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The workshop brought together researchers and clinicians from around the country who have developed, or are in the process of developing, family history data collection tools and assessment methods for use in clinical practice, public health, and research. The purpose of the workshop was to share strategies for collecting and using family history data, discuss the challenges of tool development and lessons learned, and develop collaboration on research and evaluation projects that will lead to the adoption of evidence-based practices.
The workshop included 16 presentations that focused on topics such as familial risk assessment, personalizing prevention strategies, collecting population-based family history data, and incorporating family history into health systems. Each of these presentations is included here as a Flash file. In addition, there were three breakout sessions to initiate working groups that will:
- establish a process for developing evidenced-based methods for familial risk stratification and risk assessment,
- establish a process for reviewing the health impact of family history strategies and translating evidence to policy and practice, and
- develop standard family history questions and modules for collecting data from national, state, and community health surveys.
Summaries of the break-out sessions and abstracts from the poster session are included here as well.
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