Prune belly syndrome
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Prune belly syndrome is a condition characterized by a lack of abdominal muscles, undescended testicles in males, and urinary tract problems. The cause of the condition is unknown. The syndrome occurs almost always in males; less than 3% of cases involve females.[1][2]
References
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BP Wood. Prune belly syndrome. eMedicine. 2008 Available at: http://www.emedicine.com/Radio/topic575.htm. Accessed December 9, 2008.
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Caldamone AA, Woodard JR. Campbell-Walsh Urology, 9th ed. In: . Prune belly syndrome. Philadelphia, PA:Saunders; 2007:
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- More Detailed Information (Found: 8 Resources)
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eMedicine provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free
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The Genetic Alliance is an international coalition comprised of more than 600 advocacy, research and health care organizations representing millions of individuals with genetic conditions. Click on the link to view information on this topic.
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MedlinePlus, a Web site designed by the National Library of Medicine Web site to help you research your health questions, provides more information about this topic. Click on the link to view this information.
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MeSH® (Medical Subject Headings) is a terminology tool used by the National Library of Medicine. Click on the link to view information on this topic.
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The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Prune belly syndrome. Click on the link to go to OMIM and review these resources.
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Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. Click on the link to read information on this topic.
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PubMed is a searchable database of medical literature and lists journal articles that discuss Prune belly syndrome. Click on the link to view a sample search on this topic.
- Support Groups (Found: 8 Resources)
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Prune Belly Syndrome Network, Inc.
PO Box 3914
Oshkosh WI 54903-3914
Web site: http://www.prunebelly.org
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MUMS National Parent to Parent Network puts parents in touch with other parents who have children with this condition or similar symptoms.
MUMS National Parent to Parent Network
150 Custer Court
Green Bay, Wisconsin 54301-1243
Toll-free: 877-336-5333 (Parents only please)
Telephone: 920-336-5333
Fax: 1-920-339-0995
E-mail: mums@netnet.net
Web site: http://www.netnet.net/mums/
- Live Chat
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PUVs online discussion group is designed for families with children with posterior urethral valves, prune belly syndrome, VATERS, or other congenital urologic or kidney anomoly.
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Clinical Trials & Research (Found: 1 Resource)
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Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.