Lesch-Nyhan Syndrome Organizations

Purine Research Society 5424 Beech Avenue Bethesda, MD   20814-1730 purine@erols.com http://www.purineresearchsociety.org Tel: 301-530-0354 Fax: 301-564-9597

National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291