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Early Hearing Detection & Intervention (EHDI) Program |
Research Projects
Program
Evaluation In addition
to supporting the implementation of state-based tracking and surveillance
systems, CDC EHDI actively supports research efforts to:
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Use information gained through EHDI
programs to identify causes of hearing loss
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Determine long-term outcomes of early
identification and related family issues
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Asses the effectiveness and cost of EHDI
programs
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Collect information on
referral rates from EHDI programs
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Increase physician awareness and
involvement
New
Small Business Innovation Research (SBIR) Announcement for Research: New
Technology to Screen for Mild Hearing Loss in Children (SBIR [R43/R44]).
This SBIR is being cosponsored by the National Institute on Deafness and
Other Communication Disorders (NIDCD) at the
National Institutes of Health (NIH) and the National Center on Birth
Defects and Developmental
Disabilities (NCBDDD) at the Centers for Disease Control and Prevention
(CDC)
This SBIR announcement was
released/posted on September 8, 2006. The earliest date an
application may be submitted to Grants.gov (e.g., opening date) is
November 1, 2006.
Integration Early Hearing Detection and Intervention and Newborn
Screening Programs: Develop ways of
integrating Early Hearing Detection and Intervention (EHDI) with the NBS
program and to do prospective follow‑up of cohorts of newborns who
are deaf or hard of hearing, hemoglobinopathies, phenylketonuria, and other
disorders identified through NBS.
Etiology of Hearing Loss:
Evaluate all infants with a unilateral or
bilateral hearing loss of any degree (mild to profound) in an attempt to
determine the causes.
Cost of Early Hearing Detection and Intervention
(EHDI) Programs: Determine the economic costs associated with EHDI programs
and to assess the impact of screening and diagnostic procedures on parents
and families.
Efficacy of Otoacoustic Emissions/Automated
Auditory Brainstem Response Protocol in Identifying Hearing Loss: Investigate the efficacy of the OAE/AABR screening protocol in
identifying hearing loss.
Efficacy of Early Identification of and Intervention for Congenital
Hearing Loss: Investigate the
effectiveness of early identification and intervention of infants and
children with hearing loss in terms of their long-term communication,
cognitive, and social outcomes.
Psychological and Family Issues Project:
Assess the psychoemotional impact of false
positive hearing screening results on families, including the potential for
vulnerable child syndrome.
Assessment of Loss to Follow-Up:
Identify factors or barriers responsible for loss to follow-up in EHDI programs and
develop successful and innovative strategies that will reduce loss to
follow-up.
AAP Champion Project: Increase the awareness and involvement
of physicians with EHDI programs, strengthen state policy related to EHDI, and
engage other medical organizations in improving EHDI
programs at the national and state levels.
[Return to Top] Program
Evaluation
Family Satisfaction Evaluation Project
Background: Parent satisfaction is
essential to the success of a state Early Hearing Detection and
Intervention (EHDI) program - a program designed to serve the needs of
families with infants and young children who have hearing loss. Currently,
there is no widely used survey instrument designed to collect data on
parent satisfaction with a state EHDI program. Such a tool would allow for
more complete evaluation of a state EHDI program and enhance the ability of
the state to modify its program as needed based on user satisfaction.
Purpose: The purpose of this project is two fold: 1) to design
survey instruments that can be piloted for program evaluation in two
states, Colorado and Massachusetts,
and 2) to evaluate parent satisfaction within these two state EHDI
programs.
Design: Three instruments were developed to gather data from
parents.
Survey 1 is designed to gather information
from parents of infants who passed their initial newborn hearing screening
at the birth hospital. (Survey
1English (PDF) and Survey 1
Spanish (PDF))
Survey II is designed for parents of infants
who passed their newborn hearing screening after they went home from the
hospital. (Survey 2 English
(PDF) and Survey 2 Spanish
(PDF))
Survey III is designed for parents with
young children diagnosed with hearing loss.
These surveys are being used to evaluate parent satisfaction with the EHDI
programs in Colorado and Massachusetts. (Survey
3 English (PDF) and Survey
3 Spanish (PDF))
Sorry, we can't give you medical advice.
Please talk with your doctor for questions about yourself or your family.
For other information, please contact
ehdi@cdc.gov
[Return
to Top]
Date:
October 27, 2006
Content source: National Center on Birth Defects and Developmental
Disabilities
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