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Data Management and Coordinating Center (DMCC) for the Rare Diseases Clinical Research Network (U54)
Release Date: February 8, 2008
Announcement Number: RFA-OD-08-002
Application Receipt Date:
April 22, 2008
Letter of Intent Date: March 22, 2008
Funding Contact: Randall Stewart, Ph.D.
Program Area: Neurogenetics
Brief Description:
The NIH ORD and NINDS invite new and renewal cooperative agreement applications to continue the Data Management and Coordinating
Center for the Rare Diseases Clinical Research Network (RDCRN). The Network has two main components: Rare Diseases Clinical
Research Consortia (RDCRCs) and a Data Management and Coordinating Center (DMCC) (formerly known as Data Technology Coordinating
Center, DTCC). The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement
applications for the DMCC, which supports the RDCRN. A separate FOA has been published to invite new and renewal cooperative
agreement applications for RDCRCs at http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-001.html. The purpose of the Network
is to facilitate clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases,
including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I , II and II/III trials;
2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects; 4) a test bed for distributed
clinical data management that incorporates novel approaches and technologies for data management, data mining, and data sharing
across rare diseases, data types, and platforms; and 5) access to information related to rare diseases for basic and clinical
researchers, academic and practicing physicians, patients, and the lay public. The DMCC (U54) cooperative agreement application
will focus on issues relevant to item 4) and 5).
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