Dementia Organizations

Alzheimer's Disease Education and Referral Center (ADEAR) P.O. Box 8250 Silver Spring, MD   20907-8250 adear@nia.nih.gov http://www.alzheimers.nia.nih.gov Tel: 301-495-3311 800-438-4380 Fax: 301-495-3334	Alzheimer's Association 225 North Michigan Avenue 17th Floor Chicago, IL   60601-7633 info@alz.org http://www.alz.org Tel: 312-335-8700 1-800-272-3900 (24-hour helpline) TDD: 312-335-5886 Fax: 866.699.1246
Alzheimer's Foundation of America 322 Eighth Avenue 7th Floor New York, NY   10001 info@alzfdn.org http://www.alzfdn.org Tel: 866-AFA-8484 (232-8484) Fax: 646-638-1546	John Douglas French Alzheimer's Foundation 11620 Wilshire Blvd. Suite 270 Los Angeles, CA   90025 jdfaf@earthlink.net http://www.jdfaf.org Tel: 310-445-4650 800-477-2243 Fax: 310-479-0516
Association for Frontotemporal Dementias (AFTD) 1616 Walnut Street Suite 1100 Philadelphia, PA   19103 info@FTD-Picks.org http://www.FTD-Picks.org Tel: 267-514-7221 866-507-7222	National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
Family Caregiver Alliance/ National Center on Caregiving 180 Montgomery Street Suite 1100 San Francisco, CA   94104 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508	C-Mac Informational Services/Caregiver News [For Alzheimer's-Type Dementia Caregivers] 120 Clinton Lane Cookeville, TN   38501-8946 caregiver_cmi@hotmail.com http://www.caregivernews.org
National Institute of Mental Health (NIMH) National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD   20892-9663 nimhinfo@nih.gov http://www.nimh.nih.gov Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY) Fax: 301-443-4279	National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302
Lewy Body Dementia Association P.O. Box 451429 Atlanta, GA   31145-9429 lbda@lbda.org http://www.lewybodydementia.org Tel: 404-935-6444 800-LEWYSOS (539-9767) Fax: 480-422-5434	Alzheimer’s Drug Discovery Foundation (formerly, Institute for the Study of Aging) 1414 Avenue of the Americas Suite 1502 New York, NY   10019 hfillit@alzdiscovery.org http://www.alzdiscovery.org Tel: 212-935-2402 Fax: 212-935-2408
Creutzfeldt-Jakob Disease (CJD) Foundation Inc. P.O. Box 5312 Akron, OH   44334 help@cjdfoundation.org http://www.cjdfoundation.org Tel: 800-659-1991 Fax: 330-668-2474	CJD Aware! 2527 South Carrollton Ave. New Orleans, LA   70118-3013 cjdaware@iwon.com; info@cjdaware.com http://www.cjdaware.com Tel: 504-861-4627
Well Spouse Association 63 West Main Street Suite H Freehold, NJ   07728 info@wellspouse.org http://www.wellspouse.org Tel: 800-838-0879 732-577-8899 Fax: 732-577-8644	National Respite Network and Resource Center 800 Eastowne Drive Suite 105 Chapel Hill, NC   27514 http://www.archrespite.org Tel: 919-490-5577 x222 Fax: 919-490-4905
American Health Assistance Foundation 22512 Gateway Center Drive Clarksburg, MD   20871 info@ahaf.org www.ahaf.org/alzheimers/ Tel: 301-948-3244 800-437-AHAF (2423) Fax: 301-258-9454	National Hospice and Palliative Care Organization /Natl. Hospice Foundation 1700 Diagonal Road Suite 625 Alexandria, VA   22314 nhpco_info@nhpco.org http://www.nhpco.org Tel: 703-837-1500 Helpline: 800-658-8898 Fax: 703-837-1233