Spina Bifida Association of America

Spina Bifida Association of America
4590 MacArthur Blvd. NW
Suite 250
Washington,  DC  20007-4266
Tel: 202-944-3285 800-621-3141
Fax: 202-944-3295
EMail: sbaa@sbaa.org
http://www.spinabifidaassociation.org

Description: Grassroots non-profit association that provides information and referrals through a clearinghouse and toll-free number. Promotes research into the causes, treatment and prevention of Spina Bifida; conducts public awareness campaigns; and encourages socialization and training for people with Spina Bifida.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.