Alpha-mannosidosis type 1
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- More Information (Found: 3 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates - Support Groups (Found: 8 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
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Canadian Society for Mucopolysaccharide and Related Diseases Inc. (Canadian MPS Society)
P.O. Box 30034, RPO Parkgate
North Vancouver, BC V7H 2Y8
Canada
Telephone: 604-924-5130
Fax: 604-924-5131
Toll-Free (within Canada): 1-800-667-1846
E-mail:kirsten@mpssociety.ca
Web site: http://www.mpssociety.ca
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National MPS Society
4220 NC Hwy 55, Ste.140
Durham, NC 27713
Toll-free: 877-MPS-1001
Phone: 919-806-0101
Fax: 919-806-2055
Email: info@mpssociety.org
Web site: http://www.mpssociety.org
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Society for Mucopolysaccharide (MPS) Diseases
MPS House Repton Place White Lion Road
Amersham Buckinghamshire
United Kingdom HP7 9LP
Phone: (+44) 0845 389 9901
E-mail: mps@mpssociety.co.uk
Web site: http://www.mpssociety.co.uk
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Hide and Seek Foundation for Lysosomal Storage Disease Research
4123 Lankershim Boulevard
Suite 302
No. Hollywood, CA 91602-2828
Telephone: 818-762-8621
Fax: 818-762-2502
E-mail: info@hideandseek.org
Web site: http://www.hideandseek.org
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Research & Clinical Trials (Found: 1 Resources)
Resources where you may find research studies and clinical trials
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ClinicalTrials.gov lists trials that are studying or have studied Alpha-mannosidosis type 1. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.