HomePolicy & Ethics Online Bioethics Resources

Online Bioethics Resources

	National Human Genome Research Institute (NHGRI)
	National Institutes of Health (NIH)
	U.S. Department of Health and Human Services (DHHS)
	U.S. Department of Energy (DOE)
	Other Resources

National Human Genome Research Institute (NHGRI)

• Ethical, Legal and Social Implications Program
• Ethical, Legal and Social Implications Program Reports
• Social and Behavioral Research Branch

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National Institutes of Health (NIH)

• Department of Clinical Bioethics [bioethics.nih.gov]
• Bioethics Consultation Service [bioethics.nih.gov]
• Office for Human Research Protections (OHRP) [hhs.gov]
• Office of Human Subjects Research [ohsr.od.nih.gov]
• Bioethics Resources on the Web [nih.gov]
• Bioethics Information Resources [nlm.nih.gov]
• NIEHS Environmental Genome Project ELSI Homepage [niehs.nih.gov]

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U.S. Department of Health and Human Services (DHHS)

• Office of Research Integrity [ori.hhs.gov]
• Secretary's Advisory Committee on Genetics, Health and Society [od.nih.gov]

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U.S. Department of Energy (DOE)

• Ethical, Legal and Social Issues [ornl.gov]
• Genetics, Privacy and Legislation [ornl.gov]
• Minorities, Race and Genomics [ornl.gov]
• Gene Testing [ornl.gov]
• Gene Therapy [ornl.gov]
• Behavioral Genetics [ornl.gov]
• Genetically Modified Foods and Organisms [ornl.gov]
• Genetics and Patenting [ornl.gov]
• DNA Forensics [ornl.gov]
• Genetics in the Courtroom [ornl.gov]
• Cloning [ornl.gov]
• Ethical, Legal, and Social Issues Research [ornl.gov]

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Other Resources

• American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
  pediatrics.aappublications.org/cgi/content/full/107/6/1451
  Recommendations on newborn screening and genetic testing in children
  
  
• bioethics.net
  www.bioethics.net/genetics/genetics.php
  Links to articles on bioethics and genetics
  
  
• Bioethics Resources on the Web
  www.nih.gov/sigs/bioethics/
  Links to bioethics resources
  
  
• Bioetchics International Calendar
  www2.umdnj.edu/ethicweb/upcome.htm
  Hosted by Robert Wood Johnson Medical School
  
  
• CDC Genomics and Disease Prevention
  http://www.cdc.gov/genomics/population/rep_policy.htm
  Publications: Ethical, legal, and social implications
  
  
• Centers for Disease Control: Genomics and Disease Prevention Information System
  www2a.cdc.gov/genomics/GDPQueryTool/frmQueryBasicPage.asp
  Provides access to information and resources for guiding public health research, policy, and practice on using genetic information to improve health and prevent disease; includes core competencies for public health genetics
  
  
• The Council for Responsible Genetics
  www.gene-watch.org/
  Information on the social, ethical and environmental implications of genetic technologies
  
  
• DNA Patent Database
  dnapatents.georgetown.edu/
  Searchable database of U.S. DNA-based patents issued by the USPTO
  
  
• Ethical, Legal & Social Issues
  www.ornl.gov/hgmis/elsi/elsi.html and
  www.genome.gov/10001618
  Information, articles and links on a wide range of issues
  
  
• Ethics in Medicine
  depts.washington.edu/bioethx/
  An electronic resource at the University of Washington School of Medicine
  
  
• Genetics & Ethics
  www.genethics.ca/index.html
  Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
  
  
• Genetics and Public Policy Center
  www.dnapolicy.org
  Information on genetic technologies and genetic policies for the public, media and policymakers
  
  
• Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
  www.sph.umich.edu/genpolicy/
  Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
  
  
• Georgetown University: National Information Resource on Ethics & Human Genetics
  www.georgetown.edu/research/nrcbl/nirehg/index.htm
  Search engine for literature on specific issues
  
  
• HumGen
  www.humgen.umontreal.ca/en/
  Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
  
  
• National Bioethics Advisory Commission (NBAC)
  bioethics.georgetown.edu/nbac/
  The Charter of the National Bioethics Advisory Commission expired on October 3, 2001, but this is their archived Web site
  
  
• National Information Resource on Ethics & Human Genetics, Kennedy Institute of Ethics
  www.georgetown.edu/research/nrcbl/nirehg/index.htm
  The NIREHG, funded by the NHGRI and National Institutes of Health, supports information services - for example, bibliographic databases searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics
  
  
• National Reference Center for Bioethics Literature
  www.georgetown.edu/research/nrcbl/nrc/
  At Georgetown University
  
  
• National Workrights Institute
  www.workrights.org
  A non-profit organization that works to protect the rights of employees in the workplace, including genetic testing of employees.
  
  
• NCSL - Genetic Technologies Project
  www.ncsl.org/programs/health/genetics.htm
  Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
  
  
• Online Search of Genetics & Ethics Database
  www.georgetown.edu/research/nrcbl/databases/index.htm
  Part of the NIREHG, this site lists databases on the Web
  
  
• The President's Council on Bioethics
  www.bioethics.gov/
  Information on current bioethical issues
  
  
• Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
  www.georgetown.edu/research/nrcbl/nirehg/scope.htm
  Information on various aspects of genetics and ethics
  
  
• Teaching Research Ethics
  poynter.indiana.edu/tre/
  A workshop at Indiana University
  
  
• THOMAS Legislative Information on the Internet
  thomas.loc.gov/
  Searchable database of U.S. legislation
  
  
• Your Genes Your Choices
  ehrweb.aaas.org/ehr/books/index.html
  Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project

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Last Updated: August 18, 2008