Fabry Support & Information Group108 NE 2nd Street, Ste. C
P.O. Box 510
Concordia,
MO
64020-0510
Tel: 660-463-1355
Fax: 660-463-1356
EMail:
info@fabry.orghttp://www.fabry.orgDescription: Non-profit support and information group that works to raise awareness of Fabry disease and its symptoms. Offers a variety
of self-help, educational, and advocacy initiatives and programs in an effort to enhance identification, diagnosis, and treatment
of Fabry disease.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.