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About the NMF

The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.

Together with our National Volunteer Network, including Chapters, Support Groups and other local contacts, we disseminate accurate information, provide support and foster research.

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For the fourth consecutive year, The National Marfan Foundation has received a 4-star rating from Charity Navigator, America's largest independent evaluator of charities. Click on the logo to review our
four star rating.
The National Marfan Foundation

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News From The National Marfan Foundation

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08.21.08 FoxNews.com posted an important article about Marfan syndrome awareness and Michael Phelps on its website today

07.22.08 The NMF Mourns the Loss of Dr. Victor McKusick

06.09.08 Children’s Hospital Boston and Brigham and Women’s Hospital to Host 24th Annual National Marfan Foundation Conference, July 10-13, 2008

05.08.08 Old Drug Offers New Hope, segment on National Public Radio

04.30.08 Heartworks Gala Raises $1 Million for NMF Programs

 

Spotlight



The NMF Mourns the Loss of Dr. Victor McKusick
 
 

ATENOLOL
VS.
LOSARTAN
CLINICAL TRIAL


Click here for Clinical Trial information  
 
Click here to sign up for the GenTAC Registry
 


Marfan Syndrome A-Z Children’s picture book now available. Click here.
 
WELCOME SCHOOL NURSES
 
 
Teen Web Page
 
More Details
(updated August 2008!)
 
Buy Mo on DVD Now!
 
More Details
 
"Heart of the Matter"
Fact Sheet Series

 

More Details


Today Show Segment

Understanding Marfan syndrome
Understanding
Marfan syndrome
 

NEW! "have heart" bear
now available

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Learn About Upcoming Conferences And Events

Conference & Gala

Local Meetings & Events

 

Save the Date for Conference 2009 at the Mayo Clinic, Rochester, Minnesota

heartworks_logo

HeARTworks 2008 Recap


 
Click here for more information about this inaugural event!

View the Marfan Memorial Quilt and find out how to submit your own memorial block
More Details

 

 
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