Dermatology and Genetics

Dermatology Groups and Organizations

• Patient Advocacy Groups, Coalition of Patient Advocates For Skin Disease Research (CPA-SDR), American Academy of Dermatology
• Dermatology Organizations, HealthWeb, Indiana University School of Medicine Library
• Skin and Connective Tissue Diseases, CliniWeb International, Oregon University (not active Nov. 2003)
• Skin Syndromes, the Doctors' Doctor (PShitabata, MD, pathologist)

Specific Conditions

• Albinism
• Alopecia Areata
• Ataxia
• Basal Cell Nevus Syndrome
• Cornelia de Lange Syndrome
• Dysautonomia
• Ectodermal Dysplasia
• Ehlers-Danlos Syndrome
• Epidermolysis Bullosa
• Ichthyosis
• Incontinentia Pigmenti
• Infantile systemic hyalinosis
• Klippel-Trenaunay
• Melanoma
• Neurofibromatosis
• Porphyria
• Pseudoxanthoma Elasticum (PXE)
• Psoriasis: Basic Facts About the Genetics of Psoriasis, American Academy of Dermatology
• Sturge-Weber Syndrome
• Tuberous Sclerosis
• Xeroderma Pigmentosum

Also See:

• National organizations information on genetic conditions or birth defects
• Information for Siblings and Family Members
• Camp Discovery (for children with skin conditions), American Academy of Dermatology
  

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

Revised December 30, 2003

   

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Genetics Education Center
University of Kansas Medical Center © 1995-2009
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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