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Vanderbilt University

Grant Title: Leadership Education in Neurodevelopmental and Related Disabilities

View Vanderbilt University Project Web Site

Project Director(s):

Mary  Theresa  Urbano, PhD, MPH, RN
Vanderbilt Kennedy Center for Excellence in Developmental Disabilities Room 220 MRL
230 Appleton Place Peabody Box 40
Nashville, TN 37203
(615) 322-4999
Email: terri.urbano@vanderbilt.edu

Problem:

The purpose of the MIND Program is to reduce and prevent NDRD in children and to increase access to family-centered, community-based, culturally competent, interdisciplinary services for those children with NDRD, specifically focusing on the existing disparities in services.

Goals and Objectives:

Goal 1: To develop leaders in neurodevelopmental disabilities Objective 1: Enhance research competence in long-term trainees and faculty Objective 2: Enhance advocacy, administrative and policy competence in long-term and intermediate trainees and faculty Objective 3: Enhance teaching competence in long-term trainees and faculty Goal 2: To provide state-of-the-art training to interdisciplinary trainees of different levels Objective 1: Train long-term, intermediate and short-term trainees in NDRD Objective 2: To provide trainees with the knowledge and skill to lead, deliver, and evaluate services to children with NDRD and their families. Objective 3: Teach trainees to incorporate recommended practices related to leadership, cultural competence, and family-centeredness in all aspects of service delivery. Goal 3: To provide model-demonstration-quality services as a context for training Objective 1: Use recommended practices (including family-centered, community-based, culturally competent practices) in assessment as a service and a context for training Objective 2: Use innovative assessment and intervention planning as a service and a context for training Objective 3: Develop needed ongoing services as a context for training Goal 4: To enhance community skills through inservice training and collaboration Objective 1: Train short-term trainees in NDRD (same as earlier objective) Objective 2: Participate in CCD Outreach Services Objective 3: Collaborate with Title V, MCH, and MCH-related agencies Goal 5: To use technology to further learning and services Objective 1: Provide interdisciplinary training through videoconferencing Objective 2: Provide teleconsultation service Objective 3: Study efficacy of distance learning

Methodology:

The newly expanded MIND Program features the MCH priorities of family-centered practice, cultural competence, distance education, collaboration with community agencies, interdisciplinary training, the medical home concept. Unique to this program are the use of the case method of instruction, a curriculum of in-depth instructional units, and a focus on evidence-based practice. The translation from catch phrases to practical activities designed to produce well-versed leaders in the field of NDRD occurs through the six goals of developing leaders, providing training, providing services, using technology, collaborating with community agencies, and conducting research. The primary activities are instructional units of weekly sessions, monthly sessions for the community, monthly leadership meetings, group projects, clinical supervision, research projects, field placements, journal club, a family mentoring experience, and an advocacy project.

Coordination:

Collaborate with the State department of Maternal and Child Health to sponsor a videoconference series that meets monthly to provide training on the health issues of greatest concern to Tennesseans.

Evaluation:

The evaluation of the MIND program assesses the context, input, process, and product. The process evaluation (formative) is based on a detailed list of goals, objectives, and activities that are monitored continually. Data about the accomplishment of these activities is used to make midcourse changes. In addition to evaluation of current activities, evaluation includes tracking the progress of graduates of the program.

Experience to Date:

The MIND program provided training for 9 long-term trainees over the past year. Their enhanced leadership curriculum included weekly core seminars, monthly leadership meetings, required reading, family mentor experience, group project, and advocacy meeting attendance. We continued to provide distance education sessions (through Project DIANE) to State Title V and MCH staff and case coordinators. Our program also established a partnership with Fisk University, Tennessee State University, and Metro Nashville Health Department in order to coordinate efforts to recruit undergraduates into the field of Maternal and Child Health. In addition, we have collaborated extensively with our new Vanderbilt Kennedy Center for Excellence in Developmental Disabilities (UCEDD), including continuation of our joint Disability Grand Rounds, and planning of two community conferences for Spring 2006. We are exploring enhanced opportunities for our trainees with the new UCEDD. The addition of Down Syndrome Clinic and TREDS (deaf-blind program) to our Center for Child Development has also provided increased opportunities for training while providing needed services to families. We have developed two initiatives using International Classification of Function (ICF) to begin in July 2006, which will further expand our use of innovative assessment and intervention planning as a service and context for training.