American Syringomyelia Alliance Project (ASAP)

American Syringomyelia Alliance Project (ASAP)
P.O. Box 1586
Longview,  TX  75606-1586
Tel: 903-236-7079 800-ASAP-282 (272-7282)
Fax: 903-757-7456
EMail: info@asap.org
http://www.asap.org

Description: Non-profit organization that works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers other written information, videotapes, an annual conference, and other services.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.