International Rett Syndrome Foundation

International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati,  OH  45246
Tel: 513-874-3020
EMail: admin@rettsyndrome.org
http://www.rettsyndrome.org

Description: International resource for research, education, and information about Rett Syndrome. The International Rett Syndrome Association merged with Rett Syndrome Research Foundation to form the International Rett Syndrome Foundation, as of July 2007.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.