Alliance for Aging Research2021 K Street, N.W.
Suite 305
Washington,
DC
20006
Tel: 202-293-2856
Fax: 202-785-8574
EMail:
info@agingresearch.orghttp://www.agingresearch.orgDescription: Independent, not-for-profit citizen advocacy organization that works to promote medical research into human aging and to improve
the health and independence of older Americans through public and private research.
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American Cancer SocietyNational Home Office
250 Williams Street, NW
Atlanta,
GA
30303-1002
Tel: 800-ACS-2345 (227-2345)
http://www.cancer.orgDescription: Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing
cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
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Brave Kids [For Children With Special Needs]151 Sawgrass Corners Drive
Suite 204J
Ponte Vedra Beach,
FL
32082
Tel: 800-568-1008
904-280-1895
Fax: 904-280-1897
EMail:
info@bravekids.orghttp://www.bravekids.orgDescription: Non-profit organization that serves the needs of children with chronic and life-threatening illnesses. Provides a comprehensive
directory of healthcare specialists and relevant medical information from healthcare professionals. Sponsors a community
chat room, interactive contests, and an online store for children with special needs.
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Cancer Care275 Seventh Avenue
New York,
NY
10001
Tel: Business: 212-712-8400
Services: 800-813-HOPE (-4673)
212-712-8080
Fax: 212-712-8495
EMail:
info@cancercare.orghttp://www.cancercare.orgDescription: Provides free professional counseling, educational programs, financial assistance and practical help to people with cancer,
their loved ones, and the bereaved across the country.
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Children's Craniofacial Association13140 Coit Road
Suite 307
Dallas,
TX
75240
Tel: 800-535-3643
214-570-9099
Fax: 214-570-8811
http://www.ccakids.comDescription: Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
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Children's Neurobiological Solutions (CNS) Foundation1726 Franceschi Road
Santa Barbara,
CA
93101
Tel: 866-CNS-5580 (267-5580)
805-898-4442
EMail:
info@cnsfoundation.orghttp://www.cnsfoundation.orgDescription: National, non-profit organization whose mission is to accelerate the development of brain repair therapies and cures by supporting
cutting-edge collaborative research on brain damage due to childhood illness, injury, or any other cause. Provides information
and resources for families and health care providers.
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Compassionate FriendsP.O. Box 3696
Oak Brook,
IL
60522-3696
Tel: 630-990-0010
877-969-0010
Fax: 630-990-0246
EMail:
nationaloffice@compassionatefriends.orghttp://www.compassionatefriends.orgDescription: National, independent, non-profit, self-help support organization offering friendship and understanding to families grieving
the death of a child of any age, from any cause. There are no membership fees or dues, and bereaved family members are welcome.
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Dana Foundation745 Fifth Avenue
Suite 900
New York,
NY
10151
Tel: 212-223-4040
Fax: 212-593-7623
EMail:
danainfo@dana.orghttp://www.dana.orgDescription: Non-profit organization of more than 200 pre-eminent scientists dedicated to advancing education about the progress and promise
of brain research.
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Friend's Health ConnectionP.O. Box 114
New Brunswick,
NJ
08903
Tel: 732-418-1811
800-483-7436
Fax: 732-249-9897
EMail:
info@friendshealthconnection.orghttp://www.friendshealthconnection.orgDescription: Non-profit support network that connects people with similar health problems and helps individuals cope with illness through
the power of friendship.
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Genetic Alliance4301 Connecticut Avenue, N.W.
Suite 404
Washington,
DC
20008-2369
Tel: 202-966-5557
800 336-GENE (4363)
Fax: 202-966-8553
EMail:
info@geneticalliance.orghttp://www.geneticalliance.orgDescription: International coalition representing 600 consumer and professional organizations. Supports individuals and families with
genetic conditions; educates the public; and advocates for consumer-informed public policies.
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Health Resources and Services Administration (HRSA)
Information CenterU.S. Department of Health and Human Services
Parklawn Bldg., 5600 Fishers Lane
Rockville,
MD
20857
Tel: 888-Ask-HRSA (275-4772)
EMail:
ask@hrsa.govhttp://www.ask.hrsa.gov
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Human Growth Foundation997 Glen Cove Avenue
Suite 5
Glen Head,
NY
11545
Tel: 800-451-6434
Fax: 516-671-4055
EMail:
hgf1@hgfound.orghttp://www.hgfound.orgDescription: Voluntary, non-profit organization dedicated to helping medical science better understand the process of growth.
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International RadioSurgery Association3002 N. Second Street
Harrisburg,
PA
17110
Tel: 717-260-9808
Fax: 717-260-9809
EMail:
office1@irsa.orghttp://www.irsa.orgDescription: Proactive patient organization providing information and referrals on Gamma Knife, Linac, and particle beam radiosurgery for
brain tumors, arteriovenous malformations (AVMs), and neurological pain and movement disorders.
78
National Council on Patient Information and Education4915 St. Elmo Avenue
Suite 505
Bethesda,
MD
20814-6082
Tel: 301-656-8565
Fax: 301-656-4464
EMail:
ncpie@ncpie.infohttp://www.talkaboutrx.orgDescription: Coalition of nearly 150 organizations committed to safer, more effective medicine use through better communication. Additional
website is www.bemedwise.org.
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National Health Council1730 M Street, NW
Suite 500
Washington,
DC
20036-3910
Tel: 202-785-3910
Fax: 202-785-5923
EMail:
info@nhcouncil.orghttp://www.nationalhealthcouncil.orgDescription: Association of voluntary health agencies, businesses, and not-for-profit organizations. Sponsors awareness campaigns to promote
the health of all people and to advance medical research and the voluntary health movement.
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National Organization for Rare Disorders (NORD)P.O. Box 1968
(55 Kenosia Avenue)
Danbury,
CT
06813-1968
Tel: 203-744-0100
Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
EMail:
orphan@rarediseases.orghttp://www.rarediseases.orgDescription: Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations
that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy,
research, and service.
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National Vaccine Information Center204 Mill Street
Suite B1
Vienna,
VA
22180
Tel: 703-938-DPT3 (3783)
Fax: 703-938-5768
http://www.nvic.orgDescription: Non-profit organization dedicated to the prevention of vaccine injuries and deaths through public education and advocacy programs.
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Research!America1101 King Street
Suite 520
Alexandria,
VA
22314-2960
Tel: 703-739-2577
800-FON-CURE (366-2873)
Fax: 703-739-2372
EMail:
info@researchamerica.orghttp://www.researchamerica.orgDescription: Research!America builds active public support for more public and private research to find treatments, cures, and prevention
for both physical and mental disease and disorders.
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WE MOVE (Worldwide Education & Awareness for Movement Disorders)204 West 84th Street
New York,
NY
10024
Tel: 212-875-8312
Fax: 212-875-8389
EMail:
wemove@wemove.orghttp://www.wemove.orgDescription: WE MOVE provides movement disorder information and educational materials to physicians, patients, the media, and the public.
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