Caregiving Resources
Who can you call if you need information on finding local resources to help you take care of your father? Are there organizations that will help pay for your mother’s medication? Where can you find support groups for family caregivers?
This resource list includes some useful national organizations available to help answer these questions. It’s organized by category. We’ve included only organizations that serve a national constituency. Phone numbers and web addresses are provided for easy contact. This list does not include every possible resource but it is a place to start in your search for information.
General Resources
The following groups have a wealth of useful information on all aspects of aging – from research to services. Contact any of these for broad-based questions or referrals.
Administration on Aging
Eldercare Locator
1-800-677-1116
www.aoa.dhhs.gov
www.eldercare.gov
American Geriatrics Society Foundation for Health in Aging
The Empire State Building
350 Fifth Avenue, Suite 801
New York City, NY 10118
1-800-563-4916
www.healthinaging.org
National Association of Area Agencies on Aging
927 15th Street, NW, 6th Floor
Washington, DC 20005
202-296-8130
www.n4a.org
National Council on the Aging
300 D Street, SW, Suite 801
Washington, DC 20024
202-479-1200
www.ncoa.org
National Institute on Aging Information Center
P.O. Box 8057
Gaithersburg, MD 20898-8057
1-800-222-2225
1-800-222-4225 (toll-free TTY)
www.nia.nih.gov
Alzheimer’s Disease
Alzheimer’s Disease Education and Referral Center
P.O. Box 8250
Silver Spring, MD 20907-8250
1-800-438-4380
www.alzheimers.org
Alzheimer’s Association
225 N. Michigan Avenue, Suite 1700
Chicago, IL 60601-7633
1-800-272-3900
www.alz.org
Assisted Living
American Association of Homes and Services for the Aging
2519 Connecticut Avenue, NW
Washington, DC 20008-1520
202-783-2242
www.aahsa.org
Assisted Living Federation of America
11200 Waples Mill Road, Suite 150
Fairfax, VA 22030
1-703-691-8100
www.alfa.org
Care Planner
www.careplanner.org
National Center for Assisted Living
1201 L Street, N.W.
Washington, DC 20005
1-202-824-4444
www.ncal.org
National Citizen's Coalition for Nursing Home Reform
1424 16th Street, NW, Suite 202
Washington, D.C. 20036
202-332-2276
www.nursinghomeaction.org
Caregiving
Children of Aging Parents
1609 Woodbourne Road, Suite 302A
Levittown, PA 19057-1511
1-800-227-7294
www.caps4caregivers.org
Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA 94104
415-434-3388
www.caregiver.org
National Alliance for Caregiving
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
www.caregiving.org
National Family Caregivers Association
10400 Connecticut Avenue, #500
Kensington, MD 20895-3944
1-800-896-3650
www.nfcacares.org
Well Spouse Foundation
63 W. Main Street, Suite H
Freehold, NJ 07728
1-800-838-0879
www.wellspouse.org
Financial Assistance and Information
American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
1-800-437-AHAF (2423)
www.ahaf.org
Center for Medicare and Medicaid Services
7500 Security Building
Baltimore, MD 21244-1850
1-877-267-2323 (toll-free)
1-866-226-1819 (toll-free TTY)
www.medicare.gov
Department of Veterans Affairs
Office of Public Affairs
810 Vermont Avenue, NW
Washington, DC 20420
1-800-827-1000
1-800-829-4833 (toll-free TTY)
www.va.gov
Hill-Burton Free Medical Care Program
Health Resources and Services Administration
Department of Health and Human Services
Division of Facilities Compliance and Recovery
5600 Fishers Lane, Room 10C-16
Rockville, MD 20857
1-800-638-0742
www.hrsa.gov/osp/dfcr/
Employee Benefit Security Administration
Department of Labor
200 Constitution Avenue, NW
Room N5626
Washington, DC 20210
1-866-275-7922
www.dol.gov/ebsa
National Council on the Aging - Benefits Checkup Program
www.benefitscheckup.org
Legal Issues
American Bar Association Commission on Law and Aging
740 15th Street, NW, 8th Floor
Washington, DC 20005
202-662-8690
www.abanet.org/aging
National Academy of Elder Law Attorneys
1604 North Country Club Road
Tucson, AZ 85716
520-881-4005
www.naela.org
National Senior Citizens Law Center
1101 14th Street, NW, Suite 400
Washington, DC 20005
202-289-6976
www.nsclc.org
Meals/Nutrition
American Dietetic Association
120 S. Riverside Plaze, Suite 2000
Chicago, IL 60606-6995
1-800-366-1655 (Consumer Hotline)
www.eatright.org
Meals on Wheels Association of America
1414 Prince Street, Suite 302
Alexandria, VA 22314
703-548-5558
www.mowaa.org
Medication/Prescription Drugs
American Association of Retired Persons - State Pharmacy Assistance Programs
www.aarp.org/bulletin/yourmoney
Food and Drug Administration
5600 Fishers Lane
Rockville, MD 20857
1-888-INFO-FDA (463-6332)
www.fda.gov/cder
National Council on Patient Information and Education
4915 Saint Elmo Avenue, Suite 505
Bethesda, MD 20814-6053
301-656-8565
www.talkaboutrx.org
Pharmaceutical Research and Manufacturers of America - Patient Assistance Programs
www.helpingpatients.org
Respite and Hospice Care
Americans for Better Care of the Dying
4200 Wisconsin Avenue, NW
Washington, DC 20016
202-895-2660
www.abcd-caring.org
National Hospice Foundation
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
1-800-338-8619
www.hospiceinfo.org
Partnership for Caring, Inc./ America’s Voice for the Dying
1620 Eye Street, NW, Suite 202
Washington, DC 20006
1-800-989-9455
www.partnershipforcaring.org
Visiting Nurse Associations of America
99 Summer Street, Suite 1700
Boston, MA 02110
1-888-866-8773
www.vnaa.org
Web page last updated:
December 29, 2005
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