Information Sheet
August 2008
Summary of Surveys and Data Systems
PDF version
183 KB
Page Content
Vital Statistics Cooperative Program (VSCP)
Data Source/Methods
- State vital registration
- Births
- Deaths
- Linked Birth/Infant Death Program
- Matched multiple birth data sets
Selected Applications of Data Produced
- Life expectancy
- Causes of death
- Infant mortality (IM)
- Prenatal care and birthweight
- Birthweight
- Birth rates
- Nonmarital births
- Pregnancy outcomes
- Occupational mortality
- Teenage pregnancy
- Method of delivery
- IM rates by birth and period cohorts
- IM rates by birthweight
- IM by cause of death
- Preterm delivery
- Multiple births
- Perinatal mortality
- Maternal smoking
Planned Sample
- All births (4 million records annually)
- All deaths (about 2.4 million records annually)
- Reported fetal deaths of 20+ weeks gestation (about 26,000 annually)
- Counts of marriages and divorces
Race/Ethnicity and SES [1]
For births, deaths, and fetal deaths:
- White, black, 5 API groups, American Indian, multiple race
- 5 Hispanic groups
- Education
- Births and deaths: 10 API groups from 11 states
- Marital status
Planned Periodicity
FY 2005-2009 Plans
- Continue monthly, annual data system
- Assist states in automating and/or re-engineering their IT systems to
enhance timeliness and quality of reporting
- Implement revised certificates as part of re-engineering process Implement
new OMB race guidelines
- Evaluate quality of new data items
- Implement new data access methods and reports
- Re-engineer internal DVS systems
- Develop and publish birth certificate regulations in response to IRTPA
Top of page
National Health and Nutrition Examination Survey (NHANES)
Data Source/Methods
- Personal interview
- Physical examination
- Laboratory tests
- Nutritional assessment
- DNA repository
Selected Applications of Data Produced
- Total prevalence of disease or conditions including those unrecognized or
undetected
- Nutrition monitoring
- Heart disease
- Diabetes
- Osteoporosis
- Iron deficiency anemia and other nutritional disorders
- Environmental exposures monitoring
- Children's growth & development
- Infectious disease monitoring
- Overweight
Planned Sample
- ~5,000 persons per year, all ages
- Oversample 60+
- Oversample blacks & Hispanics
Race/Ethnicity and SES [1]
All Years
- Income and poverty index
- Education
- Occupation
- Type of living quarters
- Social services
- Black, white and Mex. Amer.
Prior to 1982
- White, black, Other
- Birthplace
1988 +
- OMB categories
- Acculturation questions re: language usually spoken at home
Planned Periodicity
- Annual, with capability for longitudinal followup
FY 2005-2009 Plans
- Data collection for annual sample
- Data releases on two-year cycles
- Surveys of other population groups or State and local geographic areas
(Community HANES) are being considered
Top of page
National Health Interview Survey (NHIS)
Data Source/Methods
Selected Applications of Data Produced
Annual data on:
- Health status and limitations
- Utilization of health care
- Injuries
- Family resources
- Health insurance
- Access to care
- Selected conditions
- Health Behaviors
- Functioning
- HIV/AIDS testing
- Flu shots/sprays for all ages
- Pneumonia shots for adults 18+
Planned Sample
- ~40,000 households
- In 2006, oversample includes blacks, Hispanics, and Asians. Sample adults
are now oversampled if 65+ and one of these minorities.
Race/Ethnicity and SES [1]
- OMB categories
- Hispanic groups
- API groups
- Family and individual income and poverty level
- Education and occupation (sample person only)
- Type of living quarters
- Acculturation questions re: language used during interview
Planned Periodicity
FY 2005-2009 Plans
- Continue annual survey
- Provide sampling frame to the Medical Expenditure Panel Survey
- Supplements
- 2005: Cancer Control
- 2006: Healthy People 2010 Objectives (arthritis, stroke, diabetes)
- 2007: Complementary and alternative medicine and hearing
- 2008: Oral health, HPV, asthma, vision (all ages); cancer screening,
balance , Heart disease, immunization (adults only)
- 2009: arthritis (others as yet undecided)
- Re-designed sample implemented (2006)
Top of page
National Hospital Discharge Survey (NHDS)
Data Source/Methods
- Hospital records
- Computerized data sources
Selected Applications of Data Produced
- Patient characteristics
- Hospital characteristics
- Length of stay
- Diagnosis and multiple diagnoses
- Surgical and diagnostic procedures
Planned Sample
- 500 hospitals
- 300,000 discharges
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Annual release of paradata files on interview process
- Continue annual survey of hospitals
- Re-design in process (2010)
Top of page
National Ambulatory Medical Care Survey (NAMCS)
Data Source/Methods
- Encounter forms completed by office-based physicians and other staff
- Physician-level personal interviews
Selected Applications of Data Produced
- Characteristics of patients' visits
- Diagnoses and treatment
- Prescribing patterns
- Characteristics of practice
Planned Sample
- 3,400 physicians in office-based practices
- Three providers at each of 104 community health centers
- ~30,000 patient visits
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Continue annual survey
- Special focus on chronic diseases (2005-8)
- Cervical cancer screening supplement
- Separate strata of community health centers and medical and surgical
oncologists (2006-7)
Top of page
National Hospital Ambulatory Medical Care Survey (NHAMCS)
Data Source/Methods
- Encounter forms completed by physicians and other hospital staff
- Facility and personal interviews
Selected Applications of Data Produced
- Characteristics of patients' visits to hospital outpatient departments
(OPD) and emergency departments (ED)
- Diagnoses and treatment
- Prescribing patterns
- Characteristics of facility
Planned Sample
- 600 hospitals
- 70,000 patient visits
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Continue annual survey
- Add content on electronic medical records
- Emergency pediatric preparedness - supplement (2006)
- Special focus on chronic diseases (OPD) (2005-8)
- Cervical cancer screening supplement
Top of page
National Survey of Family Growth (NSFG)
Data Source/Methods
- Personal interviews
- Men and women 15-44 years
Selected Applications of Data Produced
- Contraception & sterilization
- Teenage sexual activity & pregnancy
- Family planning & unintended pregnancy
- Infertility, adoption, breastfeeding
- Marriage, divorce, and cohabitation
- Fatherhood involvement
- HIV risk behavior
Planned Sample
- 5,000 men and women
- Oversample blacks, Hispanics and teens
Race/Ethnicity and SES [1]
- OMB categories
- 4 Hispanic groups
- Family & individual income, & poverty level
- Sources of income
- Education
Planned Periodicity
- Continuous since mid-2006
FY 2005-2009 Plans
- Design for continuous interviewing ongoing
- First data set from continuous interviewing release (2009)
Top of page
National Immunization Survey (NIS) (in partnership with CDC/NIP)
Data Source/Methods
- Telephone interviews
- Provider record check component
- Weighting adjustment for non- telephone households
Selected Applications of Data Produced
- Evaluation of immunization status of preschool population (NIS)
- Demographic characteristics
- Family resources data
- Health care utilization
Planned Sample
- Over 1 million households screened to find NIS sample of households with
children 19-35 months
- 400 completed NIS interviews in each of 55 non-overlapping areas (at
least) which includes the 50 states, DC and 5 or more grantees. Add'l areas
maybe included subject to funding
- Option allows for additional data collection on other topics from the
households screened for the NIS sample
Race/Ethnicity and SES [1]
- OMB categories
- Income
- Education of the mother
Planned Periodicity
- Continuous with quarterly 12 month moving averages
FY 2005-2009 Plans
- Currently conducting interviews for all areas
- New contract to cover data collection (CY 2005-2007)
Top of page
National Survey of Children with Special Health Care Needs
Data Source/Methods
- Conducted using the State and Local Area Integrated Telephone Survey
(SLAITS) mechanism
- Telephone interviews
- Statistical adjustments for house- holds without telephones
- Utilizes NIS sample frame
- Sponsored and funded by Maternal and Child Health Bureau, HRSA
- Additional funding by OASPE (2001)
Selected Applications of Data Produced
- Children with special health care needs
- Health care utilization and barriers
- Performance partnership initiatives
- Health insurance coverage State Children's Health Insurance Program
(SCHIP) attitudes and experience
- Characteristics of SCHIP eligible but unenrolled children (2001)
Planned Sample
- State-based samples of children 0-17 years of age
- All 50 states plus DC Detailed interview for children identified with
special needs
- Detailed interview for low-income uninsured children (2001)
- Detailed interview for referent sample (2005-2006)
Race/Ethnicity and SES [1]
- OMB categories
- Income and poverty levels
- Parental education
- TANF participation
Planned Periodicity
- Periodic implemen tation (every 4 years)
FY 2005-2009 Plans
- Data files released (FY 2003)
- Released chartbook and numerous journal articles
- Provision of technical assistance to states
- Focus of an issue of the Maternal and Child Health Journal
- Repeated (CY 2005-2006)
Top of page
National Survey of Children's Health
Data Source/Methods
- Conducted using the SLAITS mechanism
- Telephone interviews
- Statistical adjustments for households without telephones
- Utilizes NIS sample frame
- Sponsored and funded by the Maternal and Child Health Bureau, HRSA
Selected Applications of Data Produced
- Physical, emotional, and dental health
- Health insurance coverage
- Health care utilization and barriers
- Medical home
- Child, family, and neighborhood well-being
- Children with special health care needs
- Performance partnership initiatives
Planned Sample
- State-based samples of children 0-17 years of age
- All 50 states plus DC
Race/Ethnicity and SES [1]
- OMB categories
- Income and poverty levels
Planned Periodicity
- Periodic implementation (every 4 years) subject to funding by sponsor
FY 2005-2009 Plans
- Release public use data files (2005)
- Released chartbook, numerous journal articles
- Provision of technical assistance to states
- Will be repeated (CY 2007)
- Focus of a supplement to Pediatrics
Top of page
National Death Index (NDI)
Data Source/Methods
- State registration areas- death certificates
Selected Applications of Data Produced
- Facilitates epidemiological follow-up studies
- Verification of death for individuals under study
- Optional release of coded causes of death available to users upon request
- Most NCHS surveys are linked to NDI
Planned Sample
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Continue ongoing matching operations
Top of page
National Nursing Home Survey (NNHS)
Data Source/Methods
- Long-term care providers
- Interviews with facility administrators and staff familiar with residents
- For patient level data, respondents refer to facility/medical records
Selected Applications of Data Produced
- Facility-level
- Facility and staffing characteristics
- Facility practices
- Resident-level
- Health status (functional status, diagnoses and conditions)
- Medications
- ED visits and hospitalizations
- End of life care
- Pain assessment, management and relief
Planned Sample
- 1,500 nursing homes
- 18,000 current residents
Race/Ethnicity and SES [1]
Planned Periodicity
- Last conducted in 2004. Period between surveys to be determined.
FY 2005-2009 Plans
- Release preliminary data 2006
- Release public-use data files (2006)
- Release summary statistics and journal articles (2006-2008)
Top of page
National Nursing Assistant Survey (NNAS)
Data Source/Methods
- Sample of nursing assistants (NAs) working in sub-sample of facilities
participating in the 2004 NNHS
- Telephone interviews
Selected Applications of Data Produced
- Characteristics of Nas
- Why NAs remain in the field
- Factors that influence entering/leaving the field
- Factors affecting retention
- Factors that affect workers' attitudes, relationships with managers and
clients, and job satisfaction
Planned Sample
- 690 facilities
- 5,520 nursing assistants
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Revise survey for use in survey of home health aides (2007)
- Release summary statistics, journal articles (2007)
Top of page
National Survey of Residential Care Facilities
Data Source/Methods
- Methods are being evaluated
Selected Applications of Data Produced
- Characteristics of residential care facilities, number and characteristics
of residents along with medical diagnoses and functional status
Planned Sample
- 1,500-2,200 facilities
- Data on 8,000-10,000 residents
Race/Ethnicity and SES [1]
- OMB categories; others (if any) to be determined
Planned Periodicity
- To be fielded first time in 2009; periodicity to be determined
FY 2005-2009 Plans
- Survey design (2006-2008)
- Survey to be fielded (2009)
Top of page
National Survey of Ambulatory Surgery (NSAS)
Data Source/Methods
- Abstract forms completed by facility staff
Selected Applications of Data Produced
- Patient characteristics
- Facility characteristics
- Diagnosis and multiple diagnoses
- Surgical and diagnostic procedures
Planned Sample
- 696 facilities
- 60,000 surgery visits
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
Top of page
National Survey of Adoptive Parents (NSAP)
Data Source/Methods
- Conducted using the State and Local Area Integrated Telephone Survey
(SLAITS) mechanism
- Telephone interview
- Utilized all identified target cases (children adopted from the domestic
foster care system, private domestic adoption, or international adoption)
from the 2005-2006 NS-CSHCN & 2007 NSCH samples (both of which were
statistically adjusted . for non-resp
- Sponsored by DHHS (ASPE and ACF) with technical assistance on
international adoption content provided by the Dept. of State
Selected Applications of Data Produced
- Pre- and post-adoption experiences of parents
- Efficacy of post-adoption supports
- Characteristics of adoptions
- Transracial and/or transcultural adoptions
- Parent and child well-being
- Adoption agreement and post-adoption services (financial)
- Post-adoption supports (non-financial)
Planned Sample
- National sample of adopted children 0 to 17 years of age
- Approximately 2,000 completed interviews (main NSAP sample)
- Approximately 2,000 completed interviews in the referent NSAP sample
(subsample of the 2007 NSCH and 2005-2006 NS-CSHCN cases)
- NSAP referent sample will be asked selected emotional and education
indicators to compare to adopted children in the main sample
Race/Ethnicity and SES [1]
- OMB categories of responding adoptive parent, and any other adoptive
parent living in HH
- Income and poverty levels (from NSCH or NS-CSHCN)
- Program participation (from NSCH or NS-CSHCN)
- Parental employment status of the responding adoptive parent, and any
other adoptive parent living in HH
Planned Periodicity
FY 2005-2009 Plans
- NSAP file will be released only as a stand-alone file with selected NSCH
or NS-CSHCN variable (as applicable) attached
- Anticipate the release of numerous journal articles
Top of page
Top of page
National Home Health Aide Survey (NHHAS)
Data Source/Methods
- Telephone interviews
- Sample of home health aides (HHAs) working in agencies participating in
the 2007 NHHCS
Selected Applications of Data Produced
- Characteristics of HHAs
- Why HHAs remain in the field
- Factors that influence entering/leaving the field
- Factors affecting retention
- Factors that affect workers' attitudes, relationships with managers and
clients, and job satisfaction
Planned Sample
- 1,255 agencies
- 7,000 home health aides
Race/Ethnicity and SES [1]
Planned Periodicity
FY 2005-2009 Plans
- Conduct survey (2007-2008)
- Release public use data files (2009)
- Release summary statistics (2009)
Top of page
National Home and Hospice Care Survey (NHHCS)
Data Source/Methods
- Home health agencies and hospices
- Interviews with administrators and staff familiar with patients
- For patient level data, respondents refer agency/medical records
Selected Applications of Data Produced
- Characteristics of home health agencies and hospices
- Number and characteristics of patients and discharges
- Medical diagnoses and functional status
Planned Sample
- 1,800 home health agencies and hospices
- 6,275 current home health patients
- 6,275 discharged hospice patients
Race/Ethnicity and SES [1]
Planned Periodicity
- Last conducted in 2000. Period between surveys to be determined.
FY 2005-2009 Plans
- Conduct re-designed survey (2007)
- 2007 survey includes new information on: medications, end-of-life care,
staffing, administration, electronic medical records
- Release public use data files (2009)
Top of page
National Health Interview Survey on Disability (NHIS-D)
Data Source/Methods
- Personal interviews
- Follow-up interviews
Selected Applications of Data Produced
- Sensory, mobility, and communication impairments
- Functional limitations
- Personal assistance
- Special education
- Mental health conditions
- Employment and transportation limitations
- Therapeutic services
- Children w/ special health needs
- Post polio syndrome
Planned Sample
- Phase 1 screens 90,000 households
- Phase 2 is a followup of those persons with moderate to severe
disabilities
- Phase 2: approximately 20,400 children and adults in 1994, and
approximately 12,400 children and adults in 1995
Race/Ethnicity and SES [1]
- OMB categories
- Hispanic groups
- API groups
- Family income and poverty level
- Education and occupation
- Type of living quarters
Planned Periodicity
- Special 2-year study in 1994-1995
FY 2005-2009 Plans
- A public use file of polio data from the Disability Followback Survey
(Phase II of the NHIS-D) was released in 2000, the final release of NHIS-D
data
Top of page
National Survey of Early Childhood Health
Data Source/Methods
- Conducted using the State and Local Area Integrated Telephone Survey
(SLAITS) mechanism
- Telephone interviews
- Statistical adjustments for house-holds without telephones
- Utilizes NIS sample frame
- Sponsored by American Academy of Pediatrics (AAP)
- Funded by Gerber Foundation, Maternal and Child Health Bureau and AAP
Selected Applications of Data Produced
- Parents' perceptions of the quality of pediatric care
- Content of anticipatory guidance
- Health care utilization and barriers
- Home safety measures
- Health insurance coverage
Planned Sample
- National sample of children 4-35 months of age
- Oversample of Black non- Hispanic and Hispanic children
Race/Ethnicity and SES [1]
- OMB categories
- Income and poverty levels
- Parental education
- Parental employment status
- WIC participation
Planned Periodicity
- Unspecified periodic implementation subject to funding by sponsors
FY 2005-2009 Plans
- Released public use data files and released summary statistics
- Released supplement to Pediatrics
- Numerous journal articles released
Top of page
Joint
Canada/United States Survey of Health (JCUSH)
Data Source/Methods
- Same questionnaire administered by telephone in 2002-2003 in both
countries, in English or French in Canada, in English or Spanish in U.S.
Selected Applications of Data Produced
- Directly compare U.S. and Canadian estimates on health status, chronic
conditions utilization of health care services, etc.
Planned Sample
- 5,200 U.S. adults
- 3,500 Canadian adults
Race/Ethnicity and SES [1]
- OMB categories in US, in GP in Canada; income, wealth, education
Planned Periodicity
FY 2005-2009 Plans
- Joint data release on Statistics Canada and NCHS' websites, June 2, 2004
Invited Session at 2004 Joint Statistical Meetings in Toronto; numerous
other talks and papers
Top of page
National Asthma Survey
Data Source/Methods
- Conducted using the SLAITS mechanism
- Telephone interviews
- Statistical adjustments for households without telephones
- Utilizes NIS sample frame (and stand-alone NAS sample)
- Sponsored and funded by National Center for Environmental Health, CDC
Selected Applications of Data Produced
- Asthma prevalence rates (national sample only)
- Health care utilization and barriers
- Asthma management and medication use
- Family history of asthma
Planned Sample
- Four state samples and national samples in 2003 of adults and children
Race/Ethnicity and SES [1]
- OMB categories
- Income and poverty levels
- Education
Planned Periodicity
- Last conducted in 2003; there are no plans to repeat this survey
FY 2005-2009 Plans
- Conducted survey (2003)
- Release public use data files (2005)
- Release journal articles, continue analyses
Top of page
Second
Supplement of Aging
Data Source/Methods
- Personal interviews
- Linked administrative records data from NDI, cause-of-death, CMS, and SSA
Selected Applications of Data Produced
- Functional status
- Living arrangements
- Use of hospitals and nursing homes
- Death rates by social, economic, family and health characteristics
Planned Sample
- 9,447 persons age 70 and over at the time of Phase 2 of NHIS-D (1994-1996)
Race/Ethnicity and SES [1]
- OMB categories
- 4 Hispanic groups
- Education
- Type of housing
- Occupation & retirement
- Income & income sources
Planned Periodicity
- Cross-sectional survey, serves as a baseline to the LSOA II
FY 2005-2009 Plans
- Ongoing record matches with the NDI, cause-of-death, CMS Medicare files,
and SSA benefit data
Top of page
Second
Longitudinal Studing of Aging (LSOA II)
Data Source/Methods
- Telephone Interviews
- Linked administrative records data from NDI, cause-of-death, CMS, and SSA
Selected Applications of Data Produced
- Changes in functional status, chronic conditions, comorbidity
- Causes and consequences of change
- Living arrangements, social support
- Health care coverage and utilization
- Death rates by social, economic, family, and health characteristics
Planned Sample
- 9,447 persons age 70 and over at the time of Phase 2 of NHIS-D (1994-1996)
Race/Ethnicity and SES [1]
- OMB categories
- 4 Hispanic groups
- Education
- Type of housing
- Occupation and retirement
- Income and income sources
Planned Periodicity
- Baseline plus 2 follow-up waves, each at 2-year intervals
FY 2005-2009 Plans
- Ongoing record matches with the NDI, cause-of-death, CMS Medicare files,
and SSA benefit data
Top of page
Notes
- OMB categories include white, black or
African-American, Asian, Native Hawaiian and other Pacific Islanders,
American Indian or Alaska Native. Hispanic origin is asked as a separate
question.
Page Last Modified:
November 20, 2008