FOCUS Families

FOCUS Families
228 E. Palomino Court
Gilbert,  AZ  85296
Tel: 866-FOCUS-50 (866-362-8750)
Fax: 866-362-8750
EMail: support_families@focusfamilies.org
http://www.focusfamilies.org

Description: Worldwide organization that helps parents and caregivers with children who have Optic Nerve Hypoplasia (ONH) and Septo-Optic Dysplasia, (SOD), also known as deMorsier syndrome. Offers a journal, national convention, regional family advisors, and educational materials.

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Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.