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Health-Related Quality of Life

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Contents
Methods and Measures
Findings
Prevalence Data
State and Community Health Profiles
Validity Studies
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Measurement properties: validity, reliability, and responsiveness


Published Studies

A list of references for published validity, reliability and responsiveness studies.
   

Published Studies

Validity
The degree to which an instrument measures what it is supposed to measure. (Scientific Advisory Committee of the Medical Outcomes Trust; Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 2002;11:193–205).

Barger SD, Burke SM, Limbert MJ. Do Induced Moods Really Influence Health Perceptions? Health Psychol 2007;26(1):85–95.  abstract

Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M; PROMIS Cooperative Group. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care 2007;45(5 Suppl 1):S3-S11. abstract  See also Valderas JM, Alonso J. Comment in: Med Care 2007;45(10):1008; author reply 1008.

Lavallee LF, Hatch PM, Michalos AC, McKinley T. Development of the Contentment with Life Assessment Scale (CLAS): using daily life experiences to verify levels of self-reported life satisfaction. Social Indicators Research 2007;83(2):201–244. See  http://www.springerlink.com/content/d164714656400l66/

Sullivan G, Craske MG, Sherbourne C, Edlund MJ, Rose RD, Golinelli D, Chavira DA, Bystritsky A, Stein MB, Roy-Byrne PP. Design of the Coordinated Anxiety Learning and Management (CALM) study: innovations in collaborative care for anxiety disorders. Gen Hosp Psychiatry 2007;29(5):379-387.  abstract

Mielenz T, Jackson E, Currey S, Robert DeVellis R, F Callahan LF. Psychometric properties of the Centers for Disease Control and Prevention Health-Related Quality of Life (CDC HRQOL) items in adults with arthritis. Health Qual Life Outcomes 2006 Sep 24;4:66. Published online 2006 September 24. doi: 10.1186/1477–7525–4–66. abstract  html  pdf (244K)

Mucci LA, Wood PA, Cohen B, Clements KM, Brawarsky P, Brooks DR. Validity of self-reported health plan information in a population-based health survey. J Publ Health Management & Pract 2006;12(6):570-577.  abstract

Toet J, Raat H, van Ameijden EJC. Validation of the Dutch version of the CDC core healthy days measures in a community sample. Qual Life Res 2006;15(1):179–184.  abstract

Linden W, Yi D, Barroetavena MC, MacKenzie R, Doll R. Development and validation of a psychosocial screening instrument for cancer. Health and Quality of Life Outcomes 2005;3:54.  abstract  html  pdf (245K)

Zullig KJ, Valois RF, Drane JW. Adolescent distinctions between quality of life and self-rated health in quality of life research. Health Qual Life Outcomes 2005;3(64):1–9.  abstract  html  pdf (280K)

Zullig KJ, Valois RF, Huebner ES, Drane JW. Adolescent health-related quality of life and perceived satisfaction with life. Qual Life Res 2005;14(6) :1573–1584.  abstract 

Clark MS, Bond MJ, Prior KN, Cotton AC. Measuring disability with parsimony: evidence for the utility of a single item. Disabil Rehabil 2004;26(5):272–279.  abstract

Jia H, Muennig P, Lubetkin EI, Gold MR. Predicting geographic variations in behavioral risk factors; an analysis of physical and mental healthy days. J Epidemiol Community Health 2004;58(2):150–155. abstract  See http://jech.bmj.com/cgi/content/full/58/2/150.*

Zullig KJ, Valois RF, Huebner ES, Drane JW. Evaluating the performance of the Centers for Disease Control and Prevention core health-related quality of life scale with adolescents. Public Health Rep 2004;119(6):577–584.  abstract  html  pdf (106K)

Currey SS, Rao JK, Winfield JB, Callahan LF. Performance of a generic health-related quality of life measure in a clinic population with rheumatic disease. Arthritis Care and Research 2003;49(5):658–664.  abstract

Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention’s healthy days measures—population tracking of perceived physical and mental health over time. Health Qual Life Outcomes 2003;1(37)1–8.  abstract  html  pdf (295K)

Dominick KL, Ahern FM, Gold CH, Heller DA. Relationship of health-related quality of life to health care utilization and mortality among older adults. Aging Clin Exp Res 2002;14(6):499–508.  abstract

Ôunpuu S, Chambers LW, Patterson C, Chan D, Yusuf S. Validity of the United States Behavioral Risk Factor Surveillance System's health-related quality of life survey tool in a group of older Canadians. Chronic Diseases in Canada 2001;22(3–4):93–101.  abstract html*

Andresen EM, Fitch CA, McLendon PM, Meyers AR. Reliability and validity of disability questions for US Census 2000. American Journal of Public Health 2000;90(8):1297–1299.  abstract  pdf (65K)

Andresen EM, Meyers AR. Health-related quality of life outcomes measures. Archives of Physical Medicine & Rehabilitation 2000;81(12 Suppl 2):S30–45.  abstract

Ôunpuu S, Kreuger P, Vermeulen M, Chambers L. Using the U.S. Behavioral Risk Factor Surveillance System's health related quality of life survey tool in a Canadian city. Canadian Journal of Public Health 2000;91(1):67–72.  abstract

Andresen EM, Fouts BS, Romeis JC, Brownson CA. Performance of health-related quality of life instruments in a spinal cord injured population. Archives of Physical Medicine and Rehabilitation 1999;80:877–884.  abstract

Moriarty D, Zack M. Validation of the Centers for Disease Control and Prevention's Healthy Days measures (abstract). Quality of Life Research, Abstracts Issue, 6th Annual Conference of the International Society for Quality of Life Research, Barcelona, Spain, 1999;8(7):617.

Verbrugge LM, Merrill SS, Liu X. Measuring disability with parsimony. Disability and Rehabilitation 1999;21(5–6):295–306. abstract

Moum TA. Mode of administration and response style effects in self-reported health and health behavior: An experimental broad-population study. Paper presented at the National Conference on Sociology, Longyearbyen, Spitsbergen, Norway; June 18–20, 1998. University of Oslo 1998:1-14.

Newschaffer CJ. Validation of Behavioral Risk Factor Surveillance System (BRFSS) HRQOL measures in a statewide sample. Atlanta: U.S. Department of Health and Human Services, Public Health Service, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, 1998.  abstract

Schechter S, Beatty P, Willis, GB. Asking survey respondents about health status: judgment and response issues in Cognition, aging, and self-reports. Psychology Press, Philadelphia, PA, 1998; Chapter 13:265–283.

Wilson BF, Benais S, Whitaker K, Beatty P, Hendershot G. Improving the feasibility of including deaf respondents in telephone surveys. National Center for Health Statistics, Proceedings of the Survey Research Methods Section, American Statistical Association 1998: 883–887.  pdf* (461K)

Beatty P, Schechter S, Whitaker K. Evaluating subjective health questions: cognitive and methodological investigations 1996 Proceedings of the American Statistical Association, Section on Survey Research Methods.

Diwan S. Unmet health needs and the quality of life of the elderly: development of a survey for states and communities (technical report). Atlanta: GA. Centers for Disease Control and Prevention, 1994.

Hennessy CH, Moriarty DG, Zack MM, Scherr PA, Brackbill R. Measuring health-related quality of life for public health surveillance. Public Health Rep 1994;109(5):665–672.  abstract  html  pdf (1400K)

Siegel PZ. Self-reported health status: Public health surveillance and small-area analysis, In: Schechter S (ed.), Proceedings of the 1993 NCHS Conference on the Cognitive Aspects of Self-Reported Health Status. Cognitive Methods Staff Working Paper Series (No. 10). Hyattsville, Maryland: US Department of Health and Human Services, Public Health Service, National Center for Health Statistics, 1994:11–27.

Reliability
The degree to which an instrument can produce consistent results, and consistent results on different occasions, when there is no evidence of change. (Bowling A. Measuring Disease 2001; 2nd Edition. UK: Open University Press p. 20).

Andresen EM, Catlin TK, Wyrwich KW, Jackson-Thompson J. Retest reliability of surveillance questions on health related quality of life. J Epidemiol Community Health 2003;57(5):339–343.  abstract  See http://jech.bmj.com/cgi/content/full/57/5/339.*

Andresen EM, Vahle VJ, Lollar D. Proxy reliability: Health-related quality of life (HRQOL) measures for people with disability. Quality of Life Research 2001;10:609–619.  abstract

Responsiveness
An instrument's ability to detect change over time. (Scientific Advisory Committee of the Medical Outcomes Trust; Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research 2002;11:193–205).

Keller HH, Ostbye T, Goy R. Nutritional risk predicts quality of life in elderly community-living Canadians. J Geront—Biol and Med Sci 2004;59(1):68–74.  abstract

Albert SM. Change in BRFSS health status/HRQOL measures predicts volume of medical use: Results from the Harlem Men's Health Cohort (presentation abstract). 17th Annual Behavioral Risk Factor Surveillance System Conference, Memphis, TN (Mar 2000).





 





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This page last reviewed March 05, 2008

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