Chiari Malformation Organizations

March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY   10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203	National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
Spina Bifida Association of America 4590 MacArthur Blvd. NW Suite 250 Washington, DC   20007-4266 sbaa@sbaa.org http://www.spinabifidaassociation.org Tel: 202-944-3285 800-621-3141 Fax: 202-944-3295	American Syringomyelia Alliance Project (ASAP) P.O. Box 1586 Longview, TX   75606-1586 info@asap.org http://www.asap.org Tel: 903-236-7079 800-ASAP-282 (272-7282) Fax: 903-757-7456