Von Hippel Lindau Family Alliance

Von Hippel Lindau Family Alliance
2001 Beacon Street
Suite 208
Boston,  MA  02135-7877
Tel: 617-277-5667 800-767-4VHL (4845)
Fax: 858-712-8712
EMail: info@vhl.org
http://www.vhl.org

Description: Patient and family support and education organization that offers regional chapters and support meetings. Publishes several brochures, a handbook, and a newsletter.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.