Department of Health and Human Services

Continue monthly, annual data system
Assist states in automating and/or re-engineering their IT systems to enhance timeliness and quality of reporting
Implement revised certificates as part of re-engineering process Implement new OMB race guidelines
Evaluate quality of new data items
Implement new data access methods and reports
Re-engineer internal DVS systems
Develop and publish birth certificate regulations in response to IRTPA

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National Health and Nutrition Examination Survey (NHANES)

Data Source/Methods

Personal interview
Physical examination
Laboratory tests
Nutritional assessment
DNA repository

Selected Applications of Data Produced

Total prevalence of disease or conditions including those unrecognized or undetected
Nutrition monitoring
Heart disease
Diabetes
Osteoporosis
Iron deficiency anemia and other nutritional disorders
Environmental exposures monitoring
Children's growth & development
Infectious disease monitoring
Overweight

Planned Sample

~5,000 persons per year, all ages
Oversample 60+
Oversample blacks & Hispanics

Race/Ethnicity and SES [1]

All Years

Income and poverty index
Education
Occupation
Type of living quarters
Social services
Black, white and Mex. Amer.

Prior to 1982

White, black, Other
Birthplace

1988 +

OMB categories
Acculturation questions re: language usually spoken at home

Planned Periodicity

Annual, with capability for longitudinal followup

FY 2005-2009 Plans

Data collection for annual sample
Data releases on two-year cycles
Surveys of other population groups or State and local geographic areas (Community HANES) are being considered

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National Health Interview Survey (NHIS)

Data Source/Methods

Personal interviews

Selected Applications of Data Produced

Annual data on:

Health status and limitations
Utilization of health care
Injuries
Family resources
Health insurance
Access to care
Selected conditions
Health Behaviors
Functioning
HIV/AIDS testing
Flu shots/sprays for all ages
Pneumonia shots for adults 18+

Planned Sample

~40,000 households
In 2006, oversample includes blacks, Hispanics, and Asians. Sample adults are now oversampled if 65+ and one of these minorities.

Race/Ethnicity and SES [1]

OMB categories
Hispanic groups
API groups
Family and individual income and poverty level
Education and occupation (sample person only)
Type of living quarters
Acculturation questions re: language used during interview

Planned Periodicity

Annual

FY 2005-2009 Plans

Continue annual survey
Provide sampling frame to the Medical Expenditure Panel Survey
Supplements
- 2005: Cancer Control
- 2006: Healthy People 2010 Objectives (arthritis, stroke, diabetes)
- 2007: Complementary and alternative medicine and hearing
- 2008: Oral health, HPV, asthma, vision (all ages); cancer screening, balance , Heart disease, immunization (adults only)
- 2009: arthritis (others as yet undecided)
Re-designed sample implemented (2006)

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National Hospital Discharge Survey (NHDS)

Data Source/Methods

Hospital records
Computerized data sources

Selected Applications of Data Produced

Patient characteristics
Hospital characteristics
Length of stay
Diagnosis and multiple diagnoses
Surgical and diagnostic procedures

Planned Sample

500 hospitals
300,000 discharges

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

Annual

FY 2005-2009 Plans

Annual release of paradata files on interview process
Continue annual survey of hospitals
Re-design in process (2010)

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National Ambulatory Medical Care Survey (NAMCS)

Data Source/Methods

Encounter forms completed by office-based physicians and other staff
Physician-level personal interviews

Selected Applications of Data Produced

Characteristics of patients' visits
Diagnoses and treatment
Prescribing patterns
Characteristics of practice

Planned Sample

3,400 physicians in office-based practices
Three providers at each of 104 community health centers
~30,000 patient visits

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

Annual

FY 2005-2009 Plans

Continue annual survey
Special focus on chronic diseases (2005-8)
Cervical cancer screening supplement
Separate strata of community health centers and medical and surgical oncologists (2006-7)

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National Hospital Ambulatory Medical Care Survey (NHAMCS)

Data Source/Methods

Encounter forms completed by physicians and other hospital staff
Facility and personal interviews

Selected Applications of Data Produced

Characteristics of patients' visits to hospital outpatient departments (OPD) and emergency departments (ED)
Diagnoses and treatment
Prescribing patterns
Characteristics of facility

Planned Sample

600 hospitals
70,000 patient visits

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

Annual

FY 2005-2009 Plans

Continue annual survey
Add content on electronic medical records
Emergency pediatric preparedness - supplement (2006)
Special focus on chronic diseases (OPD) (2005-8)
Cervical cancer screening supplement

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National Survey of Family Growth (NSFG)

Data Source/Methods

Personal interviews
Men and women 15-44 years

Selected Applications of Data Produced

Contraception & sterilization
Teenage sexual activity & pregnancy
Family planning & unintended pregnancy
Infertility, adoption, breastfeeding
Marriage, divorce, and cohabitation
Fatherhood involvement
HIV risk behavior

Planned Sample

5,000 men and women
Oversample blacks, Hispanics and teens

Race/Ethnicity and SES [1]

OMB categories
4 Hispanic groups
Family & individual income, & poverty level
Sources of income
Education

Planned Periodicity

Continuous since mid-2006

FY 2005-2009 Plans

Design for continuous interviewing ongoing
First data set from continuous interviewing release (2009)

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National Immunization Survey (NIS) (in partnership with CDC/NIP)

Data Source/Methods

Telephone interviews
Provider record check component
Weighting adjustment for non- telephone households

Selected Applications of Data Produced

Evaluation of immunization status of preschool population (NIS)
Demographic characteristics
Family resources data
Health care utilization

Planned Sample

Over 1 million households screened to find NIS sample of households with children 19-35 months
400 completed NIS interviews in each of 55 non-overlapping areas (at least) which includes the 50 states, DC and 5 or more grantees. Add'l areas maybe included subject to funding
Option allows for additional data collection on other topics from the households screened for the NIS sample

Race/Ethnicity and SES [1]

OMB categories
Income
Education of the mother

Planned Periodicity

Continuous with quarterly 12 month moving averages

FY 2005-2009 Plans

Currently conducting interviews for all areas
New contract to cover data collection (CY 2005-2007)

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National Survey of Children with Special Health Care Needs

Data Source/Methods

Conducted using the State and Local Area Integrated Telephone Survey (SLAITS) mechanism
Telephone interviews
Statistical adjustments for house- holds without telephones
Utilizes NIS sample frame
Sponsored and funded by Maternal and Child Health Bureau, HRSA
Additional funding by OASPE (2001)

Selected Applications of Data Produced

Children with special health care needs
Health care utilization and barriers
Performance partnership initiatives
Health insurance coverage State Children's Health Insurance Program (SCHIP) attitudes and experience
Characteristics of SCHIP eligible but unenrolled children (2001)

Planned Sample

State-based samples of children 0-17 years of age
All 50 states plus DC Detailed interview for children identified with special needs
Detailed interview for low-income uninsured children (2001)
Detailed interview for referent sample (2005-2006)

Race/Ethnicity and SES [1]

OMB categories
Income and poverty levels
Parental education
TANF participation

Planned Periodicity

Periodic implemen tation (every 4 years)

FY 2005-2009 Plans

Data files released (FY 2003)
Released chartbook and numerous journal articles
Provision of technical assistance to states
Focus of an issue of the Maternal and Child Health Journal
Repeated (CY 2005-2006)

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National Survey of Children's Health

Data Source/Methods

Conducted using the SLAITS mechanism
Telephone interviews
Statistical adjustments for households without telephones
Utilizes NIS sample frame
Sponsored and funded by the Maternal and Child Health Bureau, HRSA

Selected Applications of Data Produced

Physical, emotional, and dental health
Health insurance coverage
Health care utilization and barriers
Medical home
Child, family, and neighborhood well-being
Children with special health care needs
Performance partnership initiatives

Planned Sample

State-based samples of children 0-17 years of age
All 50 states plus DC

Race/Ethnicity and SES [1]

OMB categories
Income and poverty levels

Planned Periodicity

Periodic implementation (every 4 years) subject to funding by sponsor

FY 2005-2009 Plans

Release public use data files (2005)
Released chartbook, numerous journal articles
Provision of technical assistance to states
Will be repeated (CY 2007)
Focus of a supplement to Pediatrics

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National Death Index (NDI)

Data Source/Methods

State registration areas- death certificates

Selected Applications of Data Produced

Facilitates epidemiological follow-up studies
Verification of death for individuals under study
Optional release of coded causes of death available to users upon request
Most NCHS surveys are linked to NDI

Planned Sample

All deaths

Race/Ethnicity and SES [1]

Same race groups as VSCP

Planned Periodicity

Annual

FY 2005-2009 Plans

Continue ongoing matching operations

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National Nursing Home Survey (NNHS)

Data Source/Methods

Long-term care providers
Interviews with facility administrators and staff familiar with residents
For patient level data, respondents refer to facility/medical records

Selected Applications of Data Produced

Facility-level
- Facility and staffing characteristics
- Facility practices
Resident-level
- Health status (functional status, diagnoses and conditions)
- Medications
- ED visits and hospitalizations
- End of life care
- Pain assessment, management and relief

Planned Sample

1,500 nursing homes
18,000 current residents

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

Last conducted in 2004. Period between surveys to be determined.

FY 2005-2009 Plans

Release preliminary data 2006
Release public-use data files (2006)
Release summary statistics and journal articles (2006-2008)

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National Nursing Assistant Survey (NNAS)

Data Source/Methods

Sample of nursing assistants (NAs) working in sub-sample of facilities participating in the 2004 NNHS
Telephone interviews

Selected Applications of Data Produced

Characteristics of Nas
Why NAs remain in the field
Factors that influence entering/leaving the field
Factors affecting retention
Factors that affect workers' attitudes, relationships with managers and clients, and job satisfaction

Planned Sample

690 facilities
5,520 nursing assistants

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

One time in 2004

FY 2005-2009 Plans

Revise survey for use in survey of home health aides (2007)
Release summary statistics, journal articles (2007)

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National Survey of Residential Care Facilities

Data Source/Methods

Methods are being evaluated

Selected Applications of Data Produced

Characteristics of residential care facilities, number and characteristics of residents along with medical diagnoses and functional status

Planned Sample

1,500-2,200 facilities
Data on 8,000-10,000 residents

Race/Ethnicity and SES [1]

OMB categories; others (if any) to be determined

Planned Periodicity

To be fielded first time in 2009; periodicity to be determined

FY 2005-2009 Plans

Survey design (2006-2008)
Survey to be fielded (2009)

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National Survey of Ambulatory Surgery (NSAS)

Data Source/Methods

Abstract forms completed by facility staff

Selected Applications of Data Produced

Patient characteristics
Facility characteristics
Diagnosis and multiple diagnoses
Surgical and diagnostic procedures

Planned Sample

696 facilities
60,000 surgery visits

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

1994-1996; 2006

FY 2005-2009 Plans

Data release (2008)

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National Survey of Adoptive Parents (NSAP)

Data Source/Methods

Conducted using the State and Local Area Integrated Telephone Survey (SLAITS) mechanism
Telephone interview
Utilized all identified target cases (children adopted from the domestic foster care system, private domestic adoption, or international adoption) from the 2005-2006 NS-CSHCN & 2007 NSCH samples (both of which were statistically adjusted . for non-resp
Sponsored by DHHS (ASPE and ACF) with technical assistance on international adoption content provided by the Dept. of State

Selected Applications of Data Produced

Pre- and post-adoption experiences of parents
Efficacy of post-adoption supports
Characteristics of adoptions
Transracial and/or transcultural adoptions
Parent and child well-being
Adoption agreement and post-adoption services (financial)
Post-adoption supports (non-financial)

Planned Sample

National sample of adopted children 0 to 17 years of age
Approximately 2,000 completed interviews (main NSAP sample)
Approximately 2,000 completed interviews in the referent NSAP sample (subsample of the 2007 NSCH and 2005-2006 NS-CSHCN cases)
NSAP referent sample will be asked selected emotional and education indicators to compare to adopted children in the main sample

Race/Ethnicity and SES [1]

OMB categories of responding adoptive parent, and any other adoptive parent living in HH
Income and poverty levels (from NSCH or NS-CSHCN)
Program participation (from NSCH or NS-CSHCN)
Parental employment status of the responding adoptive parent, and any other adoptive parent living in HH

Planned Periodicity

One time Fielded in 2007

FY 2005-2009 Plans

NSAP file will be released only as a stand-alone file with selected NSCH or NS-CSHCN variable (as applicable) attached
Anticipate the release of numerous journal articles

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National Home Health Aide Survey (NHHAS)

Data Source/Methods

Telephone interviews
Sample of home health aides (HHAs) working in agencies participating in the 2007 NHHCS

Selected Applications of Data Produced

Characteristics of HHAs
Why HHAs remain in the field
Factors that influence entering/leaving the field
Factors affecting retention
Factors that affect workers' attitudes, relationships with managers and clients, and job satisfaction

Planned Sample

1,255 agencies
7,000 home health aides

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

One time in 2007-2008

FY 2005-2009 Plans

Conduct survey (2007-2008)
Release public use data files (2009)
Release summary statistics (2009)

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National Home and Hospice Care Survey (NHHCS)

Data Source/Methods

Home health agencies and hospices
Interviews with administrators and staff familiar with patients
For patient level data, respondents refer agency/medical records

Selected Applications of Data Produced

Characteristics of home health agencies and hospices
Number and characteristics of patients and discharges
Medical diagnoses and functional status

Planned Sample

1,800 home health agencies and hospices
6,275 current home health patients
6,275 discharged hospice patients

Race/Ethnicity and SES [1]

OMB categories

Planned Periodicity

Last conducted in 2000. Period between surveys to be determined.

FY 2005-2009 Plans

Conduct re-designed survey (2007)
2007 survey includes new information on: medications, end-of-life care, staffing, administration, electronic medical records
Release public use data files (2009)

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National Health Interview Survey on Disability (NHIS-D)

Data Source/Methods

Personal interviews
Follow-up interviews

Selected Applications of Data Produced

Sensory, mobility, and communication impairments
Functional limitations
Personal assistance
Special education
Mental health conditions
Employment and transportation limitations
Therapeutic services
Children w/ special health needs
Post polio syndrome

Planned Sample

Phase 1 screens 90,000 households
Phase 2 is a followup of those persons with moderate to severe disabilities
Phase 2: approximately 20,400 children and adults in 1994, and approximately 12,400 children and adults in 1995

Race/Ethnicity and SES [1]

OMB categories
Hispanic groups
API groups
Family income and poverty level
Education and occupation
Type of living quarters

Planned Periodicity

Special 2-year study in 1994-1995

FY 2005-2009 Plans

A public use file of polio data from the Disability Followback Survey (Phase II of the NHIS-D) was released in 2000, the final release of NHIS-D data

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National Survey of Early Childhood Health

Data Source/Methods

Conducted using the State and Local Area Integrated Telephone Survey (SLAITS) mechanism
Telephone interviews
Statistical adjustments for house-holds without telephones
Utilizes NIS sample frame
Sponsored by American Academy of Pediatrics (AAP)
Funded by Gerber Foundation, Maternal and Child Health Bureau and AAP

Selected Applications of Data Produced

Parents' perceptions of the quality of pediatric care
Content of anticipatory guidance
Health care utilization and barriers
Home safety measures
Health insurance coverage

Planned Sample

National sample of children 4-35 months of age
Oversample of Black non- Hispanic and Hispanic children

Race/Ethnicity and SES [1]

OMB categories
Income and poverty levels
Parental education
Parental employment status
WIC participation

Planned Periodicity

Unspecified periodic implementation subject to funding by sponsors

FY 2005-2009 Plans

Released public use data files and released summary statistics
Released supplement to Pediatrics
Numerous journal articles released

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Joint Canada/United States Survey of Health (JCUSH)

Data Source/Methods

Same questionnaire administered by telephone in 2002-2003 in both countries, in English or French in Canada, in English or Spanish in U.S.

Selected Applications of Data Produced

Directly compare U.S. and Canadian estimates on health status, chronic conditions utilization of health care services, etc.

Planned Sample

5,200 U.S. adults
3,500 Canadian adults

Race/Ethnicity and SES [1]

OMB categories in US, in GP in Canada; income, wealth, education

Planned Periodicity

One-time in 2002-2003

FY 2005-2009 Plans

Joint data release on Statistics Canada and NCHS' websites, June 2, 2004 Invited Session at 2004 Joint Statistical Meetings in Toronto; numerous other talks and papers

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National Asthma Survey

Data Source/Methods

Conducted using the SLAITS mechanism
Telephone interviews
Statistical adjustments for households without telephones
Utilizes NIS sample frame (and stand-alone NAS sample)
Sponsored and funded by National Center for Environmental Health, CDC

Selected Applications of Data Produced

Asthma prevalence rates (national sample only)
Health care utilization and barriers
Asthma management and medication use
Family history of asthma

Planned Sample

Four state samples and national samples in 2003 of adults and children

Race/Ethnicity and SES [1]

OMB categories
Income and poverty levels
Education

Planned Periodicity

Last conducted in 2003; there are no plans to repeat this survey

FY 2005-2009 Plans

Conducted survey (2003)
Release public use data files (2005)
Release journal articles, continue analyses

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Second Supplement of Aging

Data Source/Methods

Personal interviews
Linked administrative records data from NDI, cause-of-death, CMS, and SSA

Selected Applications of Data Produced

Functional status
Living arrangements
Use of hospitals and nursing homes
Death rates by social, economic, family and health characteristics

Planned Sample

9,447 persons age 70 and over at the time of Phase 2 of NHIS-D (1994-1996)

Race/Ethnicity and SES [1]

OMB categories
4 Hispanic groups
Education
Type of housing
Occupation & retirement
Income & income sources

Planned Periodicity

Cross-sectional survey, serves as a baseline to the LSOA II

FY 2005-2009 Plans

Ongoing record matches with the NDI, cause-of-death, CMS Medicare files, and SSA benefit data

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Second Longitudinal Studing of Aging (LSOA II)

Data Source/Methods

Telephone Interviews
Linked administrative records data from NDI, cause-of-death, CMS, and SSA

Selected Applications of Data Produced

Changes in functional status, chronic conditions, comorbidity
Causes and consequences of change
Living arrangements, social support
Health care coverage and utilization
Death rates by social, economic, family, and health characteristics

Planned Sample

9,447 persons age 70 and over at the time of Phase 2 of NHIS-D (1994-1996)

Race/Ethnicity and SES [1]

OMB categories
4 Hispanic groups
Education
Type of housing
Occupation and retirement
Income and income sources

Planned Periodicity

Baseline plus 2 follow-up waves, each at 2-year intervals

FY 2005-2009 Plans

Ongoing record matches with the NDI, cause-of-death, CMS Medicare files, and SSA benefit data

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Notes

OMB categories include white, black or African-American, Asian, Native Hawaiian and other Pacific Islanders, American Indian or Alaska Native. Hispanic origin is asked as a separate question.

Page Last Modified: November 20, 2008

Data Source: CDC/National Center for Health Statistics

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