Journal Articles and Books
Categorized by Author
Alemi F, Mosavel M, Stephens RC, Ghadiri A, Krishnaswamy J,
Thakkar H. Electronic self-help and support groups. Med Care 1996;34(10 Suppl):OS32-44.
Alemi F, Stephens RC, Javalghi RG, Dyches H, Butts J,
Ghadiri A. A randomized trial of a telecommunications network for pregnant women who use
cocaine. Med Care 1996 Oct;34(10 Suppl):OS10-20.
Alemi F, Stephens RC, Muise K, Dyches H, Mosavel M, Butts
J. Educating patients at home. Community Health Rap. Med Care 1996;34[Suppl]:OS21-31.
Allen JK, Becker DM, Swank RT. Factors related to
functional status after coronary artery bypass surgery. Heart Lung 1990;19:337-343.
Comment in: Heart Lung 1991;20:210.
Alterman AI, Baughman TG. Videotape versus computer
interactive education in alcoholic and nonalcoholic controls. Alcoholism 1991;15:39-44.
Alwitt LF, Donley TD. The low-income consumer. Adjusting
the balance of exchange. Thousand Oaks, CA: Sage Publications, 1996.
American Association of Health Plans.
AAHP member organizations. Accessed July 21, 1998. Available from URL: http://www.aahp.org/menus/backtomain.cfm?menuitemlink=%2Fhotlinks%2Findex%2Ecfm
American Electronics Association. Cybernation. Accessed
January 28, 1998. Available from URL: http://sc-notes1.aeanet.org/www/ResearchStatistics.nsf/homepage/index.html
American Library Association. 1997 national survey of
public libraries and the Internet: summary results. Accessed March 31, 1998. Available
from URL: http://www.ala.org/oitp/survey97.html
American Medical Association. Links to other medical sites.
Accessed July 28, 1998. Available from URL: http://www.ama-assn.org/med_link/
Anderson RM, Funnell MM, Butler PM, et al. Patient
empowerment. Results of a randomized trial. Diabetes Care 1995;18(7):943-949.
Aspen Institute. Vision For Health Learning: a Partnership
Model. Vision Roundtable, Queenstown, Maryland, November 1 - 3, 1994.
Baker DW, Parker RM, Williams MV, Pitkin K, Parikh NS,
Coates W, Imara M. The health care experience of patients with low literacy. Arch Fam Med
Balas EA, Austin SM, Mitchell JA, Ewigman BG, Bopp KD,
Brown GD. The clinical value of computerized information services. A review of 98
randomized clinical trials. Arch Fam Med 1996;5:271-8.
Balas EA, Jaffrey F, Kuperman GJ, Boren SA, Brown GD,
Pinciroli F, et al. Electronic communication with patients. Evaluation of distance
medicine technology. JAMA 1997;278:152-9.
Bandura A. Self-efficacy towards a unifying theory of
behavioral change. Psychological Review 1977;84(2):191-215.
Barrows RC Jr; Clayton PD. Privacy, confidentiality, and
electronic medical records. J Am Med Inform Assoc 1996;3:139-48.
Barry MJ, Fowler FJ Jr, Mulley AG Jr, Henderson JV Jr,
Wennberg JE. Patient reactions to a program designed to facilitate patient participation
in treatment decisions for benign prostatic hyperplasia. Med Care 1995;33:771-82.
Begg C, Cho M, Eastwood S, Horton R, Moher D, Olkin I, et
al. Improving the quality of reporting of randomized controlled trials: the CONSORT
statement. JAMA 1996;276:637-9.
Bergman R. Computers make "house calls" to
patients. Hospitals 1993;67:52.
Bier M, Gallo M, Nucklos E, Sherblom S, Pennick M. Personal
empowerment in the study of home Internet use by low-income families. J Research on
Computing in Education 1996;28. Accessed July 20, 1998. Available from URL: http://www2.educ.ksu.edu/Projects/JRCE/v28-5/Bier/article/main.htm
Blumenthal D. The future of quality measurement and
management in a transforming health care system. JAMA 1997;278:1622-5.
Bluming A, Mittelman PS. Los Angeles Free-Net: an
experiment in interactive telecommunication between lay members of the Los Angeles
community and health care experts. Bull Med Libr Assoc 1996;84:217-22.
Bowen JW, Klimczak JC, Ruiz M, Barnes M. Design of access
control methods for protecting the confidentiality of patient information in networked
systems. Proc AMIA Annu Fall Symp. 1997:46-50.
Bower H. Internet sees growth of unverified health claims.
Brennan PF, Moore SM, Smyth KA. The effects of a special
computer network on caregivers of persons with Alzheimer's disease. Nurs Res
British Healthcare Internet Association. Quality Standards
for Medical Publishing on the Web. Accessed May 26, 1998. Available from URL: http://www.bhia.org/reference/documents/recommend_webquality.htm
Brody DS, Miller SM, Lerman CE, Smith DG, Caputo GC.
Patient perception of involvement in medical care: relationship to illness attitudes and
outcomes. Journal of General Internal Medicine 1989;4(6):506-11.
Buhle EL Jr, Goldwein JW, Benjamin I. OncoLink: A
multimedia oncology information resource on the Internet. Proc Annu Symp Comput Appl Med
Bulkeley WM. E-mail medicine. Untested treatments, cures
find stronghold in on-line services. Wall Street J, 27 Feb 1995;225:1.
Campbell MK, DeVellis BM, Strecher VJ, Ammerman AS,
DeVellis RF, Sandler RS. Improving dietary behavior: The effectiveness of tailored
messages in primary care settings. Am J Public Health 1994;84:783-7.
Carroll JM, Stein C, Byron M, Dutram K. Using interactive
multimedia to deliver nutrition education to Maine's WIC clients. J Nutrition Educ
CDC. Self-assessed health status and selected behavioral
risk factors among persons with and without health-care coverageUnited States,
1994-1995. MMWR 1998; 47:170-80.
Coiera E. The Internets challenge to health care
provision. BMJ 1996; 312:3-4.
Computer Intelligence. CI finds PC penetration in US
households tops 40%, as more than half of households with children have PCs. June 9, 1997.
Accessed February 21, 1998. Available from URL: http://www.ci.zd.com/news/pen2.html
Computer Science and Telecommunication Board, National
Research Council. For the Record: Protecting Electronic Health Information. Washington,
D.C.:National Academy Press, 1997.
Consoli SM, Ben Said M, Jean J, et al. Benefits of a
computer-assisted education program for hypertensive patients compared with standard
education tools. Patient Education and Counseling 1995;26:343-347.
Consumers Union. Finding medical help online. Consumer Rep
Council on Competitiveness. Highway to health: Transforming
U.S. health care in the information age. Washington, DC: Council on Competitiveness, 1996.
Cunningham, AJ, Lockwood GA, Cunningham JA. A relationship
between perceived self-efficacy and quality of life in cancer patients. Patient Education
and Counseling 1991;17.1:71-78.
Cyber Dialogue, Inc. American Internet User Survey finds
more than 41.5 million U.S. adults are actively using the Internet. Accessed March 5,
1998. Available from: URL: http://www.cyberdialogue.com/press/releases/aius1.html
Davis, TC, Mayeaux EJ. Reading ability of parents compared
with reading level of pediatric patient education materials. Pediatrics
Deering MJ, Harris J. Consumer health information demand
and delivery: Implications for libraries. Bull Med Libr Assoc 1996;84:209-16.
Degner L, Kristjanson L, Bowman D, et al. Information needs
and decisional preferences in women with breast cancer. JAMA 1997, May 14.
Ellis LB, Joo HY, Gross CR. Use of a computer-based health
risk appraisal by older adults. Fam Pract 1991;33:390-4.
Ende J, Kazis L, Ash, A, et al. Measuring patients' desire
for autonomy: Decision making and information-seeking preferences among medical patients.
Journal of General Internal Medicine 1989;4(1):23-30.
Eng TR, Gustafson D, Henderson J, Jimison H, Patrick K, for
the Science Panel on Interactive Communication and Health. Introduction to Evaluation of
Interactive Health Communication Applications. Am J Prev Med 1998 (in press).
Eng TR, Maxfield A, Patrick K, Deering MJ, Ratzan S,
Gustafson D. Access to health information and support: A public highway or a private road?
JAMA 1998 (in press)
Faulkner & Gray, Inc. Patient resources on the
Internet. 1997 guide for health care professionals. Wingerson L, Simon K, Northup L,
Restino A, editors. New York: Faulkner & Gray, Inc., 1997.
Federal Communications Commission. Universal service.
Accessed July 15, 1998. Available from: URL:
Federal Trade Commission. North American Health Claim Surf
Day targets Internet ads. Hundreds of e-mail messages sent. Press release, Nov. 5, 1997.
Accessed May 12, 1998. Available from: URL:
Feenberg AL, Licht JM, Kane KP, Moran K, Smith RA. The
online patient meeting. J Neurol Sci 1996;139 Suppl:129-31.
Feldman SR, Quinlivan A. Illiteracy and the readability of
patient education materials. A look at Health Watch. North Carolina Medical Journal
Fennell ML, Alexander JA. Perspectives on organizational
change in the U.S. medical care sector. Annual Rev Sociology 1993;19:89-112.
Ferguson T. Health care in cyberspace: Patients lead a
revolution. The Futurist 1997;31:29-33.
Ferguson T. Health online. How to find health information,
support groups, and self-help communities in cyberspace. Reading, MA: Addison-Wesley
Publishing Company, 1996.
Fernsler JI, Manchester LJ. Evaluation of a computer-based
cancer support network. Cancer Pract 1997;5:46-51.
Feste C, Anderson RM. Empowerment: From philosophy to
practice. Patient Education and Counseling 1995;26:139-144.
FIND/SVP Inc. The 1997 American Internet user survey. Top
content choices. May 1997. Accessed: July 28, 1998. Available from: http://www.cyberdialogue.com/isg/internet/top.html
FIND/SVP, Inc. The 1997 American Internet User Survey.
Accessed February 18, 1998. Available from: http://etrg.findsvp.com/internet/findf.html
Firshein J. US physicians' malpractice data goes on
Internet. Lancet 1997;349:1155.
Flay BR. Mass media and smoking cessation: a critical
review. Am J Public Health 1987;77:153-60.
Flora JA, Miabach EW, Holtgrave D. Communication campaigns
for HIV prevention: Using mass media in the next decade. Institute of Medicine. Assessing
the social and behavioral science base for HIV/AIDS prevention and intervention.
Background papers. Washington, DC: National Academy Press; 1995. p. 129-54.
Food and Drug Administration. FDA warns consumers on
dangerous products promoted on the Internet. FDA Talk Paper T97-26, June 17, 1997.
Foran M, Campanelli LC. Health promotion communications
system: A model for a dispersed population. AAOHN J 1995;43:564-9.
Fries JF, Koop CE, Beadle CE, Cooper PP, England MJ,
Greaves RF, et al. Reducing health care costs by reducing the need and demand for medical
services. N Engl J Med 1993;329:321-5.
Frisse ME. What is the Internet learning about you while
you are learning about the Internet? Acad Med. 1996;71:1064-7.
FTC. North American health claim surf day targets internet
ads, hundreds of e-mail messages sent. November 5, 1997. Accessed March 18, 1998.
Available at: http://www.ftc.gov/opa/1997/9711/hlthsurf.htm
Funnell, MM, Donnelly MB, Anderson RM et al. Perceived
effectiveness, cost, and availability of patient education methods and materials. Diabetes
Gillispie MA, Ellis LBM. Computer-based patient education
revisited. Journal of Medical Systems 1993;17:119-125.
Gleason NA. A new approach to disordered eating--using an
electronic bulletin board to confront social pressure on body image. J Am Coll Health
Goldstein MK, Clarke AE, Michelson D, et al. Developing and
testing a multimedia presentation of a health-state description. Medical Decision Making
Goldwein JW, Benjamin I. Internet-based medical
information: Time to take charge. Ann Intern Med 1995;123:152-3.
Gostin L: Health care information and the protection of
personal privacy: Ethical and legal considerations. Ann Intern Med 1997;127(Pt 2):683-90.
Gostin LO; Lazzarini Z. Childhood immunization registries.
A national review of public health information systems and the protection of privacy. JAMA
Gostin LO; Lazzarini Z; Neslund VS; Osterholm MT. The
public health information infrastructure. A national review of the law on health
information privacy. JAMA 1996;275:1921-7.
Government Accounting Office. Consumer health informatics.
Emerging issues. Publication GAO/AIMD-96-86, Washington, DC, July 1996.
Gray D. Faking pain and suffering in Internet support
groups. NY Times 1998 April 23; Sect. E1, E7.
Greene J. Innovators. Sign on and say
"ah-h-h-h-h." Hosp Health Netw 1997;71:45-6.
Greenfield S, Kaplan S, Ware J Jr. Expanding patient
involvement in care: Effects on patient outcomes. Annals of Internal Medicine
Gropper M, Liraz Z, Portowicz D, Schindler M. Computer
integrated drug prevention: A new approach to teach lower socioeconomic 5th and 6th grade
Israeli children to say no to drugs. Soc Work Health Care 1995;22:87-103.
Gustafson D, Hawkins R, Boberg E, Pingree S, Serlin R,
Graziano F, Chen C. Impact of patient centered computer-based health information and
support system. Am J Prev Med 1998 (in press).
Gustafson D, Hundt A. Findings of innovation research
applied to quality management principles for health care. Health Care Management Review
Gustafson D, Peterson-Helstad C, Hung C, Nelson E, Batalden
P. The total cost of illness: A metric for health care reform. Hospital and Health
Services Administration 1995;40:154-71.
Gustafson D, Robinson TN, Ansley D, Adler L, Brennan P, for
the Science Panel on Interactive Communication and Health. Consumers and evaluation of
interactive health communication applications. Am J Prev Med 1998 (in press).
Gustafson D, Wise M, McTavish F, Taylor JO, Wolberg W,
Stewart J, Smalley RV, Bosworth K. Development and pilot evaluation of a computer-based
support system for women with breast cancer. J Psychosocial Oncology 1993;11:69-93.
Gustafson D. Consumer Health Plan Information Needs:
Results of Pilot Interviews and Focus Group Meetings. Center for Health Systems Research
and Analysis, University of Wisconsin-Madison, 1995.
Gustafson DH, Bosworth K, Hawkins RP, Boberg EW, Bricker E.
CHESS: A computer-based system for providing information, referrals, decision support and
social support to people facing medical and other health-related crises. Proc Annu Symp
Comput Appl Med Care 1992:161-5.
Gustafson DH, Hawkins RP, Boberg EW, Bricker E, Pingree S,
Chan CL. The use and impact of a computer-based support system for people living with AIDS
and HIV infection. Proc Annu Symp Comput Appl Med Care 1994:604-8.
Gustafson DH, Hawkins RP, Boberg EW, et al. The impact of
computer support on HIV infected individuals. Final report to the Agency for Health Care
Policy and Research, 1994.
Hallgren MM, McAdams AK. The economic efficiency of
Internet public goods. In: McKnight LW, Bailey JP (eds.) Internet Economics. Cambridge,
MA: MIT Press, 1997:27-62.
Hammett TM, Gaiter JL, Crawford C. Reaching seriously
at-risk populations: Health interventions in criminal justice settings. Health Educ Behav
Harris J. National Assessment of Consumer Health
Information Demand and Delivery. Reference Point Foundation, Partnerships for Networked
Health Information for the Public, Rancho Mirage, Ca, 1995.
Harris L & Equifax: Health Care Information Privacy: A
survey of the public and leaders, 1993.
Harris LM, editor. Health and the new media. Technologies
transforming personal and public health. Mahwah, NJ: Lawrence Erlbaum Associates,
Harris, J. National Assessment of Consumer Health
Information Demand and Delivery. Rancho Mirage, CA: Reference Point Foundation,
Partnership for Networked Health Information for the Public,. May 14-16, 1995.
Hassett M, Lowder C, Rutan D. Use of computer network
bulletin board systems by disabled persons. Proc Annu Symp Comput Appl Med Care
Hawkins R, Gustafson DH, Chewning B, Bosworth K, Day P.
Interactive computer programs as public information campaigns for hard-to-reach
populations: The BARN Project example. J Communications 1987;37:8-28.
Haynes RB, Mulrow CD, Huth EJ, Altman DG, Gardner MJ. More
informative abstracts revisited. Ann Int Med 1990;113:69-76.
Health Commons Institute. Shared decision making and new
information technologies. Transforming the health care system. An invitational conference
for policy leaders. Portland, ME: Health Commons Institute, 1994.
Health Information Technology Institute, Mitretek Systems.
Criteria for assessing the quality of health information on the Internet. Accessed January
27, 1998. Available from: URL: http://hitiweb.mitretek.org/docs/criteria.html
Health On the Net Foundation. HON code of conduct for
medical and health web sites. Accessed January 27, 1998. Available from: URL: http://www.hon.ch/HONcode/Conduct.html
Henderson J, Noell J, Reeves T, Strecher V, for the Science
Panel on Interactive Communication and Health. Developers and evaluation of interactive
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Hersey JC, Matheson J, Lohr KN. Consumer health informatics
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Hoffman DL, Novak TP. Bridging the racial divide on the
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Holman H, Lorig K. Patient education in the rheumatic
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Holt GA, Hallon JD, Hughes SE, et al. OTC lables: Can
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Reliability of health information for the public on the World Wide Web: systematic survey
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Institute of Medicine. Telemedicine. A guide to assessing
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Jadad AR, Gagliardi A. Rating Health Information on the
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Jimison H, Adler L, Coye M, Mulley Jr A, Eng TR, for the
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Jimison HB, Henrion M. Hierarchical preference models for
patients with chronic disease. Medical Decision Making 1992; 7:351.
Jimison, H.B., Fagan, L.M., Shachter, R.D., and Shortliffe,
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Jimison, H.B., Patient-Specific Interfaces to Health and
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Kahin B, Keller J, editors. Public access to the Internet.
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Kasper JF, Mulley AF Jr., Wennberg JE. Developing shared
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Kieschnick T, Adler LJ, Jimison HB. 1996 Health informatics
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Kinzie MB, Schorling JB, Siegel M. Prenatal alcohol
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Lasker RD, Humphreys BL, Braithwaite WR. Making a powerful
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