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University of Vermont

Grant Title: Leadership Education in Neurodevelopmental and Related Disabilities

View University of Vermont Project Web Site

Project Director(s):

Stephen  H.  Contompasis, MD
The University of Vermont and State Agricultural College
Ira Allen School Trinity Campus
Burlington, VT 05405
(802) 656-3187
Email: stephen.contompasis@uvm.edu

Problem:

MCHB challenges us to develop leadership professionals who can integrate the changes we are experiencing, with new models of interdisciplinary practice into systems of health care that serve the needs of children who have, or are at risk for, neurodevelopmental disabilities, and their families.

Goals and Objectives:

Goal 1: Develop culturally competent, family-centered, interdisciplinary leadership professionals committed to improving the health of children with or at risk for, neurodevelopmental and related disabilities Objective 1: Ten to fifteen professionals representing the MCHB disciplines will be recruited yearly from a national and state pool of candidates to assure cultural diversity and professional excellence among fellows/trainees. (MCHB PM 09) Objective 2: A baseline of VT-ILEHP’s former long-term fellows/trainees who demonstrate field leadership in maternal and child health and related areas has been established this past year and incremental goals will be established for the years following. (MCHB PM 08) Objective 3: A baseline of VT-ILEHP’s former long-term fellows/trainees who work with other disciplines serving individuals with disabilities and their families has been established this past year and incremental goals will be established for the years following. (MCHB PM 60) Goal 2: Promote the use of interdisciplinary approaches in the delivery of services for infants, children with or at risk for, neurodevelopmental and related disabilities, and their families Objective 1: Each year of the project 10-15 interdisciplinary teams will be established to promote and assure coordinated, culturally competent, family-centered, community-based health & related services that exemplify best practice guidelines, responsive to the Healthy People 2010 objectives. (MCHB PM 07) Objective 2: Ten to fifteen children with neurodevelopmental and related disabilities, and their families will receive coordinated, culturally competent, family-centered, community-based health and related services each year of the project. (MCHB PM 07) Objective 3: At least 60 community providers will receive technical assistance by the VT-ILEHP Program's faculty and fellows/trainees to improve the health of children, with neurodevelopmental and related disabilities each year of the project. (MCHB PM 07) Goal 3: The VT-ILEHP Program will collaborate with State Title V and related Programs to assure leadership training experiences in the services ofchildren with neurodevelopmental and related disabilities. Objective 1: Collaborate with community-based programs, including schools, community health, Medical Homes, social services and mental health agencies to meet the needs of children through the program's Community-Based Assessment & Coordination practicum experience each year of the project. (MCHB PM 07) Objective 2: Collaborate with the Vermont CSHCN , Medical Homes, the Family-Infant-Toddler Project of Vermont, Parent to Parent, the UCEDD of Vermont, to identify 10-15 infants, children each year who might benefit from the Interdisciplinary Community-Based Assessment & Coordination practicum. (MCHB PM 07) Goal 4: Continue to improve the quality of the leadership education program, including both curriculum and community-based practicum experiences, through implementation of a comprehensive evaluation plan. Objective 1: Evaluate the interdisciplinary leadership program's content, seminars and all practicum experiences based on perceptions of the core faculty, fellows/trainees, community professionals, CSHN personnel, Advisory Council, Diversity Committee, Interagency Coordination Committee, and families. Objective 2: Evaluate the impact of the Interdisciplinary Community-Based Assessment & Coordination practicum experience based on perceptions of families, educational and developmental case managers, primary health care providers, and CSHN personnel participating in the process. (MCHB PM 07) Objective 3: Evaluate the impact of the Family Match practicum experience based on the perceptions of the families participating in the family support and respite experience. (MCHB PM 07) Goal 5: Disseminate information related to community-based, family-centered, culturally competent health promotion for children with neurodevelopmental and related disabilities, and their families. Objective 1: Disseminate information on culturally competent, family-centered, integrated, community-based practices and services to improve the health of children with neurodevelopmental and related disabilities, through a full range of media. (LEND PM 4) Objective 2: Disseminate information derived from evaluating the interdisciplinary core curriculum and community-based practicum experiences that can contribute to improving leadership preparation among MCHB LEND and other related interdisciplinary training programs through various media. (LEND PM 4) Objective 3: Disseminate information derived from interdisciplinary research activities that contribute to an understanding of health practices that impact positive change for children with special health care needs, their families and the community providers who support them. (LEND PM 4)

Methodology:

The VT-ILEHP program methodology includes recruitment, interdisciplinary processes, a competency-based leadership curriculum, practicum in community based assessment, assessment coordination, family-centered care, consultation, leadership projects, policy analysis, faculty development, and continuing education and outreach activities. Recruitment--Long term fellows/trainees representing the core disciplines are recruited from a national pool of candidates to assure professional excellence and cultural diversity. Interdisciplinary processes--The VT-ILEHP program has developed a number of processes used by fellows/trainees to provide interdisciplinary, family-centered, community-based assessment and assessment coordination Competency-based leadership curriculum--The curriculum has been developed with a focus in five major competency areas, including: neurodevelopmental and related disabilities; interdisciplinary process and collaborative teaming; family-centered care; cultural competence; and, leadership in maternal and child health Faculty development--To support their development as core faculty in maternal and child health, staff development time is scheduled weekly for curriculum enhancement and evaluation across disciplines. Continuing education and outreach activities--Several training opportunities are available to graduate students and faculty across disciplines at the University of Vermont as well as to community professionals and MCH providers.

Evaluation:

The program improves quality by implementation of a comprehensive evaluation plan. Evaluation includes both process and outcome measures and will provide follow-up information on program graduates. Key areas of evaluation include the evaluation of: the interdisciplinary leadership program's content, seminars and all practicum experiences; and the Interdisciplinary Community-Based Assessment and the perceived value of LEND interdisciplinary training reported by former ILEHP trainees/fellows.

Experience to Date:

6 full time trainees & 10 intermediate trainees across 8 disciplines were recruited Two graduate level, 3-credit seminars were developed & cross listed in 5 university departments (SLP, PT, Psych, Soc Work, Educ); 6 long term trainees & 2 intermediate trainees completed both 3-credit graduate seminars in neurodevelopmental disabilities, while another 8 intermediate trainees completed at least one of the 3-credit seminars A 70-hour training curriculum was developed & implemented to support trainee/fellow & faculty knowledge of interdisciplinary practices, assessment tools, cultural practices A 25-hour research training curriculum was developed & implemented 12 families benefited directly from weekly support either through our CBA or our Parent to Parent practicum Approximately 90 community providers across several community agencies and programs received consultation, technical assistance, evaluation and intervention support. Website was updated to include current recruitment materials & applications A follow-up assessment of the trainees/fellows who complete the VT-ILEHP Program has been done at one year and five years following completion of the program. It will be done for 10 years following the completion of the program in May for 2006. Most recent data from former trainees/fellows can be found in the NIRS database.