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Problem:
Rural states (UT, ID, MT, ND, WY) face increasing challenges in providing high quality evidence-based integrated health care to children with special health care needs and their families. The development of health care personnel and administrators for leadership roles across the region is critical.
Goals and Objectives:
Goal 1: Strengthen and further expand the functional, programmatic, and evaluative infrastructure of the ULEND Regional Program (URLEND) in partnership with ID, MT, ND, and WY.
Objective 1: Organize and manage all aspects of the ULEND Regional Program through ongoing systematic input and guidance from: the ULEND Advisory Board; the Management Team; IDT Committee, and the Core Curriculum, Clinical Services; and Leadership/Research Subcommittees.
Objective 2: Maintain a cadre of at least 13 Discipline Coordinators, a Family Faculty member and 4 State Liaisons (ID, MT, ND, WY) throughout the five years of the URLEND.
Goal 2: Provide interdisciplinary leadership experiences to URLEND long-term trainees within the context of integrated didactic, clinical, and leadership/research activities.
Objective 1: Support 17 long-term leadership trainees (from 13 core disciplines), and 2 family and/or young adult trainees per year.
Objective 2: Provide at least 325 clock hours of systematic and integrated didactic, clinical, leadership, and research activities exemplifying best, evidenced-based practices to prepare URLEND trainees for leadership responsibilities in developing and implementing integrated systems of care.
Goal 3: Provide evidenced-based continuing education, training, consultation, and technical assistance opportunities for health care professionals in UT, ID, MT, ND, and WY.
Objective 1: Support and conduct at least 1 substantive CE activity each year, an additional 100 hours of training to maternal and child health professionals, and present research findings at 4 national conferences.
Objective 2: rovide at least 75 consultation and technical assistance activities per year to at least 200 staff in Title V and CSHCN programs, Family Voices, UCEDs, and other health care professionals to develop and/or improve integrated systems of care.
Methodology:
The ULEND Regional Program capitalizes on the expertise of exemplary faculty in 13 core health care and related disciplines from the medical campus at the University of Utah (Pediatrics, Pediatric Genetics, OT, PT, Nursing, Health Administration, Pediatric Dentistry, and Social Work) and the campus of USU (Nutrition, Psychology, Audiology, Special Education and Speech-Language Pathology) and a family faculty member to offer a comprehensive leadership development. The competency-based curriculum requires a minimum of 300 clock hours to complete and addresses the individualized learning needs of trainees through the use of an Individualized Leadership Development Plan. Trainees’ progress toward accomplishing competencies during this year- long program is monitored by core faculty. Noteworthy innovations are: (1) the use of state-of-the-art distance technology to connect faculty, provide didactic and other learning opportunities for trainees, and technical assistance and consultation; and (2) the expanded engagement of Title V programs, Family Voices, and UCEDs in ID, MT, ND, and WY to recruit and train leadership long-term trainees including families from each state. URLEND identifies priority needs in each of the 5 states health care systems, and delivers targeted continuing education and consultation. URLEND also utilizes innovative distance learning strategies across a multi-state region to develop enhanced leadership through multi-state collaboration.
Coordination:
URLEND is a partnership between the Univ. of Utah, the Center for Disabilities at Utah State Univ., the UT Dept. of Health-Bureau of CSHCN, and UT Family Voices. ULEND also has signed agreements with partners in ID, MT, ND, and WY, including the UCEDs, the Divisions of CSHCN, and the state Family Voices Directors. Primary Children’s Medical Center and Shriners Hospital are clinical sites. Diverse community sites include the Indian Walk In Center and the Disability Support Center for Families.
Evaluation:
The Participatory Evaluation Process (PEP) is used to measure the process and outcomes of URLEND. It includes all stakeholders in the evaluation process. Each has an active and equal voice. PEP collects qualitative and quantitative data. By using PEP, a learning community is created in which individuals and constituencies each have a stake in ongoing processes: evaluation, learning, and systems change. The process is thus a means to help both the program and each member reach the goals they set.
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