Informed Consent Bibliography

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  • Warren JW; Sobal J; Tenney JH; et al.; Informed Consent by Proxy: An Issue in Research with Elderly Patients. NEJM 1986; 315(): 1124-28. Proxies for 168 elderly nursing home residents were asked to provide consent for the patients to participate in a urinary catheter study involving minimal risk. Slightly fewer than half of the proxies refused consent, and this refusal was significantly associated with the views that research should not be conducted in nursing homes, that the study would disturb the patients, that the patient would have refused, and that the proxies themselves would refuse to participate. However, nearly a third of those proxies who believed the patient would have refused to participate gave their permission against the apparent wishes of the patient. [Source: Sugarman, J]

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