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Administration on Developmental Disabilitiesskip to primary page content

On-going Data Collection and Information Dissemination

Title:
"The State of the States in Developmental Disabilities"

Abstract:
"The State of the States in Developmental Disabilities" is a comparative nationwide longitudinal study of public financial commitments and programmatic trends in developmental disabilities services and supports. The Project is a "benchmarking" study of states performance as they work to implement President Bush’s New Freedom Initiative and the U.S. Supreme Court’s Olmstead decision, both of which promote community living and greater independence. The Project will:

  • Analyze developmental disabilities financial and programmatic trends in each state and the District of Columbia.
  • Identify trends and innovations in the financing of family support, supported living, and supported employment in the states
  • Complete a special study of Medicaid spending for special education.
  • Conduct in-depth analyses of developmental disabilities services and supports in individual states, including a special study of family support in California in collaboration with the University of California.
In the end, the Project will contribute reliable knowledge about the status of services for people with developmental disabilities from a state and national perspective.

Institute:
The Coleman Institute
Department of Psychiatry University of Colorado,
Health Sciences Center
Fitzsimons Building 500
Room W1126
Mail Stop F428
P.O. Box 6508
Aurora, CO 80045-0508
303- 492-0639

Contact:
David L. Braddock, Ph.D.
303-492-0639
303-735-3096  FAX
E-mail Address: braddock@cu.edu

Period:
9/30/07 - 9/29/11

Funding:
$300,000/year

Project Officer:
Shadetra Robinson
E-mail Address: shadetra.robinson@acf.hhs.gov
202-690-7898

Project #:
90DN0214


Title:
"State of the States in Developmental Disabilities:   2007 – 2011,
A Nationwide Study of Financial and Programmatic Trends"

Abstract:
The "State of the States in Developmental Disabilities:   2007 – 2011,
A Nationwide Study of Financial and Programmatic Trends” extends 17 years of research describing day and employment services for individuals with developmental disabilities. The project will:

  • Assess the effectiveness of state Mental Retardation/Developmental Disabilities and Vocational Rehabilitation agencies in promoting full inclusion of individuals with developmental disabilities through employment and other community activities.
  • Assess the employment and economic status of individuals with developmental disabilities on a state and national basis.
  • Describe and promote effective state and local policy and practices that enhance access to integrated employment at both the systems and individual costumer levels.
  • Implement www.statedata.info, an interactive website that provides fully accessible on-demand charts and tables illustrating service system investment in day and employment services and employment outcomes.
  • Demonstrate the use of Geographic Information System (GIS) Technology to illustrate patterns of investment in service system outcomes.
  • Provide on-line access to a catalog of best practices in state and local policy and practice that promotes access to integrated employment including outcome data collection tools, funding structures, and employment policies and initiatives
  • Provide online access to best practices in job support for individual job seekers, family members, and advocates using individual stories.
A number of products will be produced by this project, including journal articles, research reports, fact sheets, and guides for consumers and family members.

Institute:
Institute for Community Inclusion
University of Massachusetts Boston
100 Morrissey Blvd.
Boston, MA 02125
617-287-4300

Contact:
John Butterworth, Ed.D.
617-287-4357
617-287-4352 FAX
E-mail Address: john.butterworth@umb.org

Period:
9/30/07 - 9/29/11

Funding:
$299,999/year

Project Officer:
Shadetra Robinson
E-mail Address: shadetra.robinson@acf.hhs.gov
202-690-7898

Project #:
90DN0216


Title:
"The National Residential Information System Program: Ongoing Data Collection and Information Dissemination on Residential Services for Persons with Developmental Disabilities"

Abstract:
"The National Residential Information System Program: Ongoing Data Collection and Information Dissemination on Residential Services for Persons with Developmental Disabilities" continues more than 20 years of analysis of annual state-by-state and national statistics on residential services for people with developmental disabilities (DD), including state and non-state institutional settings and community and home-based residential services. The Project will:

  • Utilize a large multi-state database on individuals with DD to examine the associations between personal characteristics, living arrangements, financing and support models, state systems and other factors on the achievement of inclusion, self-determination, satisfaction, and outcomes.
  • Conduct state policy and program surveys on key topics in residential and other community services.
  • Maintain clearinghouses of information and resources on consumer-controlled housing, the direct support workforce, and community living outcomes.
The Project will also disseminate information through a variety of formants, which include, among others, annual reports; the IMPACT, Policy Research Brief, and Community Services Reporters newsletters; the QualityMall.org website; and the "Trends and Milestones" feature in Mental Retardation. The activities carried out through this Project will provide timely and accurate information about residential services in the United States and on effective, innovative policy development and implementation.

Institute:
Research and Training Center on
Residential Services and Community Living
Institute on Community Integration (UCEDD)
University of Minnesota
102 Pattee Hall
150 Pillsbury Drive SE
Minneapolis, MN 55455-0223
Main Phone: 612-624-6300

Contact:
Charlie Lakin
612-624-5005
612-625-6619 FAX
E-mail Address: lakin001@umn.edu

Period:
9/30/07 - 9/29/11

Funding:
$300,000/year

Project Officer:
Shadetra Robinson
E-mail Address: shadetra.robinson@acf.hhs.gov
202-690-7898

Project #:
90DN0217