC Centre
for Neuromuscular Disease
Stephen Lynn, TREAT-NMD
2:50-3:10 Break
3:10-3:30 MDCC Partnering—Recent Successes and Exploiting Opportunities
John Porter, NINDS
3:30-3:50 Changes in NIH Disease Coding Procedures
Tim Hays, NIH
3:50-4:15 Public Comment Session
4:15 Adjourn
Last updated June 03, 2008