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When Your Parent Has Cancer: A Guide for Teens
    Posted: 04/05/2006



This Booklet Is For You






You've Just Learned That Your Parent Has Cancer






Learning About Cancer






Cancer Treatment






What Your Parent May Be Feeling






Changes in Your Family






Taking Care of Yourself






Finding Support






You and Your Friends






How You Can Help Your Parent






After Treatment






The Road Ahead






Learning More on Your Own






Appendix A: Monitoring Tests






Appendix B: Cancer Team Members






Acknowledgments



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Cancer Treatment

How Does Treatment Work?
What Are Treatment Side Effects?
Treatment Chart
Things To Look For
The Waiting
Who Can Answer My Other Questions?
Want To Visit?

"Seeing my dad in pain was the worst. One day I just told him how bad I felt for him. He said that he actually looked a lot worse than he felt. I know he's having a hard time, but knowing he doesn't hurt as much as I thought he did made me feel a lot better."
- Ashley, age 15

Many teens want to know what to expect during their parent's cancer treatment. This chapter briefly explains different treatments, how they work, and their side effects. You will probably have more questions after reading this chapter. It may help to talk with your parents or ask if you can talk with a nurse or social worker.

How Does Treatment Work?

Cancer treatment aims to get rid of cancer cells. The type of treatment your parent will be given depends on:

  • The type of cancer
  • Whether the cancer has spread
  • Your parent's age and general health
  • Your parent's medical history
  • Whether the cancer is newly diagnosed or has recurred.

Remember that there are more than 100 different types of cancer. Each type is treated differently.

Treatment follows a protocol, which is a treatment plan. But even if two people have the same type of cancer and the same treatment plan, it may not work the same way for both of them. This is because people's bodies can react differently to treatment.

What Are Treatment Side Effects?

Side effects happen because the cancer treatment targets fast-growing cells. Cancer cells are fast-growing, but so are normal cells like the ones in the digestive tract and hair, for example. The treatment can't tell the difference between fast-growing normal cells and fast-growing cancer cells. That's why people sometimes get sick to their stomach and lose their hair when they have chemotherapy (one type of cancer treatment).

Some side effects, like feeling sick to the stomach, go away shortly after treatment, while others, like feeling tired, may last for a while after treatment has ended.

Write down what treatment your mom or dad will get:














Use the chart below to find out more about different types of cancer treatment.

TREATMENT CHART

This chart describes six types of cancer treatment, how they're done, and some side effects. Your parent may get one or more of these treatments. Depending on the exact treatment, he or she may visit the doctor during the day, or stay overnight in the hospital.

Treatment What is it? How is it done? What may happen as a result? (side effects)
Surgery
Also called an operation
The removal of all or part of a solid tumor A surgeon operates to remove the cancer. Drugs are used so that the patient is asleep during surgery.
  • Pain after the surgery
  • Feeling tired
  • Other side effects, depending on the area of the body and the extent of the operation.
Radiation therapy
Also called radiotherapy
The use of high-energy rays or high-energy particles to kill cancer cells and shrink tumors Radiation may come from a machine outside the body or from radioactive material placed in the body near the cancer cells.
  • Feeling tired
  • Red or blistered skin
  • Other side effects, depending on the area of the body and the dose of radiation.
Chemotherapy
Also called chemo
The use of medicine to destroy cancer cells The medicine can be given as a pill, an injection (shot), or through an intravenous (IV) line. It is often given in cycles that alternate between treatment and rest periods.
  • Feeling sick to the stomach or throwing up
  • Loose bowel movements or not being able to go to the bathroom
  • Hair loss
  • Feeling very tired
  • Mouth sores
  • A feeling of numbness, tingling, or burning in the hands and feet.
Stem cell transplantation
Can be a bone marrow transplantation (BMT) or a peripheral blood stem cell transplantation (PBSCT)
The use of stem cells found in either the bone marrow or the blood. This repairs stem cells that were destroyed by high doses of chemo and/or radiation therapy. Stem cell transplantation uses stem cells from the patient or from donors. In many cases the donors are family members. The patient gets these stem cells through an IV line.
  • The side effects can be much like those from chemo and radiation therapy. In some cases, the side effects may be worse.
Hormone therapy A treatment that adds, blocks, or removes hormones from the body. Hormone therapy is especially useful to slow or stop the growth of some types of cancers. Hormone therapy can be given as a pill, through an injection, or through a patch worn on the skin. Sometimes surgery is needed to remove the glands that make specific hormones.
  • Feeling hot
  • Feeling tired
  • Weight changes
  • Mood changes.
Biological therapy
Also called immunotherapy
Biological therapy uses the body's own defense system (the immune system) to fight cancer cells. Patients may be given medicine in pills, through an injection, or through an IV line.
  • Chills/fever
  • Muscle aches
  • Weakness
  • Feeling sick to the stomach or throwing up
  • Loose bowel movements.

In addition to one or more of the treatments described in the chart on the previous two pages, your parent will get tests to monitor the cancer and how the treatment is working. A list of common monitoring tests can be found in Appendix A in the back of this booklet.

Things To Look For

Some treatments may make your parent more likely to get an infection. This happens because cancer treatment can affect the white blood cells, which are the cells that fight infection. An infection can make your mom or dad sicker. So your parent may need to stay away from crowded places or people who have an illness that he or she could catch (such as a cold, the flu, or chicken pox).

Because of this, you may need to:

  • Wash your hands with soap and water often to keep from spreading germs
  • Tell your parents when you've been around someone who's sick or has a cold
  • Stay away from your parent if you get sick.

The Waiting

It's hard to wait to see whether the treatment will work. Your parent's doctor may try one treatment, then another. One day your parent may feel a lot better. The next day or week he or she may feel sick again. Treatment can go on for months or sometimes years. This emotional roller coaster is hard on everyone.

During this time, remember that the treatment is working to stop the cancer and make your parent better. For more information about the people who will be treating your parent, see Appendix B in the back of this booklet.

Who Can Answer My Other Questions?

"I had questions but didn't know who to talk to. I asked my mom if I could go with her to her doctor's visit, and she said yes. The first time I just sat there. The next time the doctor asked if I had questions--so I asked a couple. It was easier than I thought it would be."
- Katie, age 14

Ask your parent or other trusted adults any questions that you have.

Ask your dad or mom if it is okay to go with them to their appointment.

Perhaps your parent can arrange for you to ask the nurse or social worker a few questions. To make things easier:

  • Bring a list of questions with you.
  • Ask people to explain things using simple words.
  • Ask for information to be repeated.
  • Ask the doctor or nurse to show you things on a model or draw a picture.
Questions you might want to ask
  • What kind of cancer does my parent have?
  • Will my parent get better?
  • What are the chances I will get this kind of cancer, too?

Questions about the treatment
  • What kind of treatment will my parent get? Will there be more than one?
  • How do people feel when they get this treatment? Does it hurt?
  • How often is this treatment given? How long will it last?
  • Does the treatment change how people look, feel, or act?
  • What happens if the treatment doesn't work?
  • Where is the treatment given? Can I go along?

Here's space to write down your own questions:











It's okay to ask these questions more than once.

Want To Visit?

"I really wanted to visit, but the hospital made me nervous. I wasn't crazy about the smell and didn't like seeing Dad hooked up to machines. I made excuses not to visit, but I missed him too much. Then one day a neighbor drove me over to the hospital after school. I took my homework and did some of it there. Dad looked happy just watching me--and that made me forget about how strange it was to be in this place."
- Keisha, age 13

If your parent is in the hospital, you may be nervous about visiting them. Learn ahead of time how your parent is doing and what to expect. Remember that they are still the same person, even though they are sick. Don't be afraid to ask them questions and share your thoughts. You can also call, write, and e-mail them.

Where to go for more information
To learn more about cancer treatment, visit the National Cancer Institute's (NCI) Web site (http://www.cancer.gov). Look for the booklets Chemotherapy and You, Radiation and You, or Biological Therapy, among others. You can also call the NCI's Cancer Information Service at 1-800-4-CANCER (1-800-422-6237) to speak with an information specialist. All calls are free and confidential.

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