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DLS - Laboratory Practice Evaluation and Genomics Branch
A New Era in Newborn Screening
Saving Lives, Improving Outcomes
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Newborn Screening Links
National and State News
National Newborn Screening and Genetics Resource Center
http://GeNeS-R-US.uthscsa.edu
Maternal and Child Health Bureau
http://www.mchb.hrsa.gov/
Newborn Screening Report Addresses Inconsistencies and Controversies
News Release, American Academy of Pediatrics August 7, 2000
http://www.aap.org/advocacy/archives/augscreening.htm
Centers for Disease Control and Prevention (CDC)
CDC Newborn Screening Quality Assurance Program
National Center for Environmental Health, Division of Laboratory Sciences
http://www.cdc.gov/nceh/dls/newborn_screening.htm
National Laboratory Training Network
Provides laboratory training courses and an online lending library
http://www.phppo.cdc.gov/nltn/default.asp
Morbidity and Mortality Weekly Report (MMWR)
Using Tandem Mass Spectrometry for Metabolic Disease Screening Among Newborns
http://www.cdc.gov/mmwr/PDF/RR/RR5003.pdf
National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/
Information on Disorders and Support Groups
Save Babies Through Screening
http://www.savebabies.org/
Exceptional Parent
http://www.eparent.com/healthcare
Fatty Oxidation Disorders Family Support Group
http://www.fodsupport.org/index.htm
National Coalition for PKU and Allied Disorders
http://www.pku-allieddisorders.org/home.htm
National PKU News
http://www.pkunews.org
Organic Acidemia Association
http://www.oaanews.org/
The Sickle Cell Information Center
The Georgia Comprehensive Sickle Cell Center at Grady Health System
http://www.emory.edu/PEDS/SICKLE/
American Academy of Pediatrics
Health Supervision for Children With Sickle Cell Disease
American Academy of Pediatrics, Pediatrics, Vol 109, #3 March 2002
http://www.aap.org/policy/re1011.html
Maternal Phenylketonuria
American Academy of Pediatrics, Pediatrics. Vol 107, #2 February 2001
http://www.aap.org/policy/re0024.html
Association of Public Health Laboratories
http://www.aphl.org
American College of Medical Genetics
http://www.acmg.net
NCCLS
http://www.nccls.org/
March of Dimes
Genetic Education Programs: Online descriptions
http://www.modimes.org/Programs/428.htm
Fact Sheets for consumers and professionals on Newborn Screening, birth defects and genetic disorders. Downloadable at:
http://www.modimes.org/HealthLibrary/fact_sheets.htm
History
PKU Basics on the Net
http://www.fesoc.com/pku/history.htm
PKU - The Beginnings
http://www.pku-allieddisorders.org/guthrie.htm
This page last reviewed: 8/19/2004
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Tel: (404) 639-3311 / Public Inquiries: (404) 639-3534 / (800) 311-3435
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