Program
Objectives
|
Performance
Indicators
|
6.1 Comprehensive
system. Each state will have a computerized system that
maintains current information on hearing screening for every infant,
evaluation for all infants and children who do not pass the
screening, and interventions for every infant and child from birth
through 5 years of age with hearing loss.
|
a. Written
description of computerized system
b.
Printouts and reports of screening, evaluation, and intervention
data.
|
6.2 Policies and
procedures. Each
state will have written policies and procedures regarding operation
of the EHDI Tracking and Surveillance System.
|
a. Documentation of
policies and procedures manual.
|
6.3 Privacy and
confidentiality. Each
state will develop policies, procedures, and informed consent
requirements regarding privacy and confidentiality of data in the
EHDI Tracking and Surveillance System.
|
a. Documentation of
policy and procedures on informed consent requirements.
|
6.4 Include all
births. Each state will ensure that all live births in the state are
included in the state EHDI Tracking and Surveillance System by
matching with the states birth certificates registry as allowed by
state policy.
|
a. Number of
live-born infants.
b. Documentation of Number and percent of matches with vital
records.
c. Number and percent of infants lost to follow-up.
|
6.5 Risk factors
for hearing loss. The state EHDI Tracking and Surveillance
System will ascertain risk factors for hearing loss for every infant
by linkage with other state data systems, such as hospital records,
birth certificates, birth defects, metabolic screening,
immunizations, etc.
|
a. Number and
percent of infants with risk factors.
b.
Number and type of risk factors for each infant.
|
6.6 Newborn
hearing screening results.
The state EHDI Tracking and Surveillance System will capture
all hearing screening results at birthing hospital within a week
after discharge or transfer.
|
a. Report on number
and percent of infants screened that includes results for each ear,
technology used, and age at screening.
|
6.7 Reporting
mechanism for health care providers.
Each state will provide a mechanism for hospitals,
audiologists and other health care providers to report hearing
screening results, evaluations and interventions.
|
a. Number of health
care providers that have protocols for reporting hearing screening
results, evaluations and interventions.
b.
Number of health care providers reporting hearing screening results
to the state.
|
6.8 Identifying
children who need screening and follow-up.
The state EHDI Tracking and Surveillance System will be able
to identify, on a [weekly] basis, all infants and children who need
initial hearing screening, repeat testing, evaluation, follow-up, or
intervention.
|
a.
Number and percent of infants and children needing follow-up
who:
-were referred for second screening
-missed screening
- need a repeat screening
-were referred for diagnostics
- were referred for early intervention
b. Number and percent of infants and children who received
follow-up.
|
6.9 Access to
information. The
state EHDI Tracking and Surveillance System will allow case managers
and authorized health care providers to access relevant information
about infants and children.
|
a. Written plan to
allow case managers and authorized health-care providers to access
relevant information.
|