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Reports & Studies:

2003 Ryan White CARE Act Title IV Data Book

   
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Table of Contents:

Description of Title IV Service Providers

  1. Title IV Service Providers
  2. Types of Organizations Receiving Title IV Funds by Grantee
  3. Ownership Status of Provider Organizations Receiving Title IV Funds
  4. Populations Especially Targeted for Outreach or Services among Providers Receiving Title IV Funds

Description of HIV positive and affected clients receiving Title IV services

  1. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Gender
  2. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Age
  3. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Ethnicity
  4. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Race
  5. Total HIV Positive Clients Receiving Title IV Services from Title IV Providers by Exposure

Description of Title IV/YI Service Providers

  1. 2003 Ryan White CARE Act Title IV/YI
  2. Types of Organizations Receiving Title IV/YI Funds by Grantee
  3. Ownership Status of Provider Organizations Receiving Title IV/YI Funds
  4. Populations Especially Targeted for Outreach or Services among Providers Receiving Title IV/YI Funds

Description of HIV positive and affected clients receiving Title IV/YI services

  1. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Gender
  2. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Ethnicity
  3. Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Race
  4. Total HIV Positive Clients Receiving Title IV Services from Title IV/YI Providers by Exposure
  5. Data Considerations

DESCRIPTION OF TITLE IV SERVICE PROVIDERS

Title IV Service Providers

  • Organizations receiving Title IV grants use Title IV funds to provide comprehensive, community-based, culturally competent services to the following populations, and their affected families: 1) HIV infected women, 2) HIV infected and exposed infants (<2 years of age), 3) HIV infected children (2-12 years of age, and 4) HIV infected adolescents/youth (13-24 years of age).
  • Range of services is designed to provide a continuum of care, and includes primary and specialty medical care, psychosocial services, and logistical support as well as outreach for case finding and prevention in the context of care
  • 246 providers funded by 73 Ryan White CARE Act Title IV grantees

TABLE OF CONTENTS


 

Types of Organizations Receiving Title IV Funds by Grantee

N=73 Grantees

Pie chart containing the following data...
Hospital or University, 36
Publicly funded community health center, 8
Other community-based service organization, 14
Health department, 10
Other facility, 5

  • Source: 2003 CARE Act Data Report, Section 1, Item 7
  • “Other facility” includes solo/group private medical practice, agencies reporting for multiple fee-for-service providers, and other facilities

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Ownership Status of Provider Organizations Receiving Title IV Funds

N=246 providers

Bar Chart containing the following data...
Public/local, 23
Public/state, 36
Public/federal, 2
Private, nonprofit (not faith-based), 172
Private, for-profit, 4
Unincorporated, 1
Faith-based organization, 9
Other, 4

  • Source: 2003 CARE Act Data Report, Section 1, Item 9

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Populations Especially Targeted for Outreach or Services among Providers Receiving Title IV Funds

N=246 providers

Pie Chart containing the following data...
Migrant or seasonal farm workers, 25
Other, 35
Runaways or street youth, 51
Rural populations other than migrant or seasonal farm workers, 55
Parolees, 60
Incarcerated persons, 68
Non-injection drug users, 92
Gay, lesbian, and bisexual adults, 100
Gay, lesbian, and bisexual youth, 101
Homeless, 108
Injection drug users, 115
All adolescents, 142
Children, 167
Racial/ethnic minorities/communities of color, 201
Women, 207

  • Source: 2003 CARE Act Data Report, Section 1, Item 15

TABLE OF CONTENTS


DESCRIPTION OF HIV POSITIVE AND AFFECTED CLIENTS RECEIVING TITLE IV SERVICES

 

Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Gender

N=83,949 duplicated clients

Pie Chart containing the following data...
Male, 38%
Female, 62%
Transgender, 0%
Unknown, 1%

  • Source: 2003 CARE Act Data Report, Section 6.2, Item 65

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Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Age

N=83,949 duplicated clients

Pie Chart containing the following data...
Less than 2 years, 4,838
2-12 years, 13,095
13-24 years, 14,250
25-44 years, 35,503
45-64 years, 15,751
65 years or older, 926
Unknown, 547

  • Source: 2003 CARE Act Data Report, Section 6.2, Items 65, 66, 67, and 68
  • Percentages may not sum to 100 percent due to rounding error

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Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Ethnicity

N=83,949 duplicated clients

Pie Chart containing the following data...
Hispanic or Latino/a, 21%
Non-Hispanic or Non-Latino/a, 74%
Unknown, 5%

  • Source: 2003 CARE Act Data Report, Section 6.2, Item 66

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Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV Providers by Race

N=84,910 duplicated clients

Pie Chart containing the following data...
White, 24%
Black or African American, 61%
Other race, 1%
More than one race, 2%
Unknown, 12%

  • Source: 2003 CARE Act Data Report, Section 6.2, Item 67

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Total HIV Positive Clients Receiving Title IV Services from Title IV Providers by Exposure

N=61,319 HIV positive clients

Bar Chart containing the following data...
MSM, 11%
IDU, 9%
MSM and IDU, 1%
Hemophilia/ coagulation disorder, 0%
Heterosexual contact, 45%
Blood transfusion, 1%
Perinatal transmission, 13%
Other, 3%
Unknown, 17%

  • Source: 2003 CARE Act Data Report, Section 6.2, Item 68

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DESCRIPTION OF TITLE IV/YI SERVICE PROVIDERS

 

2003 Ryan White CARE Act Title IV/YI

  • Supports programs that specifically address the unique issues surrounding the identification, enrollment, and retention of youth in care
  • Purpose is to increase the number of HIV-positive youth aged 13-24 (with special emphasis on adolescents aged 13-19) receiving primary medical care and support services in a youth-sensitive environment by: 1) Expanding or enhancing existing networks of youth-serving, youth-sensitive providers that can deliver a continuum of care that links counseling and testing and primary medical care; 2) Linking a wide range of supportive services; and 3) Providing opportunities for youth to participate in clinical research
  • 39 providers funded by 16 Title IV/YI grantees

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Types of Organizations Receiving Title IV/YI Funds by Grantee

N=16 grantees

Bar Chart containing the following data...
Hospital or University, 6
Publicly funded community health center, 2
Publicly funded community mental health center, 0
Other community-based service organization, 7
Health department, 1
Substance abuse treatment center, 0
Solo/group Private medical practice, 0
Agency reporting for multiple fee-for-service providers, 0
PLWHA coalition, 0
VA facility, 0
Other facility, 0

  • Source: 2003 CARE Act Data Report, Section 1, Item 7

TABLE OF CONTENTS


 

Ownership Status of Provider Organizations Receiving Title IV/YI Funds

N=39 providers

Bar Chart containing the following data...
Public/local, 9
Public/state, 6
Public/federal, 0
Private, nonprofit (not faith-based), 22
Private, for-profit, 2
Unincorporated, 0
Faith-based organization, 0
Other, 1

  • Source: 2003 CARE Act Data Report, Section 1, Item 9

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Populations Especially Targeted for Outreach or Services among Providers Receiving Title IV/YI Funds

N=39 providers

Bar Chart containing the following data...
Rural populations other than migrant or seasonal farm workers, 1
Migrant or seasonal farm workers, 2
Parolees, 4
Other, 7
Gay, lesbian, and bisexual adults, 7
Incarcerated persons, 9
Non-injection drug users, 13
Injection drug users, 14
Children, 15
Homeless, 17
Runaways or street youth, 20
Women, 24
Gay, lesbian, and bisexual youth, 25
Racial/ethnic minorities/communities of color, 29
All adolescents, 32

  • Source: 2003 CARE Act Data Report, Section 1, Item 15

TABLE OF CONTENTS


DESCRIPTION OF HIV POSITIVE AND AFFECTED CLIENTS RECEIVING TITLE IV/YI SERVICES

 

Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Gender

N=3,744 duplicated clients

Bar Chart containing the following data...
Male, 43%
Female, 52%
Transgender, 1%
Unknown, 3%

  • Source: 2003 CARE Act Data Report, Section 6.2, Items 65
  • These data include only clients between ages 13 and 24 receiving Title IV/Youth Initiative services

TABLE OF CONTENTS


 

Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Ethnicity

N=3,744 duplicated clients

Bar Chart containing the following data...
Hispanic or Latino/a, 23%
Non-Hispanic or Non-Latino/a, 68%
Unknown, 9%

  • Source: 2003 CARE Act Data Report, Section 6.2, Items 66
  • These data include only clients between ages 13 and 24 receiving Title IV/Youth Initiative services

TABLE OF CONTENTS


 

Total HIV Positive and Affected Clients Receiving Title IV Services from Title IV/YI Providers by Race

N=3,744 duplicated clients

Bar Chart containing the following data...
White, 24%
Black or African American, 53%
Other race, 2%
More than one race, 4%
Unknown, 17%

  • Source: 2003 CARE Act Data Report, Section 6.2, Items 67
  • These data include only clients between ages 13 and 24 receiving Title IV/Youth Initiative services

TABLE OF CONTENTS


 

Total HIV Positive Clients Receiving Title IV Services from Title IV/YI Providers by Exposure

N=2,178 duplicated clients

Bar Chart containing the following data...
MSM, 24%
IDU, 3%
MSM and IDU, 1%
Hemophilia/ coagulation disorder, 0%
Heterosexual contact, 30%
Blood transfusion, 2%
Perinata transmission, 20%
Other, 2%

  • Source: 2003 CARE Act Data Report, Section 6.2, Items 68
  • These data include only clients between ages 13 and 24 receiving Title IV/Youth Initiative services

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Data Considerations

These data can not be compared with Title I, II, III, IV, or Title IV/Youth Initiative data prior to 2002. In previous years, HRSA/HAB used separate, Title-specific data systems to collect client and service information from RWCA grantees and providers. Providers who received funding from multiple RWCA sources were required to complete separate data reporting forms for each Title-funding they received. Under the new CADR reporting system, all providers, even those who are multiply-funded, complete one CADR, and report on all clients served regardless of funding source. This provides HRSA/HAB with a comprehensive understanding of how RWCA funds are being used to deliver health care services to families living with and affected by HIV disease.

Ryan White CARE Act providers have the option of reporting on eligible or funded services[1]. When they report on eligible services, providers are reporting on any service permitted under any Title of the CARE Act, regardless of whether or not the providers use a specific Title to pay for these services. Conversely, if providers report on funded services, the data they report only includes those services that were actually paid for using CARE Act funds. Reporting eligible services provides a comprehensive picture of the services being delivered to HIV-positive clients.

The utility of CADR data is limited by duplicated client counts. CADR data as collected and reported by individual providers are generally unduplicated. However, since an individual client may receive services from more than one provider, there is no way of knowing that the counts of individuals served by one provider are not also included in the counts of another service provider. Thus, aggregating provider data to the national level result in duplicate client counts.

Clients served include all individuals who had at least one visit for any eligible service provided by a Title IV provider during the reporting period, regardless of additional funding source.

An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year. Affected clients include those who are HIV negative as well as those with unknown HIV status. Affected clients include those receiving Title I and II Early Intervention Services. Affected family members of HIV positive patients are served under Title IV.

“New” clients include clients whose first receipt of services from the provider agency occurred during the reporting period.

Since these data are aggregated at the national or grantee level, clients that may have been new to one provider could be continuing services to another service provider.

Revisions to Office of Management and Budget (OMB) Directive 15, which provides recommendations to Federal agencies on standardized procedures for collecting and reporting race and ethnicity data, resulted in a change in the way CARE Act program data on race and ethnicity were collected in 2002. In accordance with OMB recommendations, providers were asked to report the number of unduplicated clients who identify themselves as Hispanic or Latino/a, regardless of race. Providers were then asked to report the number of unduplicated clients in each of six racial groups. Clients reported as Hispanic or Latino/a in the previous item were to be accounted for in the question about race. At the provider level, this allows for the distinction between persons identifying with, for example, Hispanic ethnicity/origin, African-American race and Hispanic ethnicity/origin, White race. Due to the fact that CADR data are aggregated they cannot be combined to determine the proportion of minority clients served.

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[1] All grantees and providers must report on eligible services unless they have prior permission from their HRSA project officer to report only funded services.


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