King E, Alcorn K; International Conference on AIDS.
Int Conf AIDS. 1998; 12: 819 (abstract no. 42232).
ISSUES: It is widely recognised that community-based treatment education programmes can foster informed decision-making, maximise adherence and enhance doctor-patient partnerships. PROJECT: NAM Publications has established a multi-faceted programme of treatments education in the UK. In 1991 NAM published the first edition of its HIV & AIDS Treatments Directory, which has grown into a comprehensive 550-page reference resource now in its thirteenth edition. To complement the Directory, in 1992 NAM commenced publication of a monthly newsletter, AIDS Treatment Update, which is now accompanied by monthly, one-sided Factsheets and occasional booklets. The content of all the publications is developed in close consultation with a medical advisory panel, chosen to reflect the diversity of expert opinion among AIDS researchers and clinicians in the UK. To complement these print resources, NAM provides a training programme consisting of workshops for people living with HIV throughout the UK, monthly information forums with expert speakers, and other forms of collaborative training with self-help groups and other community-based organisations working with people directly affected by HIV. All aspects of the programme are regularly evaluated and additional research has been conducted into the treatment education views and needs of people not currently using these services. RESULTS: Demand for these services is high and has increased substantially since summer 1996. Evaluations have established that the services are appropriate and widely accessible. Full details will be presented. LESSONS LEARNED: The effectiveness of a treatment education programme can be maximised by ensuring it has the support and active participation of treating physicians; providing a range of information to accommodate different levels of information and understanding; supporting written material with face-to-face and group training opportunities; regular evaluation among users and non-users, followed by appropriate modifications; and working in partnership with other community-based groups for people living with HIV or AIDS.
Publication Types:
Keywords:
- Acquired Immunodeficiency Syndrome
- Behavior
- Demography
- Educational Status
- Evaluation Studies
- HIV Infections
- HIV Seropositivity
- Health Resources
- Health Services
- Health Services Needs and Demand
- Humans
- Organizations
- Teaching
- education
- therapy
Other ID:
UI: 102231031
From Meeting Abstracts