Sotos Syndrome Support Association
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Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
Tel: 888-246-7772
EMail: sssa@well.com
http://www.well.com/user/sssa
Description: Non-profit organization that offers an information clearinghouse and support network for families affected by Sotos Syndrome, or cerebral gigantism.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.
P.O. Box 4626
Wheaton, IL 60189
Tel: 888-246-7772
EMail: sssa@well.com
http://www.well.com/user/sssa
Description: Non-profit organization that offers an information clearinghouse and support network for families affected by Sotos Syndrome, or cerebral gigantism.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.
National Institute of Neurological Disorders and Stroke
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