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Fiscal Year 2009 Performance Appendix
 

PRIMARY HEALTH CARE

Programs included in this section are:

Health Centers

# Key Outcomes FY
2004 Actual
FY
2005 Actual
FY 2006 FY 2007 FY
2008

Target
FY
2009

Target
Out-Year Target
Target Actual Target Actual
Long-Term Objective:  Increase the utilization of preventive health care and chronic
disease management services, particularly among underserved, vulnerable and special
needs populations.
1.
II.B.2
Rate of births less than 2500 grams (low birth weight) to prenatal Health Center patients compared to the national low birth weight rate [Baseline – 2005] -13.2% -11.0% -11.0% -7.2% -11.0% Nov-08 -11.0% -11.0% 2014: 11.0%
1.
II.B.3
Percentage of adult Health Center patients with diagnosed hypertension whose blood pressure is under adequate control (less than or equal to 140/90) [Baseline – 2005] 42.7% 42.7% 42.7% 44.4% 42.8% Aug-08 42.9% 43.0% 2014: 45.0%
1.
II.B.4
Percentage of adult Health Center patients with type 1 or 2 diabetes with most recent hemoglobin A1c (HbA1c) under control (less than or equal to 9%) [Baseline – 2008]. (Developmental)             Aug-09 Aug-10 TBD

#

Key Outputs

FY
2004 Actual

FY
2005

Actual

FY 2006

FY 2007

FY
2008 Target/ Est.

FY
2009 Target/ Est.

Out-Year Target/ Est.

Target/ Est.

Actual

Target/ Est.

Actual

Long-Term Objective:  Expand the capacity of the health care safety net.

1.

I.

A.1

Number of patients served by Health Centers (in millions) [Baseline – 2005]

13.1

14.1

14.62

15.0

16.1 a

Aug-08

16.75

17.05

2014:

18.8

1.

D.1.

A.2

Total new or expanded sites

129

158

121

122

302 a

337

62

40

 
Long-Term Objective: Increase the utilization of preventive health care and chronic disease management services, particularly among underserved, vulnerable and special needs populations.

1.

II.

B.1

Percentage of pregnant Health Center patients beginning prenatal care in the first trimester

60.9%

60.4%

61.4%

61.3%

61.9%

Aug-09

61.5%

61.6%

 
Long-Term Objective:  Expand the availability of health care, particularly to underserved,
vulnerable, and special needs populations

1.

II.

A.1

Percentage of Health Center patients who are at or below 200% of poverty

(number in millions)

91.1%

11.96

91.5%

12.93

86%

12.57

91.9%

13.81

86%

13.85

Aug-08

86%

14.4

86%

14.6

 

1.

II.

A.2

Percentage of Health Center patients who are racial/ethnic minorities

(number in millions)

63.5%

8.34

64%

9

64%

9.35

64%

9.57

64%

10.3

Aug-08

64%

10.7

64%

10.9

 

1.

II.

A.3

Percentage of Health Center patients who are uninsured (number in millions)

40.1%

5.3

40%

5.6

41%

5.99

40%

5.99

41%

6.6

Aug-08

41%

6.86

41%

6.9

 
Long-Term Objective Expand the capacity of the health care safety net.
1.
I.
A.2
Percentage of grantees that provide the following services either on-site or by paid referral:
a) Pharmacy
84% 85% 83% 83% 83% Aug-08 83% 83%  
b) Preventive Dental Care 82% 84% 82% 83% 82% Aug-08 82% 82%  
c) Mental Health/Substance Abuse 75% 77% 74% 79% 74% Aug-08 74% 74%  
Efficiency Measure
1.E Percentage increase in cost per patient served at Health Centers 5.3% 2.1% 5.4% 4.6% 5.3% Aug-08 5.6% 5.8%  
blank Appropriated Amount
($ Million)
$1,617.9 $1,734.8   $1,785.0   $1,988.0 $2,065.0 $2,091.8  

Notes:
a FY 07 target differs from that shown in the FY 08 Congressional Justification due to a higher than expected continuing resolution funding level. The FY 07 target may differ from that shown in budget narrative tables. Whereas budget narrative tables are continually updated, performance reporting guidelines do not permit (except as noted above) changing a previously established target for the “reporting” year.
b FY 08 and 09 targets differ from those established during the FY 07 OMB PART reassessment to reflect expected budget levels.

INTRODUCTION

Health Centers are community-based and patient-directed organizations that serve populations lacking access to high quality, comprehensive, and cost-effective primary health care. The Health Center Program’s performance measures help the Program track progress in reaching HRSA’s Strategic Plan goals of improving access to care, improving the quality of care, and improving health outcomes.  The more specific HRSA objectives the Program aims to achieve include: increase the utilization of preventive health care and chronic disease management services, expand the availability of health care, and expand the capacity of the health care safety net. The Health Centers Program has funded new and expanded Health Center organizations as a major strategy to reaching performance goals relating to the numbers of patients served and their demographic mix. Efforts to achieve other performance goals involve strategies that include: sharing best practices so that health centers learn from one another what works in improving performance; providing technical assistance and training on issues such as quality improvement and risk management; enhancing health information technology assistance; and support of a unique model of health care delivery that emphasizes prevention, health-related enabling services, outreach, follow-up, and cultural competency.

DISCUSSION OF RESULTS AND TARGETS

Long-Term Objective: Increase the utilization of preventive health care and chronic disease management services, particularly among underserved, vulnerable and special needs populations.

1.II.B.2. Rate of births less than 2500 grams (low birth weight) to prenatal Health Center patients compared to the National low birth weight rate.

Appropriate prenatal care management can have a significant effect on the incidence of low birth weight (LBW) which is the risk factor most closely associated with neonatal mortality. In turn, improvements in infant birth weight can contribute significantly to reductions in infant mortality rates. This measure reflects both on quality of care and health outcomes for Health Center women of child-bearing age, a key group served by the program.

This measure is benchmarked to the national rate to demonstrate how Health Center performance compares to performance of the nation overall. The goal is to achieve a rate 11% below the national average even as Health Centers continue to serve a higher-risk prenatal population than represented nationally in terms of socio-economic status, health status and other risks factors that might predispose Health Center patients to higher risk for low birth weight and adverse birth outcomes.

In 2006, 7.7 percent of Health Center patients had low birth weight infants, a rate that was 7.2 percent lower than seen nationally (8.3 percent 2006 national low birth weight rate). In addition, Health Center low birth weight rates have continued to follow a steady pattern at about 7%, unlike increases observed in the national rate. As indicated above, the FY 09 target is to achieve a rate of 11% below the national rate, as previously achieved in 2005.

1.II.B.3. Percentage of adult Health Center patients with diagnosed hypertension whose blood pressure is under adequate control (less than or equal to 140/90).

Health Center patients, including low-income individuals, racial/ethnic minority groups and persons who are uninsured, are more likely to suffer from chronic diseases such as hypertension and diabetes. Clinical evidence indicates that access to appropriate care can improve the health status of patients with chronic diseases and thus reduce or eliminate disparities.

This measure focuses on quality of care and improved health outcomes for one of the most prevalent chronic conditions facing Health Center patients, hypertension. Clinical evidence indicates that controlling blood pressure (hypertension) can reduce the health risk associated with the conditions such as heart disease and stroke. An analysis of billing data reported in the UDS over a five year period from 2001-2006, indicates a steady increase in the percentage of patients with a primary diagnosis of hypertension during the reporting year (13.9% to 15.3%).

In 2004 and 2005, 42.7% of hypertensive Health Center patients had their blood pressure under control. In 2006, the figure was 44.4%, exceeding the target. The FY 08 and FY 09 targets are 42.0% and 43%, respectively. Targets for the measure are particularly ambitious as they propose to demonstrate improvements in a chronic condition that requires treatment with both lifestyle modifications, usually as the first step, and, if needed, with medications. Lifestyle factors to treat high blood pressure include weight control, exercise, healthy diet, limiting alcohol use, and other lifestyle modifications that are often challenging interventions that improve only slowly over time. National data supports this as according to CDC data for 1999-2002, only 32% of adults demonstrated adequate high blood pressure control.

This measure replaces a previous, related measure in which control of hypertension was self-reported via the periodic Health Center User Survey last conducted in 2002. Currently data for this new measure is reported by a subset of grantees participating in the Health Disparities
Collaboratives. Future progress on the measure will be reported annually by all grantees via the Uniform Data System (UDS) beginning in 2009.

1.II.B.4. Percentage of adult Health Center patients with type 1 or 2 diabetes with most recent hemoglobin A1c (HbA1c) under control.

This measure also focuses on quality of care and improved health outcomes for one of the most prevalent chronic conditions facing Health Center patients, diabetes. An analysis of billing data reported in the UDS over a five year period from 2001-2006, indicates a steady increase in the percentage of patients with a primary diagnosis of diabetes during the reporting year (5.6% to 7.1%).

Uncontrolled diabetes can lead to non-traumatic amputations, blindness, end-stage renal disease, and hospitalizations for diabetes-associated cardiovascular disease. These and other health problems associated with diabetes contribute to an impaired quality of life, substantial disability among people with diabetes and resulted in an estimated $92 billion in direct costs nationally in 2002.

Clinical evidence indicates that controlling blood glucose through such activities as chronic care management provided in Health Centers benefits people with either type 1 or type 2 diabetes. In general, for every 1% reduction in results of A1C blood tests (e.g., from 8.0% to 7.0%), the risk of developing eye, kidney, and nerve disease is reduced by 40%.

This measure is developmental and future progress will be monitored and reported annually by all grantees via the Uniform Data System (UDS) beginning in 2009. The FY 09 target will be established after the collection of baseline data.

Long-Term Objective: Expand the capacity of the health care safety net

1.I.A.1. Number of patients served by Health Centers

Monitoring the number of patients served annually by Health Centers is key to assessing the program’s performance in increasing access to care for underserved and vulnerable populations. Not only do Health Center patients gain access to care, they gain access to a comprehensive health care home (also referred to as medical home). A health care home is a regular/usual, continuous, and patient-centered source of primary care, such as that offered by Health Centers. A health care home prevents sickness, manages chronic illness, and reduces the need for avoidable, costlier care such as emergency room visits and hospitalizations. This is key as an estimated 56 million Americans lack access to a health care home because they live in communities where there is an acute shortage of primary care providers. The lack of such physicians is associated with higher mortality rates and health care disparities. (The National Association of Community Health Centers (NACHC) and the Robert Graham Center: 2007).

The number of patients served by Health Centers reached 13.1 million in 2004 and 14.1 million in 2005. The 15 million patients served by Health Centers in 2006 exceeds the target by over 380,000 patients and is almost 1 million additional patients than served in 2005. The growth in number of patients served has been fueled by the President’s Health Centers Initiative which was designed to impact communities across the Nation through the support of new access points and significantly expanded sites. Based on final FY 07 appropriation amounts, Health Centers are projected to serve 16.1 million patients by the end of 2007 and reach 17.05 million patients by the end of 2009.

1.D.I.A.2. Total number of new or expanded sites

As a result of FY 07 activities, Health Center patients were served through 4,033 comprehensive primary care delivery sites. The Health Center Program supported a total of 122 new and expanded sites in FY 06 and 337 new and expanded sites in FY 07, exceeding the targets. The Program has accomplished its goal of establishing 1,200 new or expanded sites since 2002. The program anticipates supporting 40 new and expanded sites in FY 09.

Long-Term Objective: Increase the utilization of preventive health care and chronic disease management services, particularly among underserved, vulnerable and special needs populations.

1.II.B.1. Percentage of pregnant Health Center patients beginning prenatal care in the first trimester

Monitoring timely entry into prenatal care assesses both quality of care as well as Health Center outreach efforts and focuses on a process that is associated with improving birth outcomes. Identification of maternal disease and risks for complications of pregnancy or birth during the first trimester can help reduce the risk of low birth weight. Results over the past few years demonstrate improved performance as the percentage of pregnant Health Center patients that began prenatal care in the first trimester grew from 57.8 percent in 2000 to 61.3 percent in 2006, virtually meeting the target.

It should be noted that Health Centers serve a higher risk prenatal population than seen nationally and targets for this measure propose an ambitious steady increase in the percentage of women beginning first trimester prenatal care. Specific characteristics more prevalent in the Health Center population that are also associated nationally with late entry into prenatal care include serving a higher proportion of:

  • Transient populations such as migrant and homeless women;
  • Teen prenatal patients (19% of Health Center prenatal patients are teens as compared to
    10% nationally); and
  • Racial and ethnic minorities that nationally also often have late or no entry into prenatal
    care programs (3rd trimester entry is highest in Black/African American (6%) and
    American Indian or Alaska Native (7.7%) populations) as compared to non-Hispanic
    Whites (2.1%) (Martin JA, Hamilton BE, Sutton PD, et al. National Center for Health
    Statistics: 2006)

Based on appropriation amounts, the Health Center program anticipates increasing the percentage of pregnant patients beginning prenatal care in the first trimester to 61.5% in 2008 and 61.6% in 2009.

Long-Term Objective: Expand the availability of health care, particularly to underserved, vulnerable, and special needs populations

1.II.A.1. Percentage of Health Center patients who are at or below 200% of poverty

To improve the health status of the nation’s underserved communities and vulnerable populations, safety-net programs must target access to care for people of low income. According to 2006 UDS Health Center data, nearly 92% of patients were at or below 200 percent of the Federal Poverty Level. The total number (13.81 million) of individuals at or below 200 percent of poverty served in 2006 is nearly 10% above the target (12.57 million). The percentage of patients at or below 200% of poverty has risen for the eleventh year for which UDS data have been collected. The FY 09 target is to serve at least 86% of Health Center patients at or below 200% of poverty.

1.II.A.2. Percentage of Health Center patients who are racial/ethnic minorities

To improve the health status of the nation’s underserved communities and vulnerable populations, safety-net programs must target access to care for people of racial/ethnic minority groups. According to UDS Health Center data, in CY 06 the population served was 23.0% African American (AA), 36.1 percent Hispanic, and 4.5 percent Asian/Other for a rounded total of 64%, meeting the target. These percentages represent almost twice the percentage of African Americans and over two and a half times the percentage of Hispanics reported in the overall U.S. population. It is currently estimated that the percentage of minority patients will hold steady at about two-thirds of all patients served. The FY 09 target is 64%.

1.II.A.3. Percentage of Health Center patients who are uninsured

To improve the health status of the nation’s underserved communities and vulnerable populations, safety-net programs must also target access to care for people who are uninsured. According to UDS Health Center data, in CY 06 the population served included almost 6 million uninsured individuals, which was nearly 40% of the client population served, just slightly below the target.

  • Over one quarter of the children served by Health Centers are uninsured.
  • Almost one half of adult Health Center patients are uninsured.
  • About three quarters of Health Center patients are either uninsured or Medicaid recipients.

In comparison, nationally, research reveals that caseloads of private physicians in the primary care specialties include 4% uninsured and 7% Medicaid for a total of 11% (National Ambulatory Medical Care Survey: 2001), down from the 19% in the previous study (National Ambulatory Medical Care Survey: 1998). Additional reports note that:

  • The percentage of physicians providing any free or reduced cost care decreased to 68.2 percent in 2004-05 from 71.5 percent in 2000-01.
  • Their overall number of charity care hours per 100 uninsured people also declined from 7.7 hours in 1996-97 to 6.3 in 2004-05, an 18 percent decline (Cunningham P and May J, Center for Studying Health System Change: 2006).
  • Physicians also limited the number of new Medicaid and uninsured patients in their practice. In 2001, approximately one-fifth of physicians were not accepting any new Medicaid patients, and 16 percent were not accepting any new uninsured patients (Cunningham P, Center for Studying Health System Change: 2002).

At the same time, the number of uninsured in the nation has increased steadily from 38.7 million in 2000 to nearly 47 million or 15.8% of the US population in 2006 (U.S. Census Bureau). In 2004- 2006, 40% of Health Center patients were uninsured, falling slightly below the targets of 41%. The FY 09 target is 41%.

At Health Centers, efforts to increase SCHIP enrollment through outreach have shifted a major portion of uninsured children to the publicly-insured. Nearly 37% of all Health Center patients are children and the percentage of uninsured children has decreased from 35% in 1999 to approximately 26% in 2006. However, the program is still committed to continuing to increase the number of uninsured served proportional to Health Center growth. Indeed, while the number of uninsured Health Center patients increased by only 150,000 per year between 1998 and 2001, it increased by nearly 500,000 in 2003, by nearly 400,000 in 2004, by over 350,000 in 2005, and by more than 365,000 in 2006.

Long-Term Objective: Expand the capacity of the health care safety net.

1.I.A.2. Percentage of grantees that provide the following services either on-site or by paid referral: Pharmacy, Preventive Dental Care, and Mental Health/Substance Abuse

Access to pharmacy, oral health, and mental health/substance abuse (MH/SA) services is critical to ensuring overall health and well-being of Health Center populations. Inadequate access to pharmacy services often leads to problems with drug interactions, inappropriate doses, and failure to adhere to prescribed therapy. Lack of access to oral health care services is the primary reason for significant disparities in oral health status among vulnerable populations. MH/SA disorders, such as depression and abuse of alcohol are prevalent among underserved populations, and treatment is not accessible in many local communities. Of the 1002 grantees reporting in 2006, 83% reported that they provided pharmacy services either on-site or by paid referral. The figures for dental care and mental health/substance abuse services were 83% and 79%, respectively. The percentage of Health Centers providing these services on site or by paid referral met or exceeded their respective 2006 targets. The FY 09 targets therefore reflect maintaining current levels of these services.

1.E. Percentage increase in cost per patient served at Health Centers

This efficiency measure focuses on maximizing the number of Health Center patients served per dollar. It also monitors Health Center performance in keeping cost increases below annual national health care cost increases while maintaining access to high quality services. The efficiency measure also utilizes a metric that speaks to the program as a whole. By looking at growth in total cost per patient, the full complement of services that make Health Centers a "health care home" are captured. Total cost includes all financial costs (excluding donations) for: Medical, Lab and X-Ray, Dental, Mental Health, Substance Abuse, Pharmacy and Enabling Services (translation, transportation, case work, outreach, etc.).

In 2005, the average cost per patient served at Health Centers grew by only 2.1 percent and in 2006, while costs grew at a slightly higher rate (4.6%), performance not only met but was under the target growth rate of 5.4%. This is about 33 percent below the 6.8 percent projected growth rate for national health expenditures in 2006. In fact, in the past 4 years, cost increases at Health Centers have been at least 20 percent below national cost increases. By restraining increases in the cost per individual served at Health Centers below national per capita health care cost increases, the Health Center Program has served a volume of patients that otherwise would have required additional funding to serve and demonstrates that it delivers its high quality services at a more cost-effective rate. Given recent performance of the program, annual targets in growth are set at 20 percent below forecasted national rates. Successful restraint of the cost per individual served at Health Centers below national per capita health care cost increases may, in part, be related to the Health Centers’ strategic use of a multi- and interdisciplinary team model of care that treats the “whole patient,” with a focus on continuity of primary care and enabling services.

TARGETS SUBSTANTIALLY EXCEEDED OR NOT MET

Measure: Rate of births less than 2500 grams (low birth weight) to prenatal Health Center patients compared to the national low birth weight rate.
FY 06 target: 11.0% below national low birth weight rate
FY 06 result: 7.2% below national low birth weight rate

This measure is benchmarked to the national rate to demonstrate how Health Center performance compares to performance of the nation overall. In 2005, 7.3 percent of Health Center patients had LBW infants, a rate that was 11 percent lower than seen nationally (8.2 percent - 2005 national LBW rate). While the incidence of LBW rates fell slightly for health center prenatal patients in 2006, separation between the Health Center’s rate and the national rate was only 7.2 percent, (8.3 percent -2006 preliminary national LBW rate).

The program serves a prenatal care population at higher risk than that seen nationally. With the extensive expansion of health center services since 2002 through the development of new health center sites, more high risk prenatal patients who were previously underserved are being served, thus impacting the level of this rate. While the Program addresses LBW through the implementation of preventive prenatal health care in new organizations, there will be a delay before the benefit of these efforts is realized. The Program will take the following to address this issue:

  • Technical assistance to health centers on the delivery of quality health through State Primary Care Associations.
  • Outreach to patients to encourage timely entry into prenatal care, and patient education on healthy behaviors that can impact birth weight.
  • Information to clinicians to help them in the identification of maternal disease and risks for complications of pregnancy or birth during the first trimester.

    Despite the recent slight increase in LBW, results over the past few years demonstrate that Health Center patients have continued to follow a steady LBW pattern at about 7 percent, unlike increases observed in the national rate (Source: Hamilton BE, Martin JA, Ventura SJ. Births: Preliminary data for 2006. National vital statistics reports; vol. 56 no. 7. Hyattsville, MD: National Center for Health Statistics. 2007) The Program will continue its effort to remain below the national LBW rate, while serving a higher-risk prenatal population than seen nationally.


Free Clinics Medical Malpractice

# Key Outcomes FY 2004 Actual FY 2005 Actual FY 2006 FY 2007 FY 2008
Target
FY 2009
Target
Out-Year Target
Target Actual Target Actual
Long-Term Objective:  Expand the capacity of the health care safety net
2.I.A.1 Increase the number of volunteer free clinic health care providers deemed eligible for FTCA malpractice coverage. [Baseline - 2005]   657 1,350 1,657 1,950 Nov-08 2,500 3,100  
2.1 Patient visits provided by free clinics sponsoring volunteer FTCA-deemed clinicians. Developmental             TBD TBD TBD
# Key Outputs FY 2004 Actual FY 2005
Actual
FY 2006 FY 2007 FY 2008 Target/ Est. FY 2009 Target/ Est. Out-Year Target/ Est.
Target/ Est. Actual Target/ Est. Actual
Long-Term Objective:  Expand the capacity of the health care safety net
2.I.A.2 Number of free clinics operating with FTCA-deemed volunteer clinicians.            [Baseline - 2005]   38 55 65 70 Mar-08 85 105 2011:135
2.I.A.3 Percent of volunteer FTCA-deemed clinicians who meet certification and privileging requirements. [Baseline - 2005]   100% 100% 100% 100% Mar-08 100% 100%  
Efficiency Measure
2.E Administrative costs of the program per Federal Tort Claims Act (FTCA) -covered volunteer[Baseline – 2004]   $221 $281 $331 $204 Mar-08 $195 a $190  
 Appropriated Amount
($ Million)
$4.8 $.099   $.040   $.041 $.040 $.040  


Notes:
a FY 08 target differs from that shown in the FY 08 Congressional Justification as it has been adjusted to include the projected need for additional quality assurance resources.

INTRODUCTION

The Free Clinics Program encourages health care providers to volunteer their time at free clinics by providing medical malpractice protection at sponsoring health clinics, thus expanding the health care safety net, which is a HRSA strategic objective. The Program’s performance measures track progress in achieving this objective. The program uses the data from its annual measures to track and assess program expansion. The data include the locations of Free Clinics that have applied for FTCA-deemed volunteer clinicians. The key strategy used to meet performance targets is to determine areas with few for no applications and then target these areas for outreach about the program.

DISCUSSION OF RESULTS AND TARGETS

Long-Term Objective: Expand the capacity of the health care safety net

2.I.A.1. Number of volunteer free clinic health care providers deemed eligible for FTCA malpractice coverage.

This measure examines program participation by volunteer health professionals. In 2005, the first year that the program began covering providers, 657 providers were successfully deemed eligible for FTCA coverage. This number more than doubled in the second year of the program, exceeding the target by deeming over 1,600 volunteer providers in 2006. The program aims to deem 3,100 volunteer health care providers by the end of 2009.

2.1. Patient visits provided by free clinics sponsoring volunteer FTCA-deemed clinicians. (Developmental)

This developmental measure tracks the volume of visits performed by volunteer clinicians at free clinics that choose to sponsor these health professionals for FTCA coverage as an indicator of increased patient capacity. The program is currently revising its application materials to collect these data from free clinic applicants and anticipates having data available in 2009.

Long-Term Objective: Expand the capacity of the health care safety net

2.I.A.2. Number of free clinics operating with FTCA-deemed volunteer clinicians.

This measure demonstrates the extent to which free clinics are participating in the program. In 2005, the first year that the program began deeming providers, 38 free clinics were operating with FTCA-deemed volunteer clinicians. In 2006, performance exceeded the target, with 65 clinics operating with FTCA-deemed volunteers. By 2009, the program anticipates having 105 clinics operating with FTCA-deemed volunteers.

2.I.A.3. Percent of volunteer FTCA-deemed clinicians who meet certification and privileging requirements.

This indicator reflects the quality of services provided by the deemed health professionals volunteering at participating free clinics as measured by the percentage meeting licensing and certification requirements. Performance continues to meet the target with 100% of FTCA-deemed clinicians meeting appropriate requirements. The FY 09 target is 100%.

2.E. Administrative costs of the program per Federal Tort Claims Act (FTCA)-covered volunteer

By restraining the annual Federal administrative costs necessary to deem each provider, the program will be able to provide an increasing number of clinicians with malpractice coverage, thus building the free clinic workforce capacity nationwide and increasing access to care for the
vulnerable populations served by these clinics. In 2005, the first year that program began deeming providers, the cost per provider deemed was $221.

The 2006 target included a projected one-time increase due to new contractor costs, substantial redeeming application activities, increased technical assistance, potential claims administration and outreach assistance. The actual cost per provider deemed in FY 06 of $331 was higher than projected. The size of this increase in cost is estimated to be a one-time occurrence and future targets reflect the program's projection of steady and ongoing increases in efficiency. The FY 09 target is $190.

NATIONAL HANSEN'S DISEASE PROGRAM

# Key Outcomes FY 2004 Actual FY 2005 Actual FY 2006 FY 2007 FY 2008
Target
FY 2009
Target
Out-Year Target
Target Actual Target Actual
Long-Term Objective: Expand the availability of health care, particularly to underserved, vulnerable, and special needs populations
3.II.A.1 Prevent increases in the level of Hansen's Disease-related disability and deformity among patients treated and managed by the National Hansen’s Disease Program (NHDP) (Percentage of patients at grades 1 and 2).

[Baseline – 2002]
56% 51% 50% Nov-08 50% Nov-09 50% 50% 2013: 50%
Long-Term Objective: Promote effectiveness of health care services
3.III.A.1 Develop an animal model for the full spectrum of clinical complexities of human Hansen’s Disease.     

[Baseline – 2006]
    BRM-1 BRM-1 BRM-2CM-1 Mar-08 BRM-3CM-2,3 BRM-4CM-4 2013: Produce relevant animal model
Notes: BRM = biological response modifiers; CM = cell markers (CM).
# Key Outputs FY 2004 Actual FY 2005
Actual
FY 2006 FY 2007 FY 2008 Target/ Est. FY 2009 Target/ Est. Out-Year Target/ Est.
Target/ Est. Actual Target/ Est. Actual
Long-Term Objective:  Expand the availability of health care, particularly to underserved, vulnerable, and special needs populations
3.II.A.2. Number of private sector physicians who have received training from the NHDP.

[Baseline – 2004]
23 12 35 35 40 135 45 50  
3.II.A.3. Continue to provide outpatient care for Hansen’s Disease patients through the National Hansen’s Disease Program. 

[Baseline – 2003]
3,000 3,000 3,000 3,000 3,000 Nov-08 3,000 3,000  
Efficiency Measure
3.E Maintain increases in the cost per patient served in the outpatient clinics to below the medical inflation rate.    $1,456 $1,526 $1,366 $1,599 Mar-08 $1,676 $1,756  
Appropriated Amount a

($ Million)
$19.6 $19.5   $18.2   $18.2 $17.8 $18.2  

Notes:
a The “Appropriated Amount” differs from that shown in the CJ budget narrative, because the CJ table includes amounts for the Hansen’s Disease Center and excludes Payment to Hawaii and Buildings and Facilities. This appendix table includes amounts for the Hansen’s Disease Center, Payment to Hawaii and Buildings and Facilities.

INTRODUCTION

The Hansen’s Disease Program is the only dedicated provider of expert Hansen’s disease treatment services in the United States, a crucial source of continuing education for providers dealing with the identification and treatment of the disease, and a major source of research on Hansen’s disease. The Program’s performance measures reflect the major activities of the program and are linked to the broader HRSA strategic objectives of expanding the availability of health care, particularly to underserved, vulnerable, and special needs population; and promoting the effectiveness of health care. Strategies for achieving the program’s performance goals include ongoing support for ambulatory care clinics that focus on case management and patient compliance, and the identification of opportunities for training groups of private physicians in the geographic areas most impacted by the disease on the diagnosis and management of Hansen’s disease.

DISCUSSION OF RESULTS AND TARGETS

Long-Term Objective: Expand the availability of health care, particularly to underserved, vulnerable, and special needs populations

3.II.A.1. Level of Hansen's Disease-related disability and deformity among patients treated and managed by the NHDP.

Hansen’s Disease is a life-long chronic condition which left untreated and unmanaged will usually progress to severe deformity. As this deformity is generally irreversible, both the annual and long-term measure track the impact of the program’s case management efforts as well as patient compliance on the prevention of further deterioration to a higher grade of disability/deformity.

Through this annual and long-term measure the program will monitor its efforts to prevent an increase of the percentage of Hansen’s Disease patients with grades 1 or 2 disability/deformity. Disability/deformity is measured based on the World Health Organization scale, which ranges from 0-2. Patients graded at 0 have protective sensation and no visible deformities. Patients graded at 1 have loss of protective sensation and no visible deformity. Patients graded at 2 have visible deformities secondary to muscle paralysis and loss of protective sensation. In 2004, 56 percent of patients had grades 1 or 2 disability/deformity. It is expected that both the program’s existing case management efforts as well as its activities to train more private sector physicians to recognize Hansen’s Disease and initiate treatment earlier, will help prevent further increases in the level of disability/deformity among Hansen’s patients.

Long-Term Objective: Promote effectiveness of health care services

3.III.A.1. Development of the armadillo as an animal model for the full spectrum of clinical complexities of human Hansen’s Disease

The National Hansen’s Disease Program (NHDP) seeks to prevent and manage Hansen’s Disease (leprosy) through both clinical care and scientific research. As an annual and long-term measure, this indicator monitors advances in scientific knowledge related to the early diagnosis, treatment, and prevention of Hansen’s Disease and the NHDP’s performance in achieving breakthroughs in genomic and molecular biology.
The measure focuses on the development of an animal model (the armadillo) for the full spectrum of clinical complexities of human Hansen’s Disease. This is the only other species besides man to naturally acquire Hansen’s Disease and currently, no such model for human leprosy exists. Once the animal model is developed, potential advances in scientific knowledge related to questions associated with pathogenesis, early diagnosis, vaccine development, and transmission of Hansen’s Disease can be further explored.

The annual measure specifically tracks development of six protective biological response modifiers (BRMs) and six white blood cell subtype markers (CMs) that are important in host resistance to Hansen’s Disease and will ultimately permit development of the full animal model for human Hansen’s Disease. In 2006, the program met its target and developed the first of the 12 reagents needed to produce a relevant animal model (armadillo). The targets are to develop BRM-3 and CM-2,3 in FY 08 and BRM-4 and CM-4 in FY 09.

Long-Term Objective: Expand the availability of health care, particularly to underserved, vulnerable, and special needs populations

3.II.A.2. Number of private sector physicians who have received training from NHDP.

Early diagnosis and treatment helps reduce Hansen’s Disease-related disability and deformity. This can only be achieved if there are enough healthcare providers in the U.S. with knowledge of the disease and access to the support provided by NHDP though its function as an outpatient clinic, training education, and referral center for Hansen’s Disease patients. Increasing knowledge about Hansen’s Disease in the U.S. medical community should lead to earlier diagnosis and intervention, resulting in a decrease in Hansen’s Disease-related disabilities.

In 2007, the NHDP exceeded its program performance target of 40, and trained 135 private sector physicians. The FY 08 target is 45 and the FY 09 target is 50, reflecting the current assessment of training opportunities. A national promotion effort targeted at physicians whose practice may include individuals with Hansen’s Disease (e.g., dermatologists) is underway, as well as training healthcare providers in targeted areas where clusters of newly diagnosed cases are appearing.

3.II.A.3. Continue to provide outpatient care for Hansen’s Disease patients through the National Hansen’s Disease Program.

The National Hansen’s Disease Program includes a regional outpatient clinic program. The HD population in the U.S. is approximately 6,000. Currently there are an estimated 3,000 patients cared for through the National Hansen’s Disease Program through outpatient clinics in the area in which they live. Actual performance for FY 05 met the target. The FY 08 and FY 09 target is 3,000.

3.E. Maintain increases in the cost per patient served in the outpatient clinics to below the medical inflation rate.

Hansen’s Disease outpatient care supports treatment protocols for multi-drug therapy, diagnostic studies, consultant ancillary medical services, clinical laboratory analysis, hand and foot rehabilitation, leprosy surveillance, and patient transportation for indigent patients. The National Hansen’s Disease Program is committed to improving overall efficiency through controlling the cost of care at all of its outpatient clinics by keeping increases in the cost per patient served at or below the national medical inflation rate.

By restraining increases in the cost per individual served by the Ambulatory Care Program Clinics and at the National Hansen's Disease Program outpatient center below the national medical inflation rate, the Hansen's Disease Services Program can continue to serve a volume of patients that otherwise would have required additional funding to serve in the fiscal year. In 2006, the cost per patient served through outpatient services was $1,366 and was below the target of expected growth in cost per patient served. This can be partially attributed to certain one-time cost decreases as well as some reductions in certain contract requirements. As these were one time reductions, targets for FY 07 - 09 remain appropriate.

TARGETS SUBSTANTIALLY EXCEEDED OR NOT MET

Measure: Number of private sector physicians who have received training from the NHDP.
FY 06 target: 40
FY 06 actual: 135

In 2007, the NHDP exceeded this performance target due to an expansion of the training program to include an outreach Hansen’s Disease (HD) awareness seminar and 3 on-line video HD clinical pathological conferences.

In response to a changing dynamic in immigrant relocation in the U.S., the new outreach HD awareness training initiative is a needed expansion of our training mission. It is premature, however, to change the target for this measure.

The main topic of our outreach seminars is to bring awareness to physicians of the cardinal signs of HD and whether a HD diagnosis must be considered when treating immigrant patients from countries where HD is endemic. Increased awareness of HD by physicians should lead to earlier diagnosis of the disease with consequent easier management and fewer disabling manifestations of HD. This impact of increased training may take 10 or more years to become apparent.