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First
Meeting
June 7-8, 2004
Ronald
Reagan Building and International Trade
Center
Washington, DC
Agenda
| Monday,
June 7, 2004 |
| 9-9:30
a.m. |
HHS
Welcome and Introductions
Dennis Williams, Ph.D., M.A.
Deputy Administrator
Health Resources and Services Administration |
| 9:30-10
a.m. |
Roundtable
Introductions |
| 10-10:15
a.m. |
Break |
| 10:15-11
a.m. |
Ethics
Rules for Special Government Employees
on Advisory Committees
Jennifer L. Jordan
Ethics and Personnel Security Specialist
Health Resources and Services Administration
Pam Kelley
Ethics and Personnel Security Officer
Health Resources and Services Administration |
| 11-11:30
a.m. |
Charge
to Committee
Review of Charter
R. Rodney Howell, M.D., Chair
Professor
Department of Pediatrics
The University of Miami School of
Medicine |
| 11:30-noon |
Delivering
Genetic Services to Children in a
Clinical Setting
R. Rodney Howell, M.D. |
| noon-1
p.m. |
Lunch
(on own) |
| 1-2:30
p.m. |
Overview
of Newborn Screening Programs: State
of the States Newborn Screening
Task Force Report
GAO report
Marie
Y. Mann, M.D., M.P.H.
Genetic Services Branch
Maternal and Child Health Bureau
Health Resources and Services Administration
Bradford Therrell, Ph.D.
Director
National Newborn Screening and Genetics
Resource Center
University of Texas Health Science
Center at San Antonio |
| 2:30-3:15
p.m. |
Federal
Agency and Liaison Briefings
Elizabeth
Edgerton, M.D., M.P.H.
Director of Clinical Prevention
U.S. Preventive Services Task Force
Agency for Healthcare Research and
Quality
Coleen Boyle, Ph.D.
Associate Director
Science and Public Health Team
Centers for Disease Control and
Prevention
Jennifer Howse, Ph.D.
President
March of Dimes |
| 3:15-3:30
p.m. |
Break |
| 3:30-5
p.m. |
Federal
Agency and Liaison BriefingsE.
Stephen Edwards, M.D.
Past President
American Academy of Pediatrics
James
Collins, M.D.
Chair
Secretary’s Advisory Committee
on Infant Mortality
U.S. Department of Health and Human
Services
Reed Tuckson, M.D.
Senior Vice President
Consumer Health and Medical Care
Advancement
UnitedHealth Group
Secretary’s Advisory Committee
on Genetics, Health, and Society
U.S. Department of Health and Human
Services |
| 5
p.m. |
Adjourn |
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| Tuesday,
June 8, 2004 |
| 8:30-9:30
a.m. |
Federal
Agency and Liaison Briefings
Duane
Alexander, M.D.
Director
National Institute of Child Health
and Human Development
National Institutes of Health
Peter
van Dyck, M.D., M.P.H.
Associate Administrator
Maternal and Child Health Bureau
Health Resources and Services Administration |
| 9:30-10:30
a.m. |
Standardization
of Guidelines and Practices for
Newborn Screening Programs
Michael Watson, Ph.D.
Executive Director
American College of Medical Genetics |
| 10:30-10:45
p.m. |
Break |
| 10:45-noon |
Discussion |
| noon-1
p.m. |
Lunch
(on own) |
| 1-2
p.m. |
Public
Comment |
| 2-3
p.m. |
Committee
Business
Future Agenda
Priority Issues |
| 3
p.m. |
Adjourn |
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