Support
Group Websites |
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The use of contact information (email addresses
and phone numbers) on our website is strictly for
persons interested in contacting Chapter and Support
Group volunteers and staff for support and informational
purposes only. This contact information SHOULD NOT
be taken from our website for solicitation or commercial
use.
Please click on a state name on the map, or use our
drop-down list above, for a Support Group near you.
We are working diligently to expand our network of
support groups and are always interested in motivated,
dedicated volunteers to assist us in that endeavor.
To find out how you can help, please contact our Chapter
and Support Group Manager, at 800-722-HOPE.
*Phone Contacts are individuals
who would like to offer phone & email support
but do not run a support group.
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Alabama
Florence Phone Contact: Sarah Logan, 256-332-0048,
slcrnp@aol.com
Huntsville Support Group
Alaska
Alaska Support Group
Arizona
Tucson
West
Phoenix
Arkansas
Benton
California
Camarillo
Fountain
Valley
Fresno
*Phone Contact: Marianne P. Rocha, 559-266-8209
Glendale
Los
Angeles (Spanish-speaking)
Modesto
Palmdale
Riverside
Sacramento
San Diego
San Francisco
Santa
Rosa
Sherman
Oaks
South Bay
West
Los Angeles
Whittier
Colorado
Colorado
Springs
Englewood
Connecticut
Enfield
Spanish
speaking
Stamford
West
Hartford
District of Columbia
Fairfax,
Virginia
Delaware
Dover
Newark
Florida
Atlantis
Boynton
Beach
Daytona
Beach
Lady
Lake
Margate
Miami
Orlando
Panama City/Pensacola:
Anna Strickland, 850-722-4046, anna.strickland@hotmail.com
Sarasota
Tampa
Georgia
Atlanta
Hartwell
Hawaii
Hawaii currently does not have any Support
Groups. If you would like to help, please contact our Chapter
and Support Group Manager at the National Office, 800-722-4673.
Idaho
Boise
Illinois
Highwood
Kankakee
Oak Park
Peru
Indiana
Anderson
Goshen
Iowa
Oskaloosa
Kansas
Wichita
Kentucky
Ashland
Louisiana
Baton
Rouge
Shreveport Phone Contact: Dicy Cary-Cowart,
318-525-1536, dc1966la@bellsouth.net
Maine
Lewiston
Maryland
Baltimore
Massachusetts
Bridgewater
Topsfield
Worcester
Michigan
Ann
Arbor
Battle
Creek
Flint
Lansing
Livonia
Taylor
Traverse
City
Warren
Minnesota
Duluth
Edina
Jackson Maple
Grove
Rochester
St.
Paul
Mississippi
Biloxi
Horn
Lake
Missouri
Kansas
City
LaPlata
St. Louis
Springfield
Montana
Montana currently does not have
any Support Groups. If you would like to help,
please contact our Chapter and Support Group Manager at the
National Office, 800-722-4673.
Nebraska
Grand
Island
Lincoln
Omaha
Nevada
Las Vegas
Reno
New Hampshire
Hampstead
New Jersey
Cape
May Court House & Tuckahoe
Dover
Flemington
Neptune
New
Brunswick
Spanish
speaking
Teaneck
Toms
River
Voorhees
Warren
Woodbury
New Mexico
Currently, New Mexico does not have any support
groups. If you would like to help, please contact our Chapter
and Support Group Manager at the National Office, 800-722-4673.
New York
Albany
Binghamton
Buffalo
Cooperstown
Kingston
Long
Island
Medusa
New York City
North
Syracuse
Rochester
Spanish speaking
Staten
Island
Warwick
Westchester
North Carolina
Durham
Raleigh
North
Dakota
Bismarck
Ohio
Brecksville
Canton
Carrollton
Cincinnati
Columbus
Dayton
(Huber Heights)
Toledo (Maumee)
Weirton, West Virginia
Phone Contact – Sandra Fennych, 304-723-5177
Youngstown
Oklahoma
Oklahoma
City
Tulsa
Oregon
Portland
Pennsylvania
Allentown
Carlisle/Harrisburg
Connellsville/Uniontown
Phone contact: Mica VanFossen, 724-438-8850, mvf24@atlanticbb.net
Doylestown
Langhorne
Mt. Lebanon
New Brighton
Norristown
Philadelphia
Pottstown
Reading
Upland
Weirton, West Virginia
Phone Contact – Sandra Fennych, 304-723-5177
Williamsport
York
Puerto Rico
Cabo
Rojo
Cayey
San
Juan
Rhode Island
Providence
South Carolina
Charleston
Greenville
Rock
Hill
South Dakota
Sioux
Falls
Tennessee
Chattanooga
Gallatin
Knoxville
Memphis
We are looking for leaders. If you would like to help,
please contact our Chapter and Support Group Manager at the
National Office, 800-722-4673.
Nashville
Texas
Abilene
Telephone contact only – Linda Johnson, 325-365-2472
Allen/Greater
North Dallas
Austin
Conroe
Corpus
Christi
El
Paso
Tarrant
County
Longview
Lubbock
Midland/Odessa
Paris
San
Antonio
Waco
West
Houston
Utah
Layton
Salt
Lake City
Vermont
Burlington
*Phone Contact Wilmington: Ilene Wax, 802-464-5847, ilenewax@gmail.com
Virginia
Fairfax
Fredericksburg
*Phone Contact Lynchburg:
Marion Weaver, 434-384-3212
Norfolk
Richmond
Washington
*Phone contact College
Place: Victoria Gibson, 509-529-8568, annetori@yahoo.com
Seattle
Spokane
West Virginia
West Virginia currently does not have any
Support Groups. If you would like to help, please contact
our Chapter and Support Group Manager at the National Office,
800-722-4673.
*Phone Contacts
Bancroft: Scott Miller, 304-586-9561,
samiller5@yahoo.com
Weirton: Sandra Fennych, 304-723-5177
Wisconsin
Green
Bay
Lake
Geneva
Milwaukee
Wyoming
Wyoming currently does not have any Support
Groups. If you would like to help, please contact our Chapter
and Support Group Manager at the National Office, 800-722-4673.
Spanish-Speaking
Contacts
Los Angeles, Calif., Josephine Battyany, 310-477-8225
Bay Shore, N.Y. Area – Beatriz Nunez, 631-667-2655
Cabo
Rojo, P.R., Edwin Lamoli, 787-851-2269
Cayey,
P.R., Awilda E. Berrios Burgos, 787-219-7049, 787-434-7859 y 787-308-7411, awildae315_@hotmail.com o awilda315pr@yahoo.com
San
Juan, P.R., Manny Quevedo, 787-792-4038, lordrealty@lordrealty.com; or Sylvia Quevedo,
787-792-3882
SISTER
ORGANIZATIONS
Argentina
Association Argentina De Esclerodermia
Corrientes 1844, PB
Autonoma de Buenos Aires, Argentina
Phone: (54) 11-4371-2574
info@esclerodermia.org.ar
http://www.esclerodermia.org.ar/
Australia
New South Wales
Scleroderma Australia
PO Box 558
Balgowlah NSW 2093
Tel. 02 9990 5159 (message bank, calls usually returned within
24 hours)
Email:
info@sclerodermaaustralia.com.au
www.sclerodermaaustralia.com.au/
New South Wales
The Scleroderma Association of New South Wales Inc.
PO Box 227, Ashfield NSW 1800
Tel. 02 9798 7351 Fax. 02 9798 7985
Email. scleronsw@aol.com
www.sclerodermansw.org
Newcastle/Hunter Valley
Scleroderma/Lupus Support Society
PO Box 373, Warner’s Bay NSW 2282
Tel. 02 4921 4095
http://www.sclerodermaaustralia.com.au/
Northern Territory
Scleroderma Queensland
PO Box 154, Mansfield QLD 4122
Tel. 07 3411 3558 Fax. 07 3411 3558
Email: sclero@pacific.net.au
www.scleroderma.org.au
Queensland
Scleroderma Queensland
PO Box 154, Mansfield QLD 4122
Tel. 07 3411 3558 Fax. 07 3411 3558
Email: sclero@pacific.net.au
www.scleroderma.org.au
South Australia
Lupus/Scleroderma/Sjogren’s Support Group
1/202 Glen Osmond Road, Fullarton SA 5063
Tel. 08 8263 0513
Tasmania
Tasmania Scleroderma Friendship Group
Phone: (03) 6229 4478
Victoria
Scleroderma Foundation of Victoria Inc.
St. Vincent Hospital. 41 Victoria Parade, Fitzroy VIC 3065
Tel. 03 9288 3651
Email: enq@sclerodermavic.org
www.sclerodermavic.org
Western Australia
Scleroderma WA
Arthritis Foundation of WA
PO Box 167, Nedlands WA 6909
Tel. 08 9388 2199
Email: general@arthritiswa.org.au
Belgium
Association des Patients Sclerodermiques
de Belgique
33 Rue Marcel Baudry
7503 Froyennes
Phone/Fax: 069/ 35.29.44
Email: APSB-ASBL@win.be
http://users.win.be/W0079627
Belgian CIB-League
CIB-Liga voor Chronische Inflammatoire Bindweefselziekten
vzw
Nele Caeyers, CIB-Liga vzw
Bresserdijk 75
2400 Mol
+32 14 322 399
+ 32 498 32 03 05
nelecaeyers@versateladsl.be
www.cibliga.be
Canada
Scleroderma Society of Canada
95 Woodfield Road SW
Calgary, AB
T2W5K5
Bob Buzza - President
http://www.scleroderma.ca/
info@scleroderma.ca
(403) 281-7616
England
Raynaud's & Scleroderma Association
112 Crewe Road, Alsager, Cheshire
ST7 2JA United Kingdom
Phone: 01270 872776
Fax: 01270 883556
http://www.raynauds.org.uk/
The Scleroderma Society
3 Caple Road
London NW10 8AB
Phone: 020 8961 4912
kimflig@sclerodermasociety.co.uk
http://www.sclerodermasociety.co.uk/
Chair: Kim Fligelstone
France
Association des Sclerodermiques de France
Presidente: Madame Wladia Degorre
22 Avenue d'Immersourt
F-66217 Tilloy-les Mofflaines
Phone: (+0033) 03.21.24.18.72
Fax: (+0033) 03.21.22.65.77
www.cyberquest.fr/asf
Germany
Sklerodermie Selbsthilfe e. V. in Deutschland
Friedhofstr. 16
74076 Heilbronn, Germany
Phone: 0049-07131-161656
Fax: 0049-07131-161657
info@selbsthilfe-sklerodermie.de
http://www.sklerodermie-selbsthilfe.de/Veranstaltungen_Frame.htm
Ireland
Irish Raynaud's & Scleroderma Society
PO Box 2958
Foxrock, Dublin 18, Ireland
Phone: 01 20 20 184
www.irishraynauds.com
Italy
Associazione Italiana Lotta alla Sclerodermia (AILS)
Sede Nazionale
Via Scrima, 29 - 60127 Ancona
Phone: 071.2832316
Phone: 335.8318091
Sede Legale
V.le Famagosta, 46 - 20142 Milano
Phone and fax: 02.89120468
Phone: 338.7193491
Email: ails@tiscali.it
http://www.ails.it
Gruppo Italiano Per La Lotta Alla Sclerodermia (GILS)
Via Giambellino, 14 20146 Milano
Phone: 02-47715581 Fax: 02-48958047
Email: gils@sclerodermia.net
http://web.tiscali.it/gils/
Sweden
Sklerodermigruppen
Reumatologishe Uliniken
USIL
221 35 LUND
Rematology Karolinsler Hospital
S-17176 Stockholm
Sweden
Phone: 011-46-46-172153
Fax: 011-46-46-128468 |
