MDCC June 25, 2007 Meeting Agenda

7:30 am
Continental Breakfast

8:00 am
Welcome, Introductions, and Conflict of Interest Statement
Stephen Katz, NIAMS and John Porter, NINDS

MDCC Member Action Plan Activity Reports

8:15 am
NIH Action Plan Report - John Porter, NINDS

8:35 am
NIH RFA: Nuclear Structure-Function Defects in the Pathogenesis of Muscular Dystrophy
John Porter, NINDS, Glen Nuckolls, NIAMS, and Sharon Hesterlee, MDA

8:45 am
Wellstone Muscular Dystrophy Cooperative Research Centers
Activity Report and Plans for New RFA
Glen Nuckolls, NIAMS

9:05 am
CDC Action Plan Report
Pamela Costa, CDC

9:25 am
FSH Society Action Plan Report
Daniel Perez, FSH Society

9:45 am
Break

10:00 am
DoD CDMRP Action Plan Report
Melissa Kaime, CDMRP

10:20 pm
MDA Action Plan Report
Sharon Hesterlee, MDA

10:40 am
NIDRR Action Plan Report
Steven Tingus, NIDRR

11:00 am
PPMD Action Plan Report
Patricia Furlong, PPMD

11:20 am
Action Plan Report
Michele Lloyd-Puryear, HRSA

11:40 am
Lunch

12:10 pm
Discussion: (a) Roles of Other MDCC Agencies/Organizations and (b) Scientific Gaps Within and Beyond the Action Plan for the Muscular Dystrophies

New Initiatives and Partnerships

12:50 pm
Interface with European Efforts in Muscular Dystrophy (DRCI & TREAT-NMD
Sharon Hesterlee, MDA

1:20 pm
CDC Muscular Dystrophy Registry Initiative
Pamela Costa, CDC

1:50 pm
Common Data Elements for Clinical Studies in Muscular Dystrophy
Giovanna Spinella, ORD and PPMD and Laurie Gutmann, NINDS

2:20 pm
Introduction to the NIH Workshop on Translational Research in Muscular Dystrophy
Kathy Mathews, Univ. of Iowa and John Porter, NINDS

2:40 pm
Open Discussion/Public Comment Period

3:15 pm
Adjourn