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Canavan Research Illinois
'A Family's Fight For the Cure' "On March 6th 1998, we were given the news that no parent ever wants to hear... our son, Max Randell, was diagnosed with Canavan disease." Our beautiful 4½ month old baby boy was dying of Canavan disease, a degenerative brain disease for which there was no cure or treatment. At that point we decided to fight for our dear little Max and all the other children with Canavan disease. We soon learned that there was one chance in the world for our son... experimental research pioneered by parents determined to keep their children and hope alive. Our family joined forces with other families affected by Canavan disease in the hopes that no parent would ever have to hear those words again. We founded Canavan Research Illinois, a public charity, based in Illinois, dedicated to curing Canavan disease. Ilyce & Michael Randell, co-founders
2004 - 'Make A Difference Day Award Winner'
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In the News:
Our dedication
to these precious children has been recognized by:
October again was proclaimed 'Canavan Disease Awareness
Month' in honor of the '10th Annual Canavan Charity Ball'
and
Max's 11th Birthday!
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Dedicated to Curing Canavan Disease - Canavan Research Illinois - Home Page |